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EMSPrincess

Canadians?

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yay! i'm looking forward to this.


Gluten-free, Vegan

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Another Canadian...Calgary, Alberta.


Linda, Mom to Ty (11 years old)

Ty was diagnosed by blood test June 7/05

biopsy Aug 11/05, diagnosis confirmed Aug 18/05

Mom, Dad and big brother Celiac-free.

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Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)


Kareena

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Hi! Me too me too!

I am in Montreal! Anyone else from Montreal? Am desperately seeking an informed GI! I went to my GP with a list of about 12 symptoms and she treated each one separately...need a good doctor who can truly help me figure this out.

So happy to meet all you other canadians! Was looking for a canadian support site but you had to pay to be a member, and it didn't have half the info this one does. Well just have to be a well-informed minority! ;)


* Diagnosed with Pernicious Anemia in 1992, "celebrating" 14 years of monthly B12 injections

* Self-diagnosed with celiac disease in 2006

* Waiting list for apointment with a GI specialist for official testing

Carpe Diem

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Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!


Gluten-free, Vegan

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Hey thanks any help will do but you know what i'm wishing to for is a rice and cheese (vegan) based pizza crust haven't had pizza in sooooooo long my mom use to have a copy but over time and many folds i can't read a darn thing on it.

Thanks kareena

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!


Kareena

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you can make cheese from nutritional yeast, or buy galaxy foods vegan cheese.

re: the crust, mine doesn't have rice, as i am allergic. i use other flours, so maybe someone else can help you better in that department.


Gluten-free, Vegan

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It's so good to find this site and to see so many Canadians. I've been reading all day and your product posts are so helpful - thank you!

I'm a native Edmontonian, spent 16 fabulous years in Vancouver, but now I'm back in Edmonton.

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now I'm back in Edmonton.

can you believe the snow last night?!?!? BAH!


Negative Bloodwork November 2002

Gluten-Free November 2002-December 2005 (the healthiest I've ever been)

Gluten Diet December 2005-February 2006

Negative Biopsy February 9th, 2006

Negative Bloodwork February 9th, 2006

Back Gluten-Free February 9th, 2006

~~ Never eating gluten again!

*Diagnosed as being Gluten Intolerant

Dad being tested for Celiac in October

Allergies:

-dairy, eggs, nuts, peanuts, legumes, seafood, and shellfish

-animals, grass, pollen, smoke, etc, and sodium laurel sulfate

Other:

Near Fatal C-Diff infection, August 2005.

Diagnosed with Crohn's Disease April 2006.

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Deej,

Hi there, just noticed you were diagnosed as pernicious anemia in 96- i was dx in 92. Do you have the deficiency or the absorption problem (ie on monthly injections)?

SO many of my symptoms which I always just attributed to the pernicious anemia am now wondering if it was celiac disease, and am also wondering if the pernicious anemia came from the celiac disease or vice versa.

Am new to this board and am trying to figure this all out, without any insight or help in any way from any of the doctors I have ever had. Neither my hematologist, nor my GP nor my family doctor have ever had any time to give me information or help me manage this better.

Would love to hear if you have any to share! (am a canadian too, a montrealer!)


* Diagnosed with Pernicious Anemia in 1992, "celebrating" 14 years of monthly B12 injections

* Self-diagnosed with celiac disease in 2006

* Waiting list for apointment with a GI specialist for official testing

Carpe Diem

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Hi yourself!

As I understand it, it's an absorption problem. But I'm not sure. I was already on the gluten-free diet (about three months if I remember correctly) when I started having symptoms similar to a heart attack. Blood test in emergency determined I was dangerously low on B12. I ended up with a very elevated homocysteine (it was very scary - the cardiologist was nervous). I was on weekly B12 shots for about a year and then moved to once a month (plus taking oral folic acid and B6).

I'm new to this board, too (just joined today) but I found a thread about it on the related diseases board.

It's a confusing disease, isn't it?

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can you believe the snow last night?!?!? BAH!

Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

Sweet. I like snow I just had to shovel.


Negative Bloodwork November 2002

Gluten-Free November 2002-December 2005 (the healthiest I've ever been)

Gluten Diet December 2005-February 2006

Negative Biopsy February 9th, 2006

Negative Bloodwork February 9th, 2006

Back Gluten-Free February 9th, 2006

~~ Never eating gluten again!

*Diagnosed as being Gluten Intolerant

Dad being tested for Celiac in October

Allergies:

-dairy, eggs, nuts, peanuts, legumes, seafood, and shellfish

-animals, grass, pollen, smoke, etc, and sodium laurel sulfate

Other:

Near Fatal C-Diff infection, August 2005.

Diagnosed with Crohn's Disease April 2006.

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Well.....I only think I am mildly celiac but that wheat intolerance is the root cause of other problem...so not sure that I qualify here.

I was born and raised in Winnipeg...lived in Toronto for 8 years and for the past 18 years I now live in Calgary....I like it here very much.

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Sweet. I like snow I just had to shovel.

Yeah, I am in a condo so I don't have to deal with the tiring part of the great snowfall that we got. That's probably part of why I don't mind it too much.


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.


Kareena

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Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

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Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

Well i know i don't feel it as bad as some but i also know what the worst case can be so i try to stay away from gluten all i can i really enjoy the tiai food so that is a help for me. i'll talk to my housemate and ask her to get hold heather and see if she goes on line.


Kareena

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Welcome! I'm in Clarington region.......

This is a great board with lots of great people here.....

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help


Kareena

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ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537


Gluten-free, Vegan

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Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

thanks for the info


Kareena

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