Celiac and Sinus/ear problems?

[LJR1989]

Hi All,

I am just wondering if any one has experienced sinus issues and ear problems before being diagnosed?  I had all these symptoms pop up at the beginning of December to do with my sinuses - headaches (had a brutal one last night that about made me vomit on the train home from work), sinus congestion, ear fullness, ETD and Tinnitus - it all started around the time where my GI symptoms started to pop up. I'm just wondering if it could be related.... I am still waiting to see the specialist...(apparently I have to wait 4.5 months which is another story) so, I've been unable to go gluten free and see if the symptoms go away. They are quite annoying, particularly the tinnitus which I am fearful is now permanent... I'm holding out for a glimmer of hope that they are related to the celiac and will go away once I am able to go gluten-free... 

[Fenrir]

Yes, some folks tend to have more sinusitis. I used to get sinus infections and ear infections pretty frequently but haven't had one since going gluten-free. I think it may be that celiac disease is an autoimmune disease so your immune system is all screwed up from the reaction to gluten. 

[LJR1989]

25 minutes ago, Fenrir said:

Yes, some folks tend to have more sinusitis. I used to get sinus infections and ear infections pretty frequently but haven't had one since going gluten-free. I think it may be that celiac disease is an autoimmune disease so your immune system is all screwed up from the reaction to gluten. 

Thanks Fenrir!

At first I thought it was just a cold but it's been like this for 3 months... and since it started at the same time as my other symptoms I figured it was related to the celiac. I suspect the gluten must be causing a bunch of inflammation or something. 

[Beverage]

Yes, to quote an ENT doc I saw before I was diagnosed with Celiac's..."it's a train wreck in there."  I ended up getting allergy shots for years.  The pin prick test showed I was allergic to everything except the negative saline control one.  I was diagnosed with Celiac's in July and my next re-test for the allergies was in January.  By January, my allergy reactions went down more than they had in all the years I had been taking the shots.  I went for the allergy shots one more year, then it was good enough to stop. 

I do still get sinus issues, but nothing like I used to, however I still cannot smell anything some days (but this we have now connected to hiatal hernia and the fumes getting up and causing sinus and asthma issues).  I've tried every herbal thing and prescription thing and nose drop thing there is.  What works best for me is to take Nettle on a daily basis, this is a natural antihistamine. 

And what works really really well to keep that swollen feeling down, and especially to prevent colds and if I get stuffy to clear things up is Colloidal Silver.  I would only trust this brand, you have to make sure it is a particular form.  This is the same formula as one you would ingest, but it has a "vertical spray" so that you can spray it up your nose.  I did it for several times a day at first, and now just 1 time a day. 

https://www.amazon.com/Sovereign-Silver-Bio-Active-Hydrosol-Support/dp/B0006OU0AU/ref=sr_1_6?keywords=colloidal+silver&qid=1582666217&sr=8-6

 

 

[LJR1989]

20 minutes ago, Beverage said:

Yes, to quote an ENT doc I saw before I was diagnosed with Celiac's..."it's a train wreck in there."  I ended up getting allergy shots for years.  The pin prick test showed I was allergic to everything except the negative saline control one.  I was diagnosed with Celiac's in July and my next re-test for the allergies was in January.  By January, my allergy reactions went down more than they had in all the years I had been taking the shots.  I went for the allergy shots one more year, then it was good enough to stop. 

I do still get sinus issues, but nothing like I used to, however I still cannot smell anything some days (but this we have now connected to hiatal hernia and the fumes getting up and causing sinus and asthma issues).  I've tried every herbal thing and prescription thing and nose drop thing there is.  What works best for me is to take Nettle on a daily basis, this is a natural antihistamine. 

And what works really really well to keep that swollen feeling down, and especially to prevent colds and if I get stuffy to clear things up is Colloidal Silver.  I would only trust this brand, you have to make sure it is a particular form.  This is the same formula as one you would ingest, but it has a "vertical spray" so that you can spray it up your nose.  I did it for several times a day at first, and now just 1 time a day. 

https://www.amazon.com/Sovereign-Silver-Bio-Active-Hydrosol-Support/dp/B0006OU0AU/ref=sr_1_6?keywords=colloidal+silver&qid=1582666217&sr=8-6

 

 

Thanks!

My doc put me on nasal steroids which definitely seem to be helping. I haven't had an allergy test though. I am going to see another ENT in a couple weeks so we will see what he says. I also had a bad bought of acid reflux right around the time this all started. It seems to have settled the last few weeks but perhaps it's some residual effects of that still. I really just can't wait to start gluten-free....still no biopsy date yet. 

[Beverage]

I could not tolerate the steroid sprays as after awhile they made my blood pressure super high. Be careful, they are steroids and you really don't want to be on those long term.

I had some acid reflux before I knew I had Celiac's and most of it went away after quitting gluten, but I still have symptoms when I lie down, so working on that with a naturopath.

The exercise here of drinking water in the morning and thumping down on your heels has helped me greatly:

https://drjockers.com/hiatal-hernia-natural-treatment/

Be careful also that doc might prescribe something to reduce stomach acid.  We need stomach acid to do its job so that the upper intestines can absorb vitamins, and it may take years to rebuild your vitamins.  You do not want to reduce your stomach acid.  Most acid reflux is NOT from too much stomach acid, but too little, which makes the food ferment and rot instead of digest.  This irritates the sphincter and up the esophagus, and the fumes can irritate the lungs and sinuses.  Stomach acid goes down as we age, and long term, causes vitamin deficiencies.

I have found that a little sip of apple cider vinegar, the type like Braggs, that has live stuff in it, helps a lot.  It adds just enough acid.  (this is also mentioned in the article above).

Work with doctors that do not just prescribe drugs that just reduce symptoms, and make sure they are working with you on the root cause.

[LJR1989]

1 hour ago, Beverage said:

I could not tolerate the steroid sprays as after awhile they made my blood pressure super high. Be careful, they are steroids and you really don't want to be on those long term.

I had some acid reflux before I knew I had Celiac's and most of it went away after quitting gluten, but I still have symptoms when I lie down, so working on that with a naturopath.

The exercise here of drinking water in the morning and thumping down on your heels has helped me greatly:

https://drjockers.com/hiatal-hernia-natural-treatment/

Be careful also that doc might prescribe something to reduce stomach acid.  We need stomach acid to do its job so that the upper intestines can absorb vitamins, and it may take years to rebuild your vitamins.  You do not want to reduce your stomach acid.  Most acid reflux is NOT from too much stomach acid, but too little, which makes the food ferment and rot instead of digest.  This irritates the sphincter and up the esophagus, and the fumes can irritate the lungs and sinuses.  Stomach acid goes down as we age, and long term, causes vitamin deficiencies.

I have found that a little sip of apple cider vinegar, the type like Braggs, that has live stuff in it, helps a lot.  It adds just enough acid.  (this is also mentioned in the article above).

Work with doctors that do not just prescribe drugs that just reduce symptoms, and make sure they are working with you on the root cause.

Thanks! 

Yeah I am having a really bad case of eustachian tube dysfunction so i am hoping the steroids can help clear up that mess a bit. Thats the most annoying thing cause its what's caused my tinnitus. I really dont like taking meds at all so the fact that I am doing the steroids at all is a measure if just how bad it is. They at least lower my tinnitus to a manageable level. 

 I am thinking I have my reflux under control as the symptoms have seemed to stop. But I certainly will not be taking any meds for it as my b12 is already low and I'm on injections for that.

Thanks for your input! 

 

 

[Posterboy]

On 2/19/2020 at 3:04 PM, LJR1989 said:

Hi All,

I am just wondering if any one has experienced sinus issues and ear problems before being diagnosed?  I had all these symptoms pop up at the beginning of December to do with my sinuses - headaches (had a brutal one last night that about made me vomit on the train home from work), sinus congestion, ear fullness, ETD and Tinnitus - it all started around the time where my GI symptoms started to pop up. I'm just wondering if it could be related.... I am still waiting to see the specialist...(apparently I have to wait 4.5 months which is another story) so, I've been unable to go gluten free and see if the symptoms go away. They are quite annoying, particularly the tinnitus which I am fearful is now permanent... I'm holding out for a glimmer of hope that they are related to the celiac and will go away once I am able to go gluten-free... 

LJR,

I used to have sinus/ear problems twice a year....like clock work...at the time I didn't know what was happening...but because I study a lot about nutrition today....I can give you some clues on your tinnitus...I was just studying this topic fo ra friend...here a some links that can help you.

https://www.ncbi.nlm.nih.gov/pubmed/22249877

https://www.webmd.com/men/news/20020729/humming-may-help-sinuses-stay-healthy

try you some magnesium glycinate .....magnesium has been shown to help tinnitus. try some humming for your sinuses.... webmd is a summary...the 2nd link is the original resesearch...

https://www.webmd.com/men/news/20020729/humming-may-help-sinuses-stay-healthy

https://www.ncbi.nlm.nih.gov/pubmed/10366574

Have your doctor check you for EBV....see above link on humming for you sinuses....EBV has been linked to Celiac disease

https://medicalxpress.com/news/2018-04-epstein-barr-virus-linked-diseases.html 

I hope this is helpful but it is not medical advise.

Posterboy,

[Jacqueline56]

How is one tested for Celiac Disease? I have had several endoscopes and the lower part too and none of the doctors have said anything about it. I have BIG issues with bloating, severe pain in my upper chest (under the chest bone), at times throwing up and all the time with the running nose and ears stopping up!! I just figures I was getting old, but after reading the "sinus/ear" notes above, now I am wondering.....Jacqueline

[LJR1989]

37 minutes ago, Jacqueline56 said:

How is one tested for Celiac Disease? I have had several endoscopes and the lower part too and none of the doctors have said anything about it. I have BIG issues with bloating, severe pain in my upper chest (under the chest bone), at times throwing up and all the time with the running nose and ears stopping up!! I just figures I was getting old, but after reading the "sinus/ear" notes above, now I am wondering.....Jacqueline

Your doctor would run a blood tests (ask for full celiac panel) and then confirm with endoscopy and biopsy celiac doesn't always show up on endoscopy and sometimes the biopsy is what confirms.  

[Jacqueline56]

15 minutes ago, LJR1989 said:

Your doctor would run a blood tests (ask for full celiac panel) and then confirm with endoscopy and biopsy celiac doesn't always show up on endoscopy and sometimes the biopsy is what confirms.  

The doctor did 8 biopsy from the top of my throat to the bottom of my stomach....he thought I had H-Hyploi..but I did not. I am beginning to think they are missing my issues. He gave me some pump inhibitors, that's it. I have an appt. with a different GI on March 9...I really need to figure out what to ask for and not let them tell me what they can do. I feel like I have wasted WAY TOO many years with this gut, sinus, ear and other issues. I put myself on gluten-free and it helps, but not totally.

[LJR1989]

1 hour ago, Jacqueline56 said:

The doctor did 8 biopsy from the top of my throat to the bottom of my stomach....he thought I had H-Hyploi..but I did not. I am beginning to think they are missing my issues. He gave me some pump inhibitors, that's it. I have an appt. with a different GI on March 9...I really need to figure out what to ask for and not let them tell me what they can do. I feel like I have wasted WAY TOO many years with this gut, sinus, ear and other issues. I put myself on gluten-free and it helps, but not totally.

The biopsy would need to come from your small intestine. That's where the damage is done from celiac. But you need to be on a gluten diet for the tests to be accurate. How long have you been on the PPIs? My hubby had severe acid reflux issues and the ppis helped after a couple months. Hes off them now because you shouldn't be on them too long. Have you seen an ent? 

[Jacqueline56]

2 hours ago, LJR1989 said:

The biopsy would need to come from your small intestine. That's where the damage is done from celiac. But you need to be on a gluten diet for the tests to be accurate. How long have you been on the PPIs? My hubby had severe acid reflux issues and the ppis helped after a couple months. Hes off them now because you shouldn't be on them too long. Have you seen an ent? 

Been on PPI for two weeks..they help a little. Been on gluten-free (not 100 percent) for about 1 month. Hoping IF he can't find anything, he is smart enough to send me to a internalist, but who knows what he will do. I feel like he really don't care since I don't have insurance.

 

[FentonA]

On 2/25/2020 at 4:36 PM, Beverage said:

Yes, to quote an ENT doc I saw before I was diagnosed with Celiac's..."it's a train wreck in there."  I ended up getting allergy shots for years.  The pin prick test showed I was allergic to everything except the negative saline control one.  I was diagnosed with Celiac's in July and my next re-test for the allergies was in January.  By January, my allergy reactions went down more than they had in all the years I had been taking the shots.  I went for the allergy shots one more year, then it was good enough to stop. 

I do still get sinus issues, but nothing like I used to, however I still cannot smell anything some days (but this we have now connected to hiatal hernia and the fumes getting up and causing sinus and asthma issues).  I've tried every herbal thing and prescription thing and nose drop thing there is.  What works best for me is to take Nettle on a daily basis, this is a natural antihistamine. 

And what works really really well to keep that swollen feeling down, and especially to prevent colds and if I get stuffy to clear things up is Colloidal Silver.  I would only trust this brand, you have to make sure it is a particular form.  This is the same formula as one you would ingest, but it has a "vertical spray" so that you can spray it up your nose.  I did it for several times a day at first, and now just 1 time a day. 

https://www.amazon.com/Sovereign-Silver-Bio-Active-Hydrosol-Support/dp/B0006OU0AU/ref=sr_1_6?keywords=colloidal+silver&qid=1582666217&sr=8-6

 

 

I can understand why you'd be desperate and 'try anything' to find relief, but the FDA warned in 1999 that colloidal silver isn’t safe or effective for treating any disease or condition.  The FDA and the Federal Trade Commission have taken action against a number of companies for making misleading claims about colloidal silver products.

[Scott Adams]

Yes, good call....people should avoid ingesting colloidal silver

https://www.nccih.nih.gov/health/colloidal-silver

Quote

Is Colloidal Silver Safe?

Colloidal silver can cause serious side effects. The most common is argyria, a bluish-gray discoloration of the skin, which is usually permanent.

Colloidal silver can also cause poor absorption of some drugs, such as certain antibiotics and thyroxine (used to treat thyroid deficiency).

The FDA also warned in 1999 that colloidal silver isn’t safe or effective for treating any disease or condition.

The FDA and the Federal Trade Commission have taken action against a number of companies for making misleading claims about colloidal silver products.

More About Argyria

Silver can build up in the body’s tissue, causing a bluish-gray discoloration of large areas of skin, especially those exposed to the sun.

People have developed argyria from using homemade and commercial colloidal silver products.

Is Colloidal Silver Effective?

Scientific evidence doesn’t support the use of colloidal silver dietary supplements for any disease or condition.

Silver has no known function or benefits in the body when taken by mouth.

Silver is not a nutritionally essential mineral or a useful dietary supplement.

 

[marcel g]

I've had tinnitus for as long as I can remember, and always assumed it was because of going to rock concerts and clubs in my misspent youth.

However, my fatigue got worse recently and I started having peripheral neuropathy symptoms, and my tinnitus also got worse at the same time.

My ears always clog up in airplanes and I have to forcibly equalize the pressure, but I always assumed this was from a childhood ear infection.

[knitty kitty]

Fatigue, peripheral neuropathy and tinnitus can all be symptoms of thiamine deficiency.

[Beverage]

On 4/29/2022 at 7:37 AM, FentonA said:

I can understand why you'd be desperate and 'try anything' to find relief, but the FDA warned in 1999 that colloidal silver isn’t safe or effective for treating any disease or condition.  The FDA and the Federal Trade Commission have taken action against a number of companies for making misleading claims about colloidal silver products.

I finally got my sense of taste and smell back (been gone since before 2015)!!! I started following a flush niacin (nicotinic acid, not niacinamide)  protocol for prevention of covid and overall health.  When l-serine and a few other co-factors were added, BAM!  In a few days, it all came back.  That was late January.  Even when I got covid, I didn't lose smell or taste, in fact, it was extra strong and not distorted like some people get.  It's still good, not great on some days now in Spring when my allergies are kicking up, but still strong as long as I keep taking the flush niacin, l-serine, and a few others.  

[marcel g]

On 5/7/2022 at 12:23 AM, knitty kitty said:

Fatigue, peripheral neuropathy and tinnitus can all be symptoms of thiamine deficiency.

Interesting. I’ve been trying high dose thiamine for the last couple of weeks. 1200mg right now. My energy levels improved a lot fairly quickly, but the tinnitus has been pretty constant. 
the tingling and pins and needles has also improved, but that’s more subtle and harder to quantify. 
I got some kind of virus last week with a sore throat and headache, and cold-like fatigue. Negative antigen and pcr tests so not covid (Phew), but even the fatigue from being sick feels different than before. its hard to describe, but now  even  when I’m tired and need a nap, I still feel like I have energy. No longer feeling completely drained and whenever I had energy It felt fleeting.