Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Got test, but was gluten free

TheTeaCups
 Share

Recommended Posts

TheTeaCups Newbie
TheTeaCups
Posted

I suspect that I have some sort of gluten allergy. I’ve been sick for a long time and I was tested for Lupus but never celiac. So I went for a second opinion and that doctor thought it might be a food allergy and suggested an elimination diet starting with gluten. After a few weeks I feel great. Energy is back, joints don’t hurt, I don’t feel sick after I eat, IBS is non-existing. Went back to my doctor and he decided to test me for celiacs, I told him I had been gluten-free for over a month and he told me it didn’t matter, that the tests would be fine. My levels came back 266 mg/dL which is normal. So he said I don’t have celiac. So I was like fine, I’m not celiac I’m going to eat this sandwich! Pretty much got sick not long after. I’m just so frustrated with doctors and this whole process. 
 

sorry for the vent 

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
15 minutes ago, TheTeaCups said:

I suspect that I have some sort of gluten allergy. I’ve been sick for a long time and I was tested for Lupus but never celiac. So I went for a second opinion and that doctor thought it might be a food allergy and suggested an elimination diet starting with gluten. After a few weeks I feel great. Energy is back, joints don’t hurt, I don’t feel sick after I eat, IBS is non-existing. Went back to my doctor and he decided to test me for celiacs, I told him I had been gluten-free for over a month and he told me it didn’t matter, that the tests would be fine. My levels came back 266 mg/dL which is normal. So he said I don’t have celiac. So I was like fine, I’m not celiac I’m going to eat this sandwich! Pretty much got sick not long after. I’m just so frustrated with doctors and this whole process. 
 

sorry for the vent 

That result is either a positive on the celiac panel or your Immunoglobulin A (IgA) is in the normal range which indicates that most celiac IgA tests (like the TTG, DGP and EMA) would be valid.

Do you have the test results in hand?  You should keep copies of all your medical records.  It is your right!  

It only takes one positive on the celiac panel to move forward and consult with a GI.  

I am sorry that your doctor is misinformed!  It does sound like you do better on a gluten free diet.  Unless you have some serious doubts and can not maintain a lifelong gluten-free diet without an official diagnosis, consider staying gluten free.  Only you can determine what is best for you!  

 

Link to comment
Share on other sites
RMJ Mentor
RMJ
Posted

That is not a celiac test result.  Celiac results are NOT reported as mg/dL.  It is most likely a total IgA result. Were there any other results?

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted
13 minutes ago, RMJ said:

That is not a celiac test result.  Celiac results are NOT reported as mg/dL.  It is most likely a total IgA result. Were there any other results?

I agree.  Clarification is needed.  

Link to comment
Share on other sites
TheTeaCups Newbie
TheTeaCups
  • Author
Posted

This was the other one. But like I said, I haven’t eaten gluten for a while before he administered the test. 

A1C7BCA9-4B65-4E88-9312-075EBCAB7DED.webp

Link to comment
Share on other sites
Fenrir Community Regular
Fenrir
Posted

Being gluten free for a month could certainly cause a false negative. After I went gluten-free my weak positive TTG IgG went negative after a month. 

Link to comment
Share on other sites
frieze Community Regular
frieze
Posted

Dr. Should be reported to the appropriate board in your state.  AFTER, you have new doc in place.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,176
    • Most Online (within 30 mins)
      7,748
    a-ball
    Newest Member
    a-ball
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • awright24
      Anyone had endoscopy with a cold/cough???

      By awright24 · Posted

      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Not Sure What to Think

      By MMH13 · Posted

      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      Sore muscles

      By Eldene · Posted

      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      Trader Joe's grocery prodcuts

      By LovintheGFlife · Posted

      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      Gluten challenge

      By Beverley Ann Johnson · Posted

      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
×
×
  • Create New...