Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

jkmunchkin

Yay! Doctor Just Called With My 6 Month Results

Rate this topic

Recommended Posts

I'm so excited right now. My inital numbers 6 months ago where through the roof with total viloscophy. They only did the blood tests (obviously) so I don't know what state my intestine is in yet, but my doctor just called with my blood results after being gluten-free for 6 months, and she said they are almost at a normal level. She said I am doing awesome on the gluten-free diet!!

I am on cloud 9 right now :D

Not that I wasn't completely careful and determined to live a gluten-free lifestyle before, but this is just such positive reinforcement.

Share this post


Link to post
Share on other sites

Congratulations!!!!!! How exciting!

Share this post


Link to post
Share on other sites

That is the best news I've heard in a while! Congrats to you that all your hard work paid off. You give people like me (gluten-free for only a week today) hope that this can be done and in the end it will be worth it.

Side note regarding follow up visits regarding progress. My ex GI that called with my results last week said to call in June to schedule another endo in July so see how I'm doing. Well when I spoke to the University of Chicago Celiac Program researcher last week. She told me that another biopsy was now NOT the protocol to check progress on the diet. She said only to get the Celiac panel (blood) test done in six months and if that looked normal, there is no need for a biopsy. Then recheck again once a year after that. Has anyone else heard this? Most posts I've seen relate my exp. which is the get another biopsy in six months.

Share this post


Link to post
Share on other sites
That is the best news I've heard in a while! Congrats to you that all your hard work paid off. You give people like me (gluten-free for only a week today) hope that this can be done and in the end it will be worth it.

Side note regarding follow up visits regarding progress. My ex GI that called with my results last week said to call in June to schedule another endo in July so see how I'm doing. Well when I spoke to the University of Chicago Celiac Program researcher last week. She told me that another biopsy was now NOT the protocol to check progress on the diet. She said only to get the Celiac panel (blood) test done in six months and if that looked normal, there is no need for a biopsy. Then recheck again once a year after that. Has anyone else heard this? Most posts I've seen relate my exp. which is the get another biopsy in six months.

Thanks all!!

Floridanative - that all checks out with what I know. I only had the blood tests done which is the norm. at 6 months. They will not do another endoscopy on me for another year to 2 years. U of C is giving you correct info.

Share this post


Link to post
Share on other sites

Glad to hear that -I'll be going in in about 2 months for my 6 month checkup.

Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?

I'm so excited right now. My inital numbers 6 months ago where through the roof with total viloscophy. They only did the blood tests (obviously) so I don't know what state my intestine is in yet, but my doctor just called with my blood results after being gluten-free for 6 months, and she said they are almost at a normal level. She said I am doing awesome on the gluten-free diet!!

I am on cloud 9 right now :D

Not that I wasn't completely careful and determined to live a gluten-free lifestyle before, but this is just such positive reinforcement.

Share this post


Link to post
Share on other sites
Glad to hear that -I'll be going in in about 2 months for my 6 month checkup.

Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?

I've had the occassionally accidental glutenating but I have never purposely cheated if that's what you mean.

I think I've been glutened 3 times since going gluten-free. As a newbie I guess that's not bad for 6 months time, and obviously my blood tests agree :)

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...