Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Why Are You Looking For Doctors?


CeliacMe

Recommended Posts

CeliacMe Rookie

Hey, just in a doctor hating sort of mood....so I came on here and EVERYONE'S LOOKING FOR A DOCTOR! What happened to you guys? Where's your spunk? Are we not the chronically ill? Do we not hate the doctors for not listening, and thinking we're crazy? Do we not hate them for all of the years of illness that we suffered because of their lack of concern for humankind, mainly US!?!?!? So this is a thread for all those, like me who want to doctor bash.

Here's some good ones:

PHYSICIANS vs. GUN OWNERS

Physicians:

a. The number of physicians in the U.S. is 700,000.

b. Accidental deaths caused by Physicians per year are 120,000.

c. Accidental deaths per physician is 0.171.

(Statistics courtesy of U.S. Dept. of Health & Human Services)

Now think about this . . .

Guns:

a. The number of gun owners in the U.S. is 80,000,000.

b. The number of accidental gun deaths per year (all age groups) is

1,500.

c. The number of accidental deaths per gun owner is 0.000188.

Statistically, doctors are approximately 9,000 times more dangerous than

gun owners.

Remember, "Guns don't kill people; doctors do."

FACT: NOT EVERYONE HAS A GUN, BUT ALMOST EVERYONE HAS AT LEAST ONE

DOCTOR! Please alert everyone that you know of this growing problem!

ps

MD- more drugs

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 222
  • Created
  • Last Reply
VydorScope Proficient

I like most of my docs, and fired the ones I dont like. Esply like my son's doc, very down to earth!

Link to comment
Share on other sites
CeliacMe Rookie
I like most of my docs, and fired the ones I dont like. Esply like my son's doc, very down to earth!

you have confused my thread with another- please doctor bashers only! too many positive ones. i need to restore balance.

Link to comment
Share on other sites
Guest BERNESES

Oh OK- I want to sue my old GI (really). Pr*&^ck!!!!!! And i'm quite serious about that. I will refrain from any positive comments here. :P

Link to comment
Share on other sites
CeliacMe Rookie
Oh OK- I want to sue my old GI (really). Pr*&^ck!!!!!! And i'm quite serious about that. I will refrain from any positive comments here. :P

Oh thank you!! the is the F** em doctors board!!!

Link to comment
Share on other sites
VydorScope Proficient
you have confused my thread with another- please doctor bashers only! too many positive ones. i need to restore balance.

So sorry, then I wont tell you about my wife's awesome OBGYN doc... :)

Link to comment
Share on other sites
WGibs Apprentice

I'll bite.

My GI says that even if I had celiac, there is no medical reason for me to go gluten-free. Since all my problems are digestive, she says I can just take Immodium every day for the rest of my life.

I still don't know for sure if I have a problem with gluten, because my blood results were mixed and my doc just called it negative and told me to take Immodium. I felt so rotten that I just didn't have the energy to fight her. I tried the gluten-free diet on my own and feel so much better. The irony is that now that I feel better, I feel like I would have the strength to stand up to her, but I needed her when I felt awful.

Some of these people do not deserve a license.

P.S. I have had some great doctors, but this one was appalling.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular
So sorry, then I wont tell you about my wife's awesome OBGYN doc... :)

Vincent,

I would really worry if I were you why your wife thinks he is so "awesome"... :P

Just joking!!! I have yet to find an OBGYN who has the proper bedside manners to make me feel comfortable!!!

Karen

Link to comment
Share on other sites
mytummyhurts Contributor

I'm getting pretty sick of all the doctor bashing on here. I understand that some of you have had some pretty bad experiences and I'm sorry about that. But not all doctors are bad, some of them are quite good and work really hard to help their patients and they don't deserve to be rolled into one category with the bad ones. I was diagnosed in my first trip to the doctor and most of my doctors are great!

And...by the way. It was my OB/GYN that diagnosed me!

Link to comment
Share on other sites
Guest nini

it was my OB/GYN that told be that it was all in my head and I needed to eat wheat for my baby... (yeah I was pregnant at the time and trying the gluten-free diet but doubting myself... and he just cinched it)

In fact it's time for that annual visit and I still haven't found another office to go to. Do I go back to him and keep my mouth shut or say "told ya so" or scramble to find another dr. before my bc pill prescription runs out?

Link to comment
Share on other sites
VydorScope Proficient
it was my OB/GYN that told be that it was all in my head and I needed to eat wheat for my baby... (yeah I was pregnant at the time and trying the gluten-free diet but doubting myself... and he just cinched it)

In fact it's time for that annual visit and I still haven't found another office to go to. Do I go back to him and keep my mouth shut or say "told ya so" or scramble to find another dr. before my bc pill prescription runs out?

Its best that you find a new doc if you not comfortable with this one. Get confrontail with your doc will likely do nothing but cause you agravation. JMO! :)

Link to comment
Share on other sites
jenvan Collaborator

I agree with Abby. I do get the doctor angst...I have it too for some of mine. I have had a few henious doctors and have complications b/c of not being noticed...however, not all doctors are bad. And until you can give yourself an endoscopy, a biopsy or surgery, we need them around.

Link to comment
Share on other sites
Canadian Karen Community Regular

I think alot of the doctor bashing is just a way to vent frustrations, but I think we should keep in mind that we should be frustrated with the medical establishment in general, not a particular doctor. It is frustrating that the whole medical community seems to have blinders on when it comes to celiac disease. But I look at this as a challenge. We need to be as vocal as possible, get the info there, and start changing things ourselves instead of just sitting back sulking and complaining about doctors. My family doctor now knows so much more about celiac disease than she ever did before and it is always in the back of her mind now with other patients due to the hell I have gone through.

We should channel that frustration into something positive instead of negative - talk about this disease! I am always mentioning it on a parenting forum I am on, especially in the nutrition section, health section and children's special needs section (alot of ADHD children's parents on there, and I suggest trying gluten free for them....). Talk about it at supermarkets when someone notices you picking up a gluten-free loaf of bread.

It is this way that we are slowly but surely going to make this disease more mainstream, and eventually that will result in all those doctors we are currently complaining about actually having knowledge about celiac disease and there won't be any more complaints!!!

Just take a look at how far we have come in the last five years or so........

Karen

Link to comment
Share on other sites
jenvan Collaborator
Just take a look at how far we have come in the last five years or so........

Karen

True that Karen! Do any of the parents heed your input? Anyone put their ADHDers on a gluten-free/cf diet?

Link to comment
Share on other sites
Canadian Karen Community Regular

Yep. Some see positive reponses right away. Others, who seem to want the same results, get frustrated when they don't but then it's important to remind them that everyone is different and it could take 6 months to a year off of gluten before they will see any change.

There are two other fellow celiacs on that site......

Karen

Link to comment
Share on other sites
VydorScope Proficient
Yep. Some see positive reponses right away. Others, who seem to want the same results, get frustrated when they don't but then it's important to remind them that everyone is different and it could take 6 months to a year off of gluten before they will see any change.

There are two other fellow celiacs on that site......

Karen

CK, you should make you tell them that it will only work IF thier childs ADHD is cuased by celiac disease, which is NOT always the case. There are lots of documented causes (adverse reaction to food dyes/adtives is a big one), and plenty of cases with no known cause.

Link to comment
Share on other sites
Canadian Karen Community Regular
CK, you should make you tell them that it will only work IF thier childs ADHD is cuased by celiac disease, which is NOT always the case. There are lots of documented causes (adverse reaction to food dyes/adtives is a big one), and plenty of cases with no known cause.

Very good point, Vincent.

They talk alot about food dyes, etc. The parents of those children with ADHD not caused by celiac disease usually pipe in with advice regarding food dyes and stuff....... I usually bow out then since I have no clue about that stuff!! LOL!

Karen

Link to comment
Share on other sites
Ursa Major Collaborator

I like my current doctor. I do the research and tell her what my problems are. Then I tell her what I'd like her to do about it (like which things to test for, or what to prescribe) and she does it. And I have to do all that without her noticing that I am obviously my own doctor and I am just using her to get what I want.

After 52 years of doctors treating me like I have a mental problem, and being told that I'd feel better if I'd only lose weight, she is the perfect doctor for me. Very nice, fairly ignorant and quite compliant, because she realizes that I know what I am talking about most of the time.

This far, everything I was ever diagnosed with that matters, I self diagnosed and had it confirmed by the doctors. That goes for the fibromyalgia, psoriasis, Tourette Syndrome, Asperger Syndrome and now the Celiac disease and the other food intolerances (except for the nightshades, a naturopath figured that out).

The doctor who officially confirmed I have fibromyalgia five years ago did it very reluctantly, but had no choice, because I had all the symptoms (including the pressure points, which is undeniable evidence). But then she told me that if I only 'learned to think more positive, all my little aches and pains would likely go away'. I felt like saying that she should try living with my 'little aches and pains'! I was in agony much of the time. Needless to say, I never went back.

And now I figured out that food intolerances caused the fibro. Doctors NEVER seem to think that there could be a connection between food and physical and/or mental illness.

And my chiropractor is the one who figured out why I had terrible pain in my left foot, prescribed me orthotics and I am fine, the pain went away within a week of wearing them. Before that I went to my doctor, who referred me to an orthopaedic surgeon. That was last June (2005). I was called by the specialist's office two months later, to tell me my appointment was at the end of August in 2006!!!!!!! If I would have had to wait for 'normal' doctors, I'd likely be in a wheelchair by then. :wacko:

Link to comment
Share on other sites
jenvan Collaborator

From the reading I've done, it seems like if an ADHD child is suffering from leaky gut or gluten/dairy intol the diet might help...not just for classic CDers alone.

Link to comment
Share on other sites
mommida Enthusiast

O.K. I hate doctors.

I think you should only go to Dr.s who are highly reccomended by people you know.

There is supposed to be an online source for checking if your doctor has any complaints against them. I think it might be baddoctor.com.

Well most people that know me ask what doctors I have been to, to make sure they don't go there.

Link to comment
Share on other sites
Canadian Karen Community Regular
From the reading I've done, it seems like if an ADHD child is suffering from leaky gut or gluten/dairy intol the diet might help...not just for classic CDers alone.

There have definitely been some success stories over there once a gluten free diet was initiated. For those who don't respond, they look for other reasons (food dye, etc.) or a combination of more than one. When they get into detailed discussions of the food addititives, dyes, etc., that's usually when I pop back over into the "Sex, Marriage & Relationships" forum. After all, that IS where I heard about Altoids to begin with!

:lol:

Karen

Link to comment
Share on other sites
mommida Enthusiast

How do I get to that site?

Link to comment
Share on other sites
Guest BERNESES

Karen- Your turtle and quote are WAY too funny!

I'm actually a doctor. OK, I just play one on TV, but we "actors who play doctors on TV" are actually getting frustrated with all this doctor bashing. Signed, Dr. Altoid

Link to comment
Share on other sites
Canadian Karen Community Regular
How do I get to that site?

Are you sure I won't get accused of "luring" if I post it? Better be safe, I'll PM it to you...... B)

Karen

Link to comment
Share on other sites
ebrbetty Rising Star

I'd love to sue my gastro too..one year of hell because he said celiac disease does not cause pain in the stomach!!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,060
    • Most Online (within 30 mins)
      7,748

    Demandcpm
    Newest Member
    Demandcpm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...