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Wow! That's a good one...........thanks!

Half of these trigger foods don't even NEED gluten in them......they only make it harder on people like us! WHY WHY WHY???


Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06

Diagnosed: Gluten Sensitive through enterolab 11/17/05

Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06

I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein

Peanuts (can handle very small amounts)

Any kind of additives or preservatives

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Sour cream!

Yep... my newly diagnosed daughter pointed out to me that the sour cream I'd been enjoying had modified food starch! You could have knocked me over with a feather!!

Regular, full fat, doesn't contain MFS, but some brands of the lite sour cream do... go figure!!


luvs2eat

Living in the beautiful Ozark mountains in Arkansas

positive blood tests and later, positive biopsy

diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day

Dairy free since July 2010 and NOT happy about it!!

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I use Planters with no problems.

As for the bite size chocolate bars:

M & M Mars (Master Foods) (http://www.m-ms.com/cai) (800-551-9985) (vp=1-19-04)

In the USA all sizes of the following are gluten-free: Snickers, Snickers Munch, Snickers Almond, Skittles bite size, Starburst, Dove, 3Musketeers, MilkyWay Midnight (all other MilkyWay's are not gluten-free), all M & M’s except Crispy.

M & M Mars will clearly list wheat and barley in the products. The rep said they did not use oats or rye in the candy products.

M&M's (800.551.0702) (vp=09/24/02)

The following are gluten-free: Snickers (except mini's in Canada); Skittles; Starburst; Dove (milk & dark choc); Mars Almond Bar; 3Musketeers; MilkyWay Midnight (all other MilkyWay's are not gluten-free). All mini versions of the above are gluten-free except Snickers in Canada)

So in the U.S., don't worry about the sizes for these bars, but in Canada, don't eat the small Snickers. It's the same with Smarties. Smarties in the U.S. are gluten-free, but in Canada they contain gluten. WHY???????????

GGGRRRRRRRRRRRRRRRRR!!!!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Ya know,

after 8 years, I still haven't figured out why wheat is in regular soy sauce...its not a thickening agent, it doesn't lend a flavor, not a preserative....

Absolutely no reason I can think of why Soy Sauce should have wheat as the second ingredient (its not a big deal, I buy the wheat free stuff)...

Grrrrrrrrrrr......

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So in the U.S., don't worry about the sizes for these bars, but in Canada, don't eat the small Snickers. It's the same with Smarties. Smarties in the U.S. are gluten-free, but in Canada they contain gluten. WHY???????????

GGGRRRRRRRRRRRRRRRRR!!!!

Karen

Weird. I was at Walmart picking up some M&M's and looked at the Snickers fun size, because for some reason I thought that NO Snickers in Canada were gluten-free and oddly enough, I couldn't find anything suspicious on the fun size snickers. Of course, it's perfectly possible and even probable, that the second ingredient was wheat flour and I just didn't see it. You know, when you read something over and over and it's not until after you buy it, and you catch it on the label out of the corner of your eye.

And Karen, re: the Smarties. I'm pretty sure the U.S. doesn't have Nestle Smarties. U.S. smarties are Canadian "Rockets". You know the ones I mean? Little circles of sugar wrapped in cellophane. Rockets are gluten-free and M&Ms are superior to smarties anyway, so no loss.

NO! I'm not looking for a debate! M&Ms are better and that's that! (I have to admit, my husband would side with you on the whole smartie/m&m thing unless they are peanut m&m's and then he'd pick the Ms.)


Linda, Mom to Ty (11 years old)

Ty was diagnosed by blood test June 7/05

biopsy Aug 11/05, diagnosis confirmed Aug 18/05

Mom, Dad and big brother Celiac-free.

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Ya know,

after 8 years, I still haven't figured out why wheat is in regular soy sauce...its not a thickening agent, it doesn't lend a flavor, not a preserative....

Absolutely no reason I can think of why Soy Sauce should have wheat as the second ingredient (its not a big deal, I buy the wheat free stuff)...

Grrrrrrrrrrr......

I believe it's part of the fermentation process - a starch source. It's a matter of production.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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I believe it's part of the fermentation process - a starch source. It's a matter of production.

As far as that goes, I believe that is why celiac's are only supposed to have American wines and not European wines. I believe that our labeling laws are alot stricter then over in Europe. I don know for sure, but I have been told that.

Just a thought <_<

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Sour cream!

Yep... my newly diagnosed daughter pointed out to me that the sour cream I'd been enjoying had modified food starch! You could have knocked me over with a feather!!

Regular, full fat, doesn't contain MFS, but some brands of the lite sour cream do... go figure!!

Not all modified food starch contains gluten - but if it doesn't specify, then assume it is not safe. I have read that most of the times in the US if it says modified food starch, it is more than likely derived from corn. But........if it doesn't say specifically, and I cannot verify it, then I don't eat it.

Not all modified food starch contains gluten - but if it doesn't specify, then assume it is not safe. I have read that most of the times in the US if it says modified food starch, it is more than likely derived from corn. But........if it doesn't say specifically, and I cannot verify it, then I don't eat it.


Tracy

- Dx by Derm with DH in Oct 2005 - both by bloodwork and skin biopsy.

- Dx with celiac disease in Nov 2005 by biopsy of small intestine.

- gluten-free since Oct 2005

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I think this one is the strangest I've seen in a while-

If you order an Omelette at IHOP, you will get glutened even if you have it specially prepared in a clean separate pan.

They add pancake batter to their omelettes - they say it makes them fluffier

OMG-My boyfriend and I almost ate at IHOP tonight, and if we were, I was going to have an omelette....thank goodness we played it cheap and ate at home!! :o


Possible celiac in Austin, TX

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westsoy soymilk

candies (like see's)

chicken broth

frozen foods, like veggie burgers (most brands)

dry roasted nuts (they give them out on an airplane!)

candy corn (some brands)

certain cheeses, meats (like deli)

basically any food that it seems like wouldnt need gluten for any purposes... I mean if it can taste just as good w/o the gluten, why put it in?!

I'm confused about the snickers thing though- i thought the fun size were gluten-free in US?? Am i wrong? And what about the minis? great topic by the way- interesting and so useful!!!

When my mom goes food shopping and walks past the deli counter the personnell usually run away <_< ( that was the first couple of times anyway). Anytime we order lunch meat the slicer had to be cleaned, they used to get so mad at us, I kind of felt guilty. But now they know us and they keep a dedicated food allergy slicer for us. It is great, I believe that they do cut lettuce on it in the morning, but hey its still gluten-free :D

Brachs candy corn does contain gluten but I believe that one of the cheaper brands does not. I tryed it this past Halloween and it def. tasted really different. I wonder what gluten does to canycorn that makes it so good. <_<

Amanda NY

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I'm going to say it yet again on this thread --

TWIZZLERS?!?!!???!?!?!?!????

Why, for the love of all that is holy would they do that?

Cornstarch people! Cornstarch! Cornstarch will keep things from sticking too!

And Pancake batter in the freaking omellettes?

AAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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As far as that goes, I believe that is why celiac's are only supposed to have American wines and not European wines. I believe that our labeling laws are alot stricter then over in Europe. I don know for sure, but I have been told that.

Just a thought <_<

I drink European wines quite often and I have not had a problem. I am very sensitive too.


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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Yes, Nathan's.... I hate Nathan's. What the &%&^* do they need wheat in Hot Dogs for??? Killed my laid back attitude towards bbqs in the summer. We had a Bon fire a few weeks ago, and my friend brought those freaking Nathan's. I was like, "WHOA!"... Keep 'em offa the grill till my kid gets a Boar's Head hot dog done up. Just really burns me up. <_<

Ok...lemme get this straight....Nathans bad......are ballpark hotdogs ok? Oh....and, soy sauce, what brands are gluten free, and do I have to special order them? I'm new at this. I'm having trouble with trusting salad dressings also, if someone comes across a yummy ranch dressing, please let me know. AND FOR THE LOVE OF GOD, WHY IS SALAD DRESSING GLUTENED? Can't a girl get a break?

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Ok...lemme get this straight....Nathans bad......are ballpark hotdogs ok? Oh....and, soy sauce, what brands are gluten free, and do I have to special order them? I'm new at this. I'm having trouble with trusting salad dressings also, if someone comes across a yummy ranch dressing, please let me know. AND FOR THE LOVE OF GOD, WHY IS SALAD DRESSING GLUTENED? Can't a girl get a break?

As far as I know, Nathan's is the only hotdog that has wheat. For soy sauce I would say most of us use San-J Wheat Free Tamari. You can find it at any supermarket, but it may be in the organic isle rather than where the other soy sauces are. I know La Choy is also gluten-free, but most people tend not to like that.

For salad dressings, I really like Marie's parmesan ranch and creamy italian garlic. I recently had Ken's buttermilk ranch which I really liked. Although my favorite ranch dressing is the one at Outback :)


Jillian

Positive Blood test and Biopsy

Inflamed stomach lining

Gluten free since July 6, 2005

Tarrytown, NY

"Sometimes being a b$tch is all a woman has to hold onto." - Dolores Claiborne

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gluten-free candy that you eat all the time, like Snickers, but the snack size is not gluten-free.

Actually, snack size Snickers ARE gluten-free. My DD eats them all the time. It's the snack/fun size Hershey bars that are not gluten free.

But I agree, the snack size thing is a booger.

The most annoying non-gluten-free foods on the entire planet for me are Kellogg's cereal. There does not NEED to be barley malt in EVERY SINGLE FREAKIN' ONE!

Twizzlers have wheat for elasticity, not just thickening. Either way, it's stooooopid.

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Ok...lemme get this straight....Nathans bad......are ballpark hotdogs ok? Oh....and, soy sauce, what brands are gluten free, and do I have to special order them? I'm new at this. I'm having trouble with trusting salad dressings also, if someone comes across a yummy ranch dressing, please let me know. AND FOR THE LOVE OF GOD, WHY IS SALAD DRESSING GLUTENED? Can't a girl get a break?

Soy sauce - La Choy (although some don't like it). Kroger brand is also.

Salad Dressing - Kraft will label any gluten so find a Kraft brand you like. Also, Annie's makes salad dressing that is gluten-free and will be marked on the label (not all are gluten-free so you have to check on the back).

We make the Hidden Valley Ranch packets for ranch dip and dressing. It has MSG though, so it's not like it's GOOD for you or anything. :rolleyes:

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I have seen wheat in charcoal. Wheat is in some flavors of ice cream.

:o Charcoal? :o

I don't even see an ingredient list! Do you know which brands? ACK!


Sandi ~ learning to live in a world obsessed and infested with wheat.

"You don't need a weatherman to know which way the wind blows" probably was not referring to us . . .

"For the love of money gluten is a root of all sorts of evil, and some by longing for it have wandered away from the faith and pierced themselves with many griefs." (apologies to 1 Timothy 6:10 (NASB)

The person we most dislike is still a soul for whom Christ died. (David Jeremiah)

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I do not know what brands have wheat in charcoal because now I use a gas grill. I had read on this forum a lady was getting sick every time she grilled a steak. So some asked her if she used charcoal and she said yes. I have looked at some charcoal bags in the past and I have seen wheat in it. If we use charcoal now we use lump coal not the briquets(sp)

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I was in a Vitamin Shoppe looking for probiotic's yesterday and found Kyo-Dophilus brand. There are several varieties to choose from, one which I had to read 4 times, and still walked away shaking my head. I decided to buy a totally different brand altogether. This is what I found on one of the bottles of Kyo-Dophilus, in the ingredients:

OTHER INGREDIENTS:

Gelatin, Cornstarch, Dextrin, Calcium Carbonate, Silica and Magnesium Stearate.

Contains trace amounts of wheat and soy.

FREE OF: Preservatives, Sugar, Sodium, Milk, Yeast, Gluten, Artificial Colors or Flavors.

Now, explain to me, how can this product be free of gluten, yet still contain trace amounts of wheat??? I decided I can not trust this company with this kind of statement.

Here is the product on their website: http://www.kyolic.com/html/products/probio...odopenzymes.htm


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Oh, I love this forum! I was just about to post this question, and here you all are already discussing it.

I've been snacking on Walgreens Mediterranean nut mix and getting sick.

Ingredients: Walnuts, almonds, pistachios, hazelnuts, penaut oil and/or soybean oil, salt.

Processed on shared equipment with peanut and nut containing products.

Who'da thunk?!

interesting... all the dry roasted nuts I have had have been gluten-free. have you checked with the company on the issue?

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The sneakiest and worst offenders for us have been:

1. Products that are labeled gluten-free, but are not either because of the PPM they allow or because of cross contamination.

2. Any freakin' item that has been run on the same line as a gluten product for processing or packaging. One organic juice company I was talking to was explaining that they do wash their lines well in between runs and they can really wash because they are liquid runs. She said dry run processing usually only blows off the lines, rather than a thorough wet wash between runs. Ug.

We are hyper-sensitive to even the smallest amounts of gluten and have been contaminated way too much!

Cathy

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