Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Ursa Major

Test Results For Daughter

Rate this topic

Recommended Posts

Well I got the results for Susie's blood tests. She is 14 and claims she is fine, and I had to force her to go, because she has a lot of gastro symptoms. Plus, all my kids should get tested anyway. I can't force the other four (they're 20, 22, 24 and 25), but I can force her.

The doctor's office called and said all her tests are in the low normal range (they weren't given the exact numbers, unfortunately, so can't give them to me, either, I was upset about that). She was tested for IfA EMA, IfG and IfA AGA, IgA tTg, and IfA deficiency.

She has a pretty severe dairy intolerance, which causes symptoms much like being glutened. Last Sunday we went to the store, and I allowed her to get some sorbet, and foolishly didn't read the ingredients list before taking it home. Susie ate some, and asked me if I wanted any, since limes are okay for me. I said that I needed to read the ingredients list first. She read it to me, and the fourth ingredient was 'milk ingredients'. And she said, "Oh, I didn't realize that sorbet can contain milk!"

She couldn't go to school the next day because of severe diarrhea (she had to run to the bathroom every half an hour all day), and she had a terrible stomach ache on Monday night. Sepia (a homeopathic remedy I take when my stomach aches) calmed that so she could sleep and go to school on Tuesday.

I am still not 100% convinced that she has no problem with gluten. But after the doctor called, she said, "Told ya, I definitely have no problem with gluten, you're just obsessed with it, thinking that everybody else has it, too!"

So, there is no way she'd even try the gluten free diet. And she loves bread, bagels, cake etc. and leaves crumbs EVERYWHERE! And so do my husband and the other daughter who still lives at home.

Share this post


Link to post
Share on other sites

Well, I'm sure you are aware of how often the results give a false negative. You know your daughter better than anyone here, but she really needs to take this seriously. As much as I loved the wheat products I had been eating, I wish I had known gluten was causing so much of my suffering.

All I can suggest is that you could point out how the intolerance is often passed on from one generation to the next. And that she owes it to herself, not to you, to be certain. As time went by, my symptoms grew worse and worse. No doctors ever got close to figuring out the problem. I discovered it for myself, but not until things got so bad I don't know what kept me alive. Even after a year or more gluten-free, my insides are just begining to recover, but the process is so slow I doubt a full recovery will ever happen.

Additionally, I just today found out that there is a virus known as the adenovirus. Apparently the gluten in modern-day wheat has an amino acid sequence which is similar to one in this virus. This may be why so many people cannot tolerate gluten, because the body thinks it is fighting this virus. The symptoms of infection include the gastro symptoms you describe, as well as many others. You should show your daughter this page, which describes the adenovirus. She may identify with the symptoms more than she can ignore.

I now believe that once the immune system creates a defense against this virus, gluten can also be targeted, simply because of the similar amino acid sequence. If this is true, then perhaps anyone can become gluten intolerant. Your daughter doesn't have to believe what you think. She only has to look at the facts. Logic can do the rest.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...