Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

DianeByrd

Gluten Free Trial Diet & Enterolab Results

Rate this topic

Recommended Posts

I've been reading this board periodically for the past year, wondering the entire time whether our now two- and-a-half-year-old daughter has gluten intollerance. We're in the last stretch, hopefully, of coming to a definitive conclusion. We finally turned to Enterolab after the pediatric gastroenterologist exhausted her efforts at getting to the bottom of our daughter's failure to thrive. The results were:

Gluten Sensitivity Testing

Fecal Antigliadin IgA 32 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 20 Units (Normal Range <10

Units)

Microscopic Fecal Fat Score: 42 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0501, 0301

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 21 Units (Normal

Range

<10 Units)

Since our doctor won't accept these results as valid (blood tests and biopsy were both negative), and I have some doubts myself, we plan on putting her on a gluten-free diet for a six-week trial to confirm the results. Last time we put her on a six-week gluten-free diet was exactly a year ago, at 18-months of age, with a significant two-pound gain. She had gained less than two pounds from ages 12 months to 18 months and gained 4 pounds in the 10 months since being off the gluten-free diet trial. What amount of growth should we expect this time around as a measure of success, now that she is older?

Also, with the new labeling in effect, I'm confused about what is safe. Last time, we gave her items that had no suspicious ingredients. Those same products now have warnings such as "processed in the same plant as wheat". Where should we draw the line? I really stressed out about avoiding gluten last time, and limited her contact with others who might accidently give her food.

Lastly, the positive anti-casein IgA antibody results from Enterolab have thrown me for a loop. I suspected milk as a potential allergan when I noticed what looked like blood in her stool within a couple days of introducing her to Pediasure, a milk-based formula, at twelve months. I stopped the Pediasure, but the doctor could not confirm my observation, so the issue was dropped. I later introduced milk again with no noticeable change. When and how should I consider eliminating casein without complicating the gluten issue and potentially restricting her caloric intake too much?

I welcome any and all advice, as I'm overwhelmed and want to move beyond continually trying to figure out if I'm feeding my daughter well enough for her to grow properly.

Thanks in advance,

Diane

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...