Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Pain And A Drained Feeling


Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice

Does any one eles free insaine bone pains? like in shoulder blades, hips, Spine? I was diagnosed Jan, 18th and I am trying to recover I eat one meal a day because I can't eat while I'm at work I feel pain , and kinda stoned by the end of the day and I just want to feel better. is this part of healing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sillyyak Enthusiast

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.

nederlandse Newbie

My advice also is give it time. You should stick with. Eat healthy, balanced gluten-free meals and in time you should feel better.

GL and hang in there.

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.
Rusla Enthusiast

I have big time pain in my hips. Some days I can barely walk. I used to race walk and would like to get back to it but right now it is not feasible with the pain.

jerseyangel Proficient

I have hip pain that is especially bad in the morning. Sometimes it hurts to just roll over. The worst, though, is the neck pain that I get right at the base of my skull. That used to be horrible before I was Dx--it would be worse lying down and in the morning. Since being gluten-free, that is slowly improving.

jenvan Collaborator

Kim-

What kind of pain exactly? I think you wrote insane--so if the pain is excruitating and is affecting your ability to do everyday things or work, you should see a doctor. I deal with chronic pain due to Fibromyalgia, but I am able to continue my life and manage it with pain relieving techniques at home.

minibabe Contributor

I get a lot of pain in my joints. It is so bad sometimes that I have trouble walking. And I also walk up and down stairs all day long and carry a backpack that is about 20 pounds. I am exhausted by the end of the week. I know how you guys feel and it is really stinky :( .

Does anyone take anything for it like tyleno or motrin?

Thank you

Amanda NY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Before being diagnosed, I was in bed most of the day due to my unbelievable bone and muscle pain. I was seeing a rheumatologist, in particular for my severe spinal pain. I had been diagnosed with fibromyalgia, also.

Once I went gluten-free, it was an improvement!! It took me a few months to "heal" and not have the everday pain. Now, I am ok. If I eat any gluten (miniscule amounts, like from cross contamination), the bone pain comes back. As long as I am 100% gluten-free, I don't have any symptoms of arthritis or fibro (luckily). I now know that I was misdiagnosed with various issues on my way to being diagnosed with Celiac. However, others like JenVan, have pain beyond the Celiac. Since you have only been gluten-free for a couple of weeks, I would see how your symptoms improve with the gluten-free diet. Then, re-evaluate and potentially look for other diagnoses.

I sure hope you feel better-I know that the pain can make you miserable. Unfortunately, nothing helped my pain (tylenol/advil, etc. or various arthritis drugs). The only two things that gave me momentary relief were hot baths and strong massages.

julie5914 Contributor

Yeah, those seem to be the celiac sore spots: shoulder blades, neck, hips/lower back/almost glute area.

I am six months out and still have trouble, but it has gotten better since cutting out dairy. Yoga helps me as well. I do take tylenol a lot. Just don't take Ibuprofen. I got a tempupedic pillow also.

ebrbetty Rising Star

I too get pain..somedays like today my elbow burns

julie, the spots you mention are also fibro spots..funny how many ppl with celiac have fibro..I'm one myself, was diagnosed 4 years ago..makes you wonder if it really is..like IBS, fibromyalgia is another "disease" doctors diagnose when they can't find anything else wrong.

I'm hoping as I heal my body pain will get better

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,821
    • Most Online (within 30 mins)
      7,748

    Chadrick Hinson
    Newest Member
    Chadrick Hinson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @ARSTONE! The ingredients are listed as follows: Chicken, Water, Rice Flour, Tapioca Starch, Tamari Soy Sauce (Water, Soybeans, Salt, Sugar, Corn Starch), Contains 2% or less of: Canola and/or Sunflower Oil, Ginger, Scallions, Brown Sugar, Potato Starch, Rice Wine (Rice, Water, Salt), Chicken Soup Base (Chicken Meat with Natural Juices, Salt, Sugar, Yeast Extract, Chicken Fat, Onion, Potato Flour, Turmeric, Spice Extractives), Konjac Flour, Xanthan Gum, Chicken Powder, Salt, Black Pepper, Sesame Oil, Gelatin I have underlined the ingredients which could contain hidden sources of gluten. Xanthan Gum wouldn't contain gluten but it is a polysaccharide that is a common ingredient in prepackaged gluten free foods and poses digestive difficulties for many people. The same might be said for Konjac flour.  It is also possible that the product exceeds the specs for the FDA criteria of "gluten free" whose upper limit is 20 ppm of gluten. We are seeing this more often lately and many are calling for stricter sampling standards in the gluten free food industry such that testing is done more often.
    • Soleihey
    • ARSTONE
      I recently ate a package of feel good brand gluten-free chicken soup dumplings. Immediately after eating them, my stomach became extremely extremely bloated and gassy and it's two days later now and I'm still extremely uncomfortable. They say there's gluten-free and there doesn't appear to be anything in the ingredients that I think would be the problem. Has anyone else eaten these and had this experience?
    • Manaan2
    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
×
×
  • Create New...