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Kim UPST NY

Body Pain And A Drained Feeling

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Does any one eles free insaine bone pains? like in shoulder blades, hips, Spine? I was diagnosed Jan, 18th and I am trying to recover I eat one meal a day because I can't eat while I'm at work I feel pain , and kinda stoned by the end of the day and I just want to feel better. is this part of healing?

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It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.

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My advice also is give it time. You should stick with. Eat healthy, balanced gluten-free meals and in time you should feel better.

GL and hang in there.

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.

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I have big time pain in my hips. Some days I can barely walk. I used to race walk and would like to get back to it but right now it is not feasible with the pain.

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I have hip pain that is especially bad in the morning. Sometimes it hurts to just roll over. The worst, though, is the neck pain that I get right at the base of my skull. That used to be horrible before I was Dx--it would be worse lying down and in the morning. Since being gluten-free, that is slowly improving.

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Kim-

What kind of pain exactly? I think you wrote insane--so if the pain is excruitating and is affecting your ability to do everyday things or work, you should see a doctor. I deal with chronic pain due to Fibromyalgia, but I am able to continue my life and manage it with pain relieving techniques at home.

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I get a lot of pain in my joints. It is so bad sometimes that I have trouble walking. And I also walk up and down stairs all day long and carry a backpack that is about 20 pounds. I am exhausted by the end of the week. I know how you guys feel and it is really stinky :( .

Does anyone take anything for it like tyleno or motrin?

Thank you

Amanda NY

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Before being diagnosed, I was in bed most of the day due to my unbelievable bone and muscle pain. I was seeing a rheumatologist, in particular for my severe spinal pain. I had been diagnosed with fibromyalgia, also.

Once I went gluten-free, it was an improvement!! It took me a few months to "heal" and not have the everday pain. Now, I am ok. If I eat any gluten (miniscule amounts, like from cross contamination), the bone pain comes back. As long as I am 100% gluten-free, I don't have any symptoms of arthritis or fibro (luckily). I now know that I was misdiagnosed with various issues on my way to being diagnosed with Celiac. However, others like JenVan, have pain beyond the Celiac. Since you have only been gluten-free for a couple of weeks, I would see how your symptoms improve with the gluten-free diet. Then, re-evaluate and potentially look for other diagnoses.

I sure hope you feel better-I know that the pain can make you miserable. Unfortunately, nothing helped my pain (tylenol/advil, etc. or various arthritis drugs). The only two things that gave me momentary relief were hot baths and strong massages.

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Yeah, those seem to be the celiac sore spots: shoulder blades, neck, hips/lower back/almost glute area.

I am six months out and still have trouble, but it has gotten better since cutting out dairy. Yoga helps me as well. I do take tylenol a lot. Just don't take Ibuprofen. I got a tempupedic pillow also.

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I too get pain..somedays like today my elbow burns

julie, the spots you mention are also fibro spots..funny how many ppl with celiac have fibro..I'm one myself, was diagnosed 4 years ago..makes you wonder if it really is..like IBS, fibromyalgia is another "disease" doctors diagnose when they can't find anything else wrong.

I'm hoping as I heal my body pain will get better

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