Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

melisadki

I Need Some Help

Rate this topic

Recommended Posts

I know I am going to get yelled at but around the holidays I started eating gluten again. I thought this cant be my problem...blah blah. I was feeling so awful anyways because my husband and I are going through infertility right now and it is so hard. So to make a long story short. Here I am weeks later and I can barely get out of bed..cant eat, cant sleep, bloated, having headaches, vomiting, diarhea, etc...Why did I do it!

Anyways I could really use some encouragement to get back on track. Hubby agreed not to bring home bread etc anymore but he is still going to eat gluten because being a trucker it is hard on him not to have a sandwhich etc. I am so depressed over so many things like not getting pregnant that I am afraid I will fail again. I just feel like so much is going on right now I just hope I can find the strength to keep at this lifestyle. Did I also mention I am quitting smoking friday so that is triple stress.. :blink:

Triggers for me are

1. Fast food restaurants when we are on the go

2. Bread-all gluten free bread taste like poo! I have tried everything!

3. Having dinner at other peoples houses because I have to request a special menu then they make fun of me or say something stupid like you have been eating wheat your whole life...blah blah.

4. Holidays...Obviously..lol

Thanks for listening. :)

Mel

Share this post


Link to post
Share on other sites
Bread-all gluten free bread taste like poo! I have tried everything!

Have you tried Sterk's bread? I really like Sterk's Sliced Sandwich Bread especially when it's toasted:

http://www.allergygrocery.com/Merchant2/me...roduct_Count=20

The gluten free diet is hard at first, but it becomes easier with time. If you need meal ideas or recipes just ask!

Share this post


Link to post
Share on other sites

I just wish they could send you samples of the bread. by the time you pay 6.00 plus shipping taste it, then it goes in the trash. This seems to be my problem...everytime I try the stuff I gag. ;)

Share this post


Link to post
Share on other sites

I have simply tried not to eat bread because I don't like the gluten-free ones either. I understand it is hard. I buy yummy smelling gluten breads for my husband. But I haven't faltered from the diet because I remember how sick I get and it is not worth it for me. I have replaced bread with tortilla chips and rice crackers. Oh well.

Share this post


Link to post
Share on other sites

It is hard at first, but is it really worth being that sick for?? I am vegetarian too, so that has made it hard for me. You can do it and seeing how sick you are now, should make you remember not to eat the stuff again.

I like the Gluten free Pantry bread mix, but I bought a bread maker to make it in and you have to slice it and freeze it right away to keep it moist. It is great when it first comes out though and it is a good bread that you don't have to toast, so you can make a sandwich and take it with you.

You have to get motivated to cook yourself good food, so you can feel better and get pregnant.

I avoid eating out mostly and I don't go to peoples houses much. I know it puts a damper on your fun, but for now this works for me.

HOpe you start feeling better soon.

Monica

Share this post


Link to post
Share on other sites

You will become healthy when you make the choice between "immediate gratification" and a "healthy gluten free lifestyle" -- right now, you are allowing yourself to get sick because you won't stand up for yourself, to your husband, friends, holidays, etc.

If those people TRULY love you, they will understand your situation and help you (beleive me I know -- they will come around -- some people just need to be wacked upside the head -- figuratively)

Personally, I can't stand the stomach aches, diarrhea, nausea, GAS, DH and general sense of malaize -- which is why I adhere to the diet. Screw the bread, its poison anyway...

Buy yourself a toaster for only your use -- gluten-free bread tastes much better toasted (I never eat it out of the bag -- blech!). Only your bread goes in there ( otherwiser you will get sick from the regular bread crumbs)

Get a hold of yourself and start living for yourself -- gluten free is not a choice it is mandatory!

Share this post


Link to post
Share on other sites

Yes I am trying to encourage myself by telling myself that this gluten causes Infertiltiy although I know it is mostly from my polycystic ovaries. Hell maybe the gluten caused that.

I have become very found of rice cakes and tortilla chips. I have tried bread in a breadmaker and it taste so awful my dogs wont eat it (and they eat anything)

As far as going over to my sisters for dinner. She tried to make something gluten-free the last time I was over. Although I did notice she used the same spatula to mix the meat and the rice (rice mix had gluten). I didnt think to much into it but I didnt want to seem like a b*tch saying this and that. Its hard I really need a social life. And DH moans and complains because he cant have this..or that. It is so tempting to have it in the house. He has 4 boxes of macaroni and cheese and I just want to trash them.

Does anyone realize that gluten was hardly a problem back in the 50's etc. I dont know if anyone realizes this but gluten has always been around but now with technological advantages they genetically modified wheat and it has 100 times more gluten in it. I think this is half the problem! JMO

Share this post


Link to post
Share on other sites

Hi Melisa,

Sorry to hear you're feeling bad. Do you have a Whole Foods near you? They have some good bread from the Gluten Free BakeHouse....alot of other yummy goodies as well. I love their baked goods. If you're having a hard time making the adjustment around other people maybe it would help to avoid dinners until you feel comfortable. Its kind of like trying to quit smoking while everyone around you is still lighting up. Its easier to avoid the smokers until you get past the hard part. It worked for me anyways. :)

Share this post


Link to post
Share on other sites

Would it help you to know that you're feeling depressed because the gluten (or the reaction to it) is messing with your brain chemistry? Next time you want to "comfort" yourself with gluten food, remember it's going to make you feel even more depressed. It's hard to believe before you have experienced it, but once you've been gluten free for a good while, your mood will lift and that alone is going to be such a huge change, you never want to touch gluten again. I never crave gluten foods nowadays because i just feel so damn good, I don't need any comfort food. Not to speak of the other symptoms, for me just the miserable mood I'm in if I eat gluten is enough to keep me away from it.

Pauliina

Share this post


Link to post
Share on other sites
Sorry to hear you're feeling bad. Do you have a Whole Foods near you? They have some good bread from the Gluten Free BakeHouse....alot of other yummy goodies as well. I love their baked goods. If you're having a hard time making the adjustment around other people maybe it would help to avoid dinners until you feel comfortable. Its kind of like trying to quit smoking while everyone around you is still lighting up. Its easier to avoid the smokers until you get past the hard part. It worked for me anyways.

LOL....I am trying to quit smoking too! Maybe too much at once.. :rolleyes: but I figure easier now then when I get PG to have to quit everything.. :o Yes we have a Whole Foods but it is an hour away. I tried there bread and I dont care for it. I do seem to like rice cakes and it is not bad to have a rice cake with soemting on it. I never liked them before but take away bread and they are my best friend now.

Would it help you to know that you're feeling depressed because the gluten (or the reaction to it) is messing with your brain chemistry? Next time you want to "comfort" yourself with gluten food, remember it's going to make you feel even more depressed. It's hard to believe before you have experienced it, but once you've been gluten free for a good while, your mood will lift and that alone is going to be such a huge change, you never want to touch gluten again. I never crave gluten foods nowadays because i just feel so damn good, I don't need any comfort food. Not to speak of the other symptoms, for me just the miserable mood I'm in if I eat gluten is enough to keep me away from it.

Yes I believe you on this. I naturally have bipolar and I think eating this gluten just makes things 10 times worse. I was off of gluten for nearly 2 months then the holidays hit and well I am back to square one. I didnt feel great off of gluten but I could at least get out of bed and get myself motivated. Thanks for reminding me.......I forgot about the gluten/depression link....see my memory is shot now too! :huh:

Share this post


Link to post
Share on other sites

You need to focus on all the things you CAN have, not what you can't. Invite people to your place and cook gluten-free for them. Experiment with a couple new gluten-free recipes every week. Get some exercise every day. Instead of socializing around food, start socializing around exercise (go for a walk with a friend) or something else (a craft, for instance). It will get better, but only if you stick with it and simply not allow gluten as a choice. You wouldn't say "oh, it's just a bit of rat poison... I can have it this time." so don't do it with gluten either! :-)

Share this post


Link to post
Share on other sites

Melissa

Please don't ever think that you are going to get jumped on here for "falling off the wagon"!!! We are a support group (albeit, a cyber space one, but still a support group) and jumping all over you when you are down would be more cruelty than I think anyone here is capable of!! We're here to help, not judge.

Now, I am probably going to take some flak for my next suggestion. Screw the quitting smoking right now. That's just putting one more stress and pressure on you that you just don't need right now! Besides, when you weaken and light up (and you will, unless you are one of the 1% of the population who succeeds in quitting their very first time!!!), isn't that just going to add to your feelings of depression? Take one thing at a time, girl, you are not Super Woman! And believe me, when you get pregnant (and you will!!!), there is the best motivation in the world to quit (I know, I quit cold turkey every time I found out I was pregnant).....

Please don't beat yourself up about this. Lesson learned, move on.

Another suggestion is that I think you should buy your own bread machine. The bread comes out beautifully fluffy, warm, melts in the mouth, etc. Bring back any memories??? LOL!

Sending you HUGE cyber hugs and remember, don't ever think that we won't be there for you. Don't you think we know how hard this is for you? Hey girl, walked down this road........

Hugs.

Karen

Share this post


Link to post
Share on other sites

The tricky thing with being glutened, and depressed, is that it affects your ability to make good decisions. For example, I'd never eat gluten on purpose - but when I've been glutened, I might eat something that I'm not 100% sure of, something I'd normally never do. Knowing this helps me avoid it though.

Pauliina

Share this post


Link to post
Share on other sites
Another suggestion is that I think you should buy your own bread machine. The bread comes out beautifully fluffy, warm, melts in the mouth, etc. Bring back any memories??? LOL!

I have 2 machines. I have tried so many loves of bread and they always taste gummy or just nasty. Maybe I need to buy a mix or something because all the homeade recipes taste like crap

Now, I am probably going to take some flak for my next suggestion. Screw the quitting smoking right now. That's just putting one more stress and pressure on you that you just don't need right now! Besides, when you weaken and light up (and you will, unless you are one of the 1% of the population who succeeds in quitting their very first time!!!), isn't that just going to add to your feelings of depression? Take one thing at a time, girl, you are not Super Woman! And believe me, when you get pregnant (and you will!!!), there is the best motivation in the world to quit (I know, I quit cold turkey every time I found out I was pregnant)..

I figured I would give it my best shot. I wanted to make sure I was smoke free before we went to a Reproductive Endroconolgist and that is our next step later this year once DH gets his insurance. Plus my hubbie quit 3 weeks ago so I need to keep my end of the bargain. B)

Thanks for everyones suggestions they are very helpful! :)

Share this post


Link to post
Share on other sites

Oh yeah, forgot to mention something (as I mentioned in another thread, I got glutened for the first time in a VERY long time and right now my brain consists of 30 roasted marshmallows instead of a brain, but that's another story....)

Did I mention that when I was in my early 20's, fully glutening myself and unknowingly poisoning myself, and also suffering from endometriosis, my specialist doctor who I was going to see about the endo, who also happened to be head of the invitro program (the first of it's kind in Toronto, oops, I am dating myself.....), anyway, he told me I WOULD HAVE A 50/50 CHANCE OF EVER BEING ABLE TO CONCEIVE A CHILD.

Check out my signature. Just a friendly reminder not to think of doctors as God and what they say as the Bible. Boy, did I prove him wrong!!!!

Hugs.

Karen

Share this post


Link to post
Share on other sites
I just wish they could send you samples of the bread. by the time you pay 6.00 plus shipping taste it, then it goes in the trash. This seems to be my problem...everytime I try the stuff I gag.
Gluten free bread can be a hit or a miss. Have you tried the Tinkyada pasta yet?

Share this post


Link to post
Share on other sites
Check out my signature. Just a friendly reminder not to think of doctors as God and what they say as the Bible. Boy, did I prove him wrong!!!!

You sure did congratulations! I hate the idea of doing infertility treatments but it may come to that because of my Polycystic ovaries. My eggs suck.. :angry:

Have you tried the Tinkyada pasta yet?

Carrie I havent tried that, where do you get it?

Share this post


Link to post
Share on other sites
Guest nini
Oh yeah, forgot to mention something (as I mentioned in another thread, I got glutened for the first time in a VERY long time and right now my brain consists of 30 roasted marshmallows instead of a brain, but that's another story....)

Did I mention that when I was in my early 20's, fully glutening myself and unknowingly poisoning myself, and also suffering from endometriosis, my specialist doctor who I was going to see about the endo, who also happened to be head of the invitro program (the first of it's kind in Toronto, oops, I am dating myself.....), anyway, he told me I WOULD HAVE A 50/50 CHANCE OF EVER BEING ABLE TO CONCEIVE A CHILD.

Check out my signature. Just a friendly reminder not to think of doctors as God and what they say as the Bible. Boy, did I prove him wrong!!!!

Hugs.

Karen

good point to remember that Dr's do not know everything and they are NOT God. About 12 years ago I injured my leg and the Dr. told me I would NEVER walk on it again without surgery. I refused the surgery and was walking on it within 3 months. About a year later when I was dx'ed with fibromyalgia, the Dr. told me I was so bad off that I would be in a wheelchair within 5 years. Um... NOT in a wheelchair thank you very much! Yes I do live with pain everyday but because I keep myself active, I am not disabled because of it.

Share this post


Link to post
Share on other sites
Does anyone realize that gluten was hardly a problem back in the 50's etc. I dont know if anyone realizes this but gluten has always been around but now with technological advantages they genetically modified wheat and it has 100 times more gluten in it. I think this is half the problem! JMO

Off topic but I have to comment on this, gluten WAS a problem in the 50's, I was born then as was my twin and my mother was already severely effected. Just because our doctors were to ignorant to diagnose it does not mean it did not exsist. My mother died of gluten related cancer in the early 70's, still diagnosed as emotionally troubled and as just B12 deficient. I suffered gluten related symptoms since early childhood and was labeled as 'wanting to be sick!!!!' My gluten stunted DS was labeled the same, as was my DD. American Doctor s--k. They think nothing exsists if it can't be cured by a pill. You now know what happens when you consume this toxin, be dilligent, check for crosscontamination in everything and learn to live without it. I waited a year after diagnosis to try the gluten-free breads, while not great many are quite palatable just be sure to read the labels and microwave it before use if it says to do so, many are par-baked. Best Wishes and don't give up.

Share this post


Link to post
Share on other sites

THe GLUten free PANTRY bread mix is very good in a bread maker. Especially when it first comes out and then you have to freeze it right away. My husband who can eat gluten thought it was good too, so you definitely need to give it a try. No, it isn't quite as easy when you have to defrost it to make a sandwich, but well worth it when you need a quick sandwich.

Monica

Share this post


Link to post
Share on other sites
About 12 years ago I injured my leg and the Dr. told me I would NEVER walk on it again without surgery. I refused the surgery and was walking on it within 3 months. About a year later when I was dx'ed with fibromyalgia, the Dr. told me I was so bad off that I would be in a wheelchair within 5 years. Um... NOT in a wheelchair thank you very much! Yes I do live with pain everyday but because I keep myself active, I am not disabled because of it.

Good for you~I agree I have proven doctors wrong many of times.. :lol:

Off topic but I have to comment on this, gluten WAS a problem in the 50's, I was born then as was my twin and my mother was already severely effected. Just because our doctors were to ignorant to diagnose it does not mean it did not exsist. My mother died of gluten related cancer in the early 70's, still diagnosed as emotionally troubled and as just B12 deficient. I suffered gluten related symptoms since early childhood and was labeled as 'wanting to be sick!!!!' My gluten stunted DS was labeled the same, as was my DD. American Doctor s--k. They think nothing exsists if it can't be cured by a pill. You now know what happens when you consume this toxin, be dilligent, check for crosscontamination in everything and learn to live without it. I waited a year after diagnosis to try the gluten-free breads, while not great many are quite palatable just be sure to read the labels and microwave it before use if it says to do so, many are par-baked. Best Wishes and don't give up.

I am sorry Raven I guess this came out the wrong way.. <_< it still was a problem just nowadays they pumped more of that stuff into it so it is even more harmful. I wish I remember where I seen that article :unsure: Genetic engineering has really wrecked havic on this nation

.

THe GLUten free PANTRY bread mix

Thanks I will keep that in mind

Share this post


Link to post
Share on other sites
I know I am going to get yelled at but around the holidays I started eating gluten again. I thought this cant be my problem...blah blah. I was feeling so awful anyways because my husband and I are going through infertility right now and it is so hard. So to make a long story short. Here I am weeks later and I can barely get out of bed..cant eat, cant sleep, bloated, having headaches, vomiting, diarhea, etc...Why did I do it!

Anyways I could really use some encouragement to get back on track. Hubby agreed not to bring home bread etc anymore but he is still going to eat gluten because being a trucker it is hard on him not to have a sandwhich etc. I am so depressed over so many things like not getting pregnant that I am afraid I will fail again. I just feel like so much is going on right now I just hope I can find the strength to keep at this lifestyle. Did I also mention I am quitting smoking friday so that is triple stress.. :blink:

Triggers for me are

1. Fast food restaurants when we are on the go

2. Bread-all gluten free bread taste like poo! I have tried everything!

3. Having dinner at other peoples houses because I have to request a special menu then they make fun of me or say something stupid like you have been eating wheat your whole life...blah blah.

4. Holidays...Obviously..lol

Thanks for listening. :)

Mel

Melissa,

Try Breads from Anna bread mix. You have to bake it yourself, but it is well worth the effort. It tastes like real bread!

Good luck getting back on track. Don't beat yourself up--dealing with celiac is not easy, but you can do it.

Sharon

Share this post


Link to post
Share on other sites

I just wanted to let you know you can have wendy's chili and taco salad, NO SALSA, and frys from McDonalds without trouble. So far that is the only fast foods I know I can eat.

Whole foods has gluten free baked goods, the choclate chip cookies are great :P and the bread is not bad. The banana bread is good too...

Take are of yourself, the more you do the better chance you have of a baby!

love

Michelle

Share this post


Link to post
Share on other sites

Hi Mel,

try the Bob's Red Mill glutenfree Bread Mix. Hmmm! I bake two of them every week. I can't get enough! I also bought an electric bread knife. This helps a lot with cutting, because the bread doesn't crumble that much. After cutting I freeze the bread one slice in one little baggie. And then when I want one, I put one of them frozen as is into my toaster. Hmmm! Yummy!

I fully agree with Karen. Don't ever think, you get yelled at for something you did wrong. We are here to help. And although most of us are pretty disciplined I bet we all had one or two weak moments at the beginning ;) . Or think about the times you got glutened by accident. It happened to everybody, you can't deny it. We are not perfect!

And with the baby thing a can fully feel with you here. My husband and I are married a little over two years now and still no baby :( . I think the gluten really does it's bad part to fertility. But the more we are glutenfree the bigger is the chance of having a successful pregnancy. Let's just hope for the best.

I wish you all the best

Stef

Share this post


Link to post
Share on other sites

Melissa,

You can get Tinkyada pasta at Whole Foods or Wegman's (if there is one near you). It makes a great quick meal. My 17 year old non-gluten free son even likes it. It even gives me leftovers for lunch.

Whole Foods is also about an hour away from me. About a week before I plan to go down there, I call the bakery and place an order with them so they have the items I want in stock. I LOVE the Cranberry/ Orange Scones. The Blueberry Muffins are pretty good too. I always order some cinnamon raisin bread. This bread makes really good french toast. My son likes that too. I don't know if that's a good thing or not. I guess it's good that I can get him to eat a meal with me, and I only have to get one pan dirty, but the bread is a little on the pricy side.

As for fast food ideas, you can eat a Jr. Cheesburger (no roll) and a baked potato. You have to watch them though. I have to ask the person preparing the food to change gloves because I have seen them prepare the order before mine by taking a roll with their hands and placing in on the paper, adding the burger with tongs and then using their hands to add lettuce and tomatoes. I find that if I explain that I can not have any products that have touched wheat, they are very cooperative.

I have some quit smoking tips too. I quit 16 years ago when I was pregnant (Cigarettes were $.50 a pack!!) The first step is to eliminate the cigarettes that are just "Habit". For me it was talking on the phone. As soon as the phone rang, I would have to light up. I moved the cigarettes away from the phone so I could not get them. Of course, that was way before cordless phones.

Also, Any time I was in the car, I had to have a cigarette. I would put them in my pocketbook in the back seat where I couldn't get them.

I carried the baby precut carrots in a ziplock baggy, and used them as a crutch when I wanted a cigarette.

There are all kinds of websites now that can give you other tips on how to keep your mind on not smoking.

I hope you get yourself back on track soon - If there is anything else we can help you with let us know!

Good Luck-

Cindy

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...