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Cant Think Straight, Exhausted, Weak, Tired


lemonade

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lemonade Enthusiast

hellooo

i started my gluten-free diet 2 days ago, i didnt expect to feel better just though, and i dont, im just throwinf that in. However, i was wondering if anyone here feels the same as i do. IAM exhausted when i wake up in th mronings, even after 8-9 hrs of sleep, i cant think straight, i cant focus on work, i feel tired and weak, i am an emotionally wreck, IAM SOOO irritable and moody i can barely stand to be around myself. ANYONE?????

ps. oh ya, and i am sweaty too, i dont know why

Lemonade


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IronedOut Apprentice

i was there in december. and have been back several times since then. i went shopping at the local health food store and spent way too much on goodies (gluten-free of course) that i could have! didn't help my budget or my waistline, but i at least felt 'normal' again. it took a couple of weeks for me to get out of the funk enough to start planning a proper diet.

the symptoms will start to lift, promise. you do have to be extra careful to really avoid gluten in the beginning. eating as few processed foods as possible right now may help you get feeling better faster. then you can add things back in as you do the research.

i have been having hot flashes with extremely cold hands and feet since finding the good life. not sure what that means but i'm sure our bodies do all sorts of weird stuff as it adjusts.

hang in there, but definitely let yourself feel all the emotions you have. just give the folks around you a hug afterward.

jerseyangel Proficient

Lemonade--I felt the exact same way in the beginning. Your body is beginning to heal, and the fatigue, moodiness and brain fog are all part of the process. You just need to keep at it--it really will get better--I have said that I didn't begin to improve for 4 months. It varies from person to person. Try and rest as much as possible. Get enough water, and maybe take a multi vitamin if you don't already. :)

lemonade Enthusiast

Thankyou both for the replies...

lemonade

julie5914 Contributor

Yeah, it gets better slowly. I still have to sleep 9-10 hours a night and any kind of exercise does me in. Sometimes I still feel like my body's heavy and full and glue, including my brain, but those days are getting farther and farther apart.

Clark Bent as Stupor-Man Contributor

I've only been strictly gluten-free for about a month, but it seems as if the brain fog aspects (formulating thoughts, processing information, focusing, etc.) seem to be decreasing significantly already. I'm also avoiding dairy, soy, and minimizing a number of other potential food allergens.

As for the exhaustion and weakness feelings, I still have them although it's different day to day and week to week. Last week I got out of bed within 5 minutes of waking up a couple times. This week, my body seems to be dead when I wake up, and it's been taking me an hour or more to get out of bed the last couple days. I think something happened a few days ago that triggered my symptoms the last couple days though.

I would also advise you consult a nutritionist and supplement your diet with vitamins to make sure your body gets what it needs. And I know each person's body reacts differently, but I seem to do just as bad if not worse when I get too much sleep (even an hour or 2) as opposed to too little sleep. I probably do best with a strict 7-8 hrs uninterrupted sleep, which I rarely get seeing as how I can't quite get myself to bed early enough regularly. But I would try and stay positive, and things should start getting better in some areas.

StrongerToday Enthusiast

It does get better; remember it took a long time for your body to get ths sick - it will take a while for it to heal. But before you know it, you'll start having better hours, then days... Keep a detailed journal of how you're feeling so you can reflect back and compare how bad you were feeling on day 2, versus day 12.

I was probably 3 or 4 weeks into this when I realized I was singing on my way to work and thinking "oh - so this is how it feels to want to go to work...". And not every day is a good day for me, but over all it is SO much better.


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jenvan Collaborator

I felt like you and I still go through periods of time like that. You are going to need to really allow yourself some time to heal. Make sure you eat well and do get the rest you need in the meantime. And make sure you 100% gluten-free, including products, lotions, makeup etc.

covsooze Enthusiast

I'm right there with you lemonade! Been gluten-free for about 3 weeks and had started feeling better, but am feeling really rubbish and down this week..Here's to better health :D

lemonade Enthusiast
I'm right there with you lemonade! Been gluten-free for about 3 weeks and had started feeling better, but am feeling really rubbish and down this week..Here's to better health :D

Thankyou all for the support, this forum is so helpfula nd supportive.

Lemonade

Nancym Enthusiast

Could be withdrawls. Some doctors say that partly digested gluten protein resembles an opiate. (Milk proteins too)

covsooze Enthusiast
Could be withdrawls. Some doctors say that partly digested gluten protein resembles an opiate. (Milk proteins too)

Hmm..what I'm feeling like at the moment is withdrawal symptoms again. I think I might have to be completely strict with the dairy. How can I tell if I've got a problem with casein as opposed to 'just' lactose?

Nancym Enthusiast

Try some lactaid with your dairy, or lactose free dairy. If you react, then it must be casein. Or you can get testing from Enterolab.com.

plantime Contributor

It's like going through detox. Your body is having to flush out all of the gluten, then your immune system has to have time to shut down all of the overreactions. You will have withdrawal symptoms, when the cravings for gluten feel like they will destroy you. You have to stand your ground, refuse to surrender! It will take a while, maybe a few months, even, but you will feel better! :)

Lollie Enthusiast

I know that I feel alot better, but i had know damage or lesions! I 've been gluten-free for a month also. I have a hard time getting up, but I figure it's because i have little kids! :P I have had glutten just a couple of times and laways by mistake-bad waitress. :angry: I felt so sick during, that when the pain left I felt really good- i think my mind focuses so hard on the pain, it's easier after. But I know that everyday I feel better physically. I've found that I have way more trouble with the psycological stuff. I'm mad that I have to think about my food all the time. I hate being different. I guess, that stuff makes me pretty tired! Just hang in there, I figure it's all worth it if there is a wellness in the future!

Lollie

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
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    • trents
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    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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