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floridanative

Celiac On Gma

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I saw it too! I heard Robin say "the hidden medical reason women might feel bloated" (or something similar) and was hoping it was about celiac. I sat glued to the tv for 45 minutes waiting, and wouldn't you know it, the second I take a break to go to the bathroom, that's when it comes on!

I caught most of it though, and it seemed pretty good. I always get chills when something about Celiac is publicized, feels like it's a small victory. I"ll e-mail a big thank you too. I've also been meaning to e-mail Elizabeth Hasselback from the view, doesn't she have it?? It would be great if the women on The View could talk about it too, I mean heck, they talk about everything else under the sun, right?.....but if she hasn't already mentioned it, it may be a lost cause. Worth a shot though. Thought a before and after piccie of my little girl might help pull at the heartstrings a bit, or is that terrible? If it helped another parent, or anyone else suffering, it would be worth it. Anyway, I am proud of GMA, and I just hope this is the start of something good.


Tamara, mom to 4 gluten & casein free kiddos!

Age 11 - Psoriasis

Age 8- dx'd Celiac March 2005

Age 6- gluten-free/cf, allergy related seizures

Age 4 - reflux, resolved with gluten-free/cf

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Thought a before and after piccie of my little girl might help pull at the heartstrings a bit, or is that terrible? If it helped another parent, or anyone else suffering, it would be worth it. Anyway, I am proud of GMA, and I just hope this is the start of something good.

HI

There was a thread earlier about some one on the forum going to the View and during a break giving her a tee shirt about celiac disease or a note about it......

I really am sorry, I can't remember the whole issue.

If you have been dx'd and your daughter also, she might be interested as 'Gracie' is that her name, might have it...It's your call on whether to do this or not. If you do, might mention Dr. Tim's report today...but again,,,it's up to you

Judy in PHilly


Judy in Southern CA

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taweavmo3 - I would totally use the sympathy card if I had one like that.

I agree wholeheartedly.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Guest nini

I didn't see the show, but my daughter's godmother called me to tell me about it, and then I hear about it here! So, I e-mailed them... I pointed out though that not all Celiacs lose weight, some are overweight...

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I didn't see the show, but my daughter's godmother called me to tell me about it, and then I hear about it here! So, I e-mailed them... I pointed out though that not all Celiacs lose weight, some are overweight...

great Nini

I wish i would have mentioned that too.

judy


Judy in Southern CA

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to all of you how are looking at this link--go to my new post--

there is now a video of the show on the page... :lol:

or click on Jenvan's link and go to GMA link.

Judy in Philly


Judy in Southern CA

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Just wanted to say that the GMA exposure did a LOT for us, more than I imagined. I have a client who remembers seeing the story but didn't write down the name so she was thrilled I could tell her about it. She needed the info for a friend's daughter who has had every test in the book - for stomach aches - to no avail. Anyway, I sent her the links to the NIH and Univ. of Chicago Celiac program sites. The word is getting out people! Together we actually can make a difference.


Dx'd with anemia - March 2005

Positive blood tests - Sept. 2005

Positive biopsy - Jan. 2006

Gluten free since 1-23-06

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