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My Son

poppet

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poppet Rookie
poppet
Posted

Hi there just wondered if you could give me some advice please...

I had 3 neg results but still suffered so i went gluten free and within 2 weeks felt alive again, gone was the excema, migraines, spots, acne, excess weight, diarhea, rummbling tummy, colicky pains...

My son has been suffering with constipation since he was born needing daily enames, i stopped these about 3 years ago and asked him to tell me if he needed one , he is 8 now, they blames it on his cerebral palsy affecting his muscles in his bowls!!

Just over the last year he seems to be unwell all the time, same symptons as i had, no more constipation, now when he has toast or noodles he vomits them back up, he has only gained 3lb in the last year which is also a concern as he uses up more energy than everyone else has he has to work harder to make his body work...

Went to see a doc, gave him antibiotics, i went mad at my hubby as he took him i dont think biotics will do him anygood in fact they will give him more diarhea, so i didnt give him any i made another appiontment with our own doc, he agreed he could be and did a blood test today, how long will it take to come back and what should i need to hear, i hear about all different things but wanted to know about certain counts etc...

I find the gluten free diet very easy to follow and easy to get the food i need and so i would for my son, i am not hoping he has this but it would be nice to know what is wrong with him if you know what i mean, can anyone gove me some advice on the tests numbers and facts as i am lost...

Thanks in advance Poppet...

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nettiebeads Apprentice
nettiebeads
Posted

What tests did the dr order for the bloodwork. As the blood has already been drawn, why not start him on the gluten-free diet for a couple of weeks and see how he feels? There is a good probability that he has celiac disease, as you are a first relative and have it also. Not to mention the symptoms fit.

Annette

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poppet Rookie
poppet
  • Author
Posted

i couldnt read the writting but it looked like agi? and the word said celiac then some more things scribbled...

I will try him on the gluten free diet from now...

poppet

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Smunkeemom Enthusiast
Smunkeemom
Posted

There are some diseases that are related to celiac disease or celiac is related to them, I am not sure which way it goes, but my ped GI was telling me that in most of the children she sees that celiac disease is a secondary diagnosis, that they already have stuff like C.P, diabetes, and some other ones but I don't remember what they are, she said Annika was her first kid with "only celiac", so we are supposed to "keep an eye" on her blood sugar levels since diabetes type 1 runs in our family too, and since she has celiac she is at a higher risk........

long story short, get your son tested, or try him gluten free.

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poppet Rookie
poppet
  • Author
Posted

in my local sainsburys they now have a full freezer full of gluten free things..

There is, fish fingers, meat pies, chicken slices, chicken nuggets, sausages, yorkie puds, lasange, hotpots,as well as free from bread biccies, etc so it will not be hard for him as these are all the things that he loves...

Speaking of an underlying illness i also have ulcerative colitis and was wondering if this could be with him, but the doc said highly unlikely but he has tested him anyway..

Next wednesday i have to phone for results, fingers crossed its good news...

Thanks for your replies love Poppet x

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Smunkeemom Enthusiast
Smunkeemom
Posted

Poppet I will keep your son in my prayers, and you as well, I know it's stressful when your child is sick, I really hope that you find out what is wrong so that you can help him.

btw, I didn't really catch what some of that food was, it's always a little funny to me how people from different areas have different names for everyday stuff. I am just going to assume that it's all good stuff though and be happy that you have a place to get it if you need to. :)

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