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Some of my family members, I have just found out, have some bowel incontinence issues. Is there anybody out there that has some accidents, and if so, what products do you use?

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Some of my family members, I have just found out, have some bowel incontinence issues. Is there anybody out there that has some accidents, and if so, what products do you use?

I am going to suggest that they talk to their doctor about a referral to a Physical Therapist that specializes in this problem. I had to deal with this issue and was surprised at how successful the therapy was. Between that and being gluten-free I have been able to regain control for the most part.

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On another forum many people have discussed their bowel incontinence. They use adult diapers and a medication called "nullo" which removes the smell of feces. Depending on the severity, maybe Immodium.

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ravenwoodglass: It is so nice to hear someone talk nicely about physical therapy treatment! I'm a physical therapist -- I had my own clinic, but because this stupid disease affects my brain et. al, I had to close it. I specialized in Women's health -- urinary and fecal incontinence, pregnancy, post-partum. The treatment really is fairly effective, isn't it? I have a cousin whose doctor, during the delivery of her first child, made a mistake (not admittedly) during the episiotomy and cut her completely through her rectum. He then realized what he had done, and scrunched the entire area together as best he could. She ended up having to have surgery -- they took a long strip of muscle from her leg, and fashioned a new muscle -- a rectum, I guess, really. She wouldn't go for the physical therapy because she was too embarrassed, so the muscle never really learned what it was supposed to do -- she still has trouble.

It was really nice to see someone promote physical therapy for fecal incontinence. Thanks -- We need all the promotion we can get!!!! :P Lynne

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ravenwoodglass: It is so nice to hear someone talk nicely about physical therapy treatment! I'm a physical therapist -- I had my own clinic, but because this stupid disease affects my brain et. al, I had to close it. I specialized in Women's health -- urinary and fecal incontinence, pregnancy, post-partum. The treatment really is fairly effective, isn't it? I have a cousin whose doctor, during the delivery of her first child, made a mistake (not admittedly) during the episiotomy and cut her completely through her rectum. He then realized what he had done, and scrunched the entire area together as best he could. She ended up having to have surgery -- they took a long strip of muscle from her leg, and fashioned a new muscle -- a rectum, I guess, really. She wouldn't go for the physical therapy because she was too embarrassed, so the muscle never really learned what it was supposed to do -- she still has trouble.

It was really nice to see someone promote physical therapy for fecal incontinence. Thanks -- We need all the promotion we can get!!!! :P Lynne

I wish also more people could get past the embarrassment, my PT was very professional and did her best to make me comfortable. It wasn't as bad as I feared it would be. It's kind of like the gluten-free diet, intimidating at first but not so bad once you really experience it. She was the one who really pushed me not to give up and got me finally diagnosed too, she gets at least one card a year from me in thanks.

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im 27, ever since I could remember I've had "accidents".  both bowl and urine,  still do. its HIGHLY embarrassing and has kept me from doing alot. even moving in with my son's father.  I went to my family dr a few weeks ago and she mentioned my blood work came back that I might have a gluten intolerance and that I need to see a gi.... Idk though to me it doesn't make sense... is she right or do I have some other medical problem.  

Edited by kate101

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25 minutes ago, kate101 said:

im 27, ever since I could remember I've had "accidents".  both bowl and urine,  still do. its HIGHLY embarrassing and has kept me from doing alot. even moving in with my son's father.  I went to my family dr a few weeks ago and she mentioned my blood work came back that I might have a gluten intolerance and that I need to see a gi.... Idk though to me it doesn't make sense... is she right or do I have some other medical problem.  

 

25 minutes ago, kate101 said:

im 27, ever since I could remember I've had "accidents".  both bowl and urine,  still do. its HIGHLY embarrassing and has kept me from doing alot. even moving in with my son's father.  I went to my family dr a few weeks ago and she mentioned my blood work came back that I might have a gluten intolerance and that I need to see a gi.... Idk though to me it doesn't make sense... is she right or do I have some other medical problem.  

Take your doctors advice. If she did blood work that suggested you have a gluten issue you likely had positive celiac blood tests. Celiac can effect the nervous system, as well as many others, not just the GI tract. Your issues may resolve on a strictly followed gluten-free diet but you need to keep eating gluten until after you have seen the GI doctor and been tested. Welcome to the board and do read the Newbie 101 thread at the top of the Coping section. With positive blood work you will need the diet no matter what the results of the endoscopy.

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