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Pattys117

Celiac disease ??

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My 16 year old son has been having stomach aches off and on for awhile but a lot more often in the past 2 months. We went o GI dr. He did bloodwork. All was normal EXCEPT Gliadin ( aga) IGG AB Levels which were quite high- 103.6 -should be under 20-25.

Is this a strong indicator of celiac or just possible a gluten intolerance?? As far as I know, there is no history in my family of celiac. Thank you for any input.

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I am no doctor but you should probably see about following up with a full celiac panel including the other test, and see about getting a GI consult and perhaps a Endoscope with biopsies to confirm (would also give idea of any other issues in the stomach/intestines). Be sure your doctors are familiar with celiac as many of us struggled getting a diagnosis and wish it was done earlier.  Do keep him eating gluten daily til all testing is done.
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/

While celiac is genetic it can skip generations and some do not show the standard symptoms and would only have known if a endoscope and biopsy was done. The disease has hundreds of symptoms and presents differently in people
 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Hi,

IMHO that is a strong indication of celiac disease as you called it.  You can ask the doctor to do the full celiac diseased antibodies panel also.  It is good to do all the antibody tests because some people react on only one antibody test and not others.  The other test they can do is an endoscopy where they take 4 to 6 biopsy samples for a lab analysis.   As Ennis said he needs to keep eating gluten until all the tests are done.  The test results are not accurate if he stops eating gluten.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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59 minutes ago, RMJ said:

I’m the first, and so far only, person in my family to be diagnosed with celiac disease.

I think this part is important to remember - first to be diagnosed .  That doesn’t mean someone else didn’t or doesn’t have Celiac.


 

 

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