Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

jennifervan

Hair Loss And Misscarraiges/baby Died With Anencephaly

Rate this topic

Recommended Posts

I was just wondering if anyone has heard of hairloss as a symptom.

I have the mark on my Dna for celiac. I have been gluten free since Dec 26 2005. My hair still falls out once in a while (not as bad as before). How long do you think it will be till I will be better?

In addition I was wondering if anyone has hear of a connection with miscarraiges and or higher levels either spinal bifida or anencephaly with children of Celiacs. I had two healthy pregnancies, then two miscarraiges at 6- 7 weeks pregnant. Finally, we had a son who lived five days and died due to Anencephaly. This was all before I was diagnosed with Celiac . I know that lack of folic acid invitro can cause spinal bifida and anencephaly (which is the opposite of spinal bifida) so I was wondering if there have been any studies that show a connection with Celiac?

Thanks,

Jennifer

Share this post


Link to post
Share on other sites
Guest nini

sorry for your losses, unfortunately YES, there is a connection between undiagnosed Celiac and miscarriages and birth defects. I had 2 miscarriages prior to my dx.

I also had hair loss... my husband used to freak out about it and thought it was from all the years of coloring my hair, but alas, it was from being undiagnosed. I have been gluten-free for almost 3 years now and my hair is finally starting to stop falling out in clumps. It takes time, but it does get better. I can't remember where I found the studies of the links between celiac and miscarriages and such, but it's out there... google around and I'm sure you will find it.

Share this post


Link to post
Share on other sites
Guest BERNESES

Jennifer- I'm so sorry about your losses. That must have been very difficult. I asked my doctor about Celiac's and miscarriages and she said that once you go gluten-free you have the same rates as everyone else. If you are undiagnosed, you have a much higher rate of miscarriage. :(

Share this post


Link to post
Share on other sites

I was only able to carry one child to term. The two pregancy's after her, resulted in miscarriages. The first at about 7 weeks and the second one at 6 months. The last one was the hardest to bear emotionally. This was almost 40 years ago and I had never even heard of Celiac. And yes there is a big possibility of this being a result of celiac disease. In Italy they test every women for celiac disease, who has one difficult pregancy or miscarriage. I am so sorry about your losses. They are so rough to bear, but things do get better. Just give yourself plenty of time.

Share this post


Link to post
Share on other sites

As everybody else says, yes to all your questions. I had eight miscarriages before I finally gave up wanting a brother or sister close in age to our youngest, who is six years younger than the rest, due to miscarriages (she should have been a twin, too, and I lost the twin). Nobody could find the cause. Now I know why I had those.

My mother (who undoubtedly had Celiac disease) had five miscarriages before the first live birth, who was early and lived a week, and lost one at six months in between her eight kids. My sister (another undiagnosed Celiac if I ever saw one) had three miscarriages, one at three months, twins at six months, and the last one died inside of her at eight months, after which she got her tubes tied, and later had a hysterectomy.

I am very sorry about all your losses, I know how hard it is, and you never really forget. But maybe, after being gluten free for a couple of years, you will be able to have a normal pregnancy.

Share this post


Link to post
Share on other sites

Hi Jennifer, sorry you've had such a tough time with this. I was diagnosed at 40, after having three kids, no miscarriages, thankfully. I did have hair loss, which continued after a year of being gluten-free, then I realized my thyroid levels were changing as my body healed. I have hypothyroidism, and adjusting that level helped my hairloss alot. Good Luck.

Share this post


Link to post
Share on other sites

What a sobering thread... guess us men don't think about these things like we should. One can only imagine the number of people who have poorer health because a (or both) parent is Celiac...

Sorry to hear of you women having this happen to you... it really is more important to spread the word [about Celiac] than we might sometimes think!

GC

Share this post


Link to post
Share on other sites

Thanks for all of your kind words. We are in the process of adopting a little girl. We did have two sons biologically that were healthy but early. I just wish I would have known about the connection with celiac and miscarraiges and birth defects before. I am blessed to have found out now.

I have never felt better in my life since being gluten free these past 2 months :) .

Thanks for your support,

Jennifer

Share this post


Link to post
Share on other sites
I was just wondering if anyone has heard of hairloss as a symptom.

I have the mark on my Dna for celiac. I have been gluten free since Dec 26 2005. My hair still falls out once in a while (not as bad as before). How long do you think it will be till I will be better?

In addition I was wondering if anyone has hear of a connection with miscarraiges and or higher levels either spinal bifida or anencephaly with children of Celiacs. I had two healthy pregnancies, then two miscarraiges at 6- 7 weeks pregnant. Finally, we had a son who lived five days and died due to Anencephaly. This was all before I was diagnosed with Celiac . I know that lack of folic acid invitro can cause spinal bifida and anencephaly (which is the opposite of spinal bifida) so I was wondering if there have been any studies that show a connection with Celiac?

Thanks,

Jennifer

Hi Jennifer,

I'm very sorry to hear about the miscarriages.

Hairloss is also a symptom of low thyroid. I'd check with your primary care physician and have them do a blood workup. Women with thyroid problems also tend to have more miscarriages. And, Celiac and thyroid problems seem to go hand in hand.

S

Share this post


Link to post
Share on other sites
Guest nini
Hi Jennifer,

I'm very sorry to hear about the miscarriages.

Hairloss is also a symptom of low thyroid. I'd check with your primary care physician and have them do a blood workup. Women with thyroid problems also tend to have more miscarriages. And, Celiac and thyroid problems seem to go hand in hand.

S

I had low thyroid before going gluten-free, but ONLY 6 MONTHS after starting the diet, my thyroid levels were completely normal.

Share this post


Link to post
Share on other sites

Jennifer,

I am sorry to hear about your losses. I can only imagine how hard it must be.

I had undiagnosed celiac with my 3 kids. My oldest son had a birth defect called "sagittal Craniosynostosis" and required several surgeries on his skull bones to fix his mishapen head. He is fine now and looks beautiful, but the surgeries were depressing and hard to deal with. Then my second child was born without problems and then my third son has something called Neurofibromatosis1, which is a genetic disease and then on top of that he has Celiac and that is how I found out I had it. He too looks normal, other then being very small, but he is smart and doing well so far. It is more of a problem usually once he hits his teen years and it may affect him more, but 60% if cases if NF1 are mild. So we are hoping it only affects him this way. It is a hard disease to explain, but I feel it was caused by my undiagnosed celiac.

Anyway, take care and this site has alot of information.

Monica

Share this post


Link to post
Share on other sites
Guest BERNESES

Monica- I'm so sorry about the difficulties you've experienced. I hope things get better for you and your family.

Jennifer- that's so great that you are in the process of adopting! I was adopted and it was the best thing that ever happened to me. :)

Share this post


Link to post
Share on other sites

Jennifer,

Congratulations on adopting. I am considering adopting a little girl someday. I haven't looked into it much, but I have three boys. I would love to have a little girl, but all that we have been through with kids with health issues and then my health not being 100% makes me nervous to be pregnant again. I am waiting to see how I feel in a year.

Good luck and glad you are feeling better.

Monica

Share this post


Link to post
Share on other sites

I am so sorry about everyone's loss - those of you that have lost a baby. That must be hard (I haven't tried yet, so I wouldn't know, but can imagine).

About hair loss - yes!! As everyone has said, this is a very common symptom, even young children with celiac disease might have hair loss, not just women. I have been gluten-free for over a year, with plenty of accidental glutenings, so I haven't had much time to heal, but when I have been gluten-free for an extended period, my hair loss gets better. I am also on Target brand rogaine, with the hope that it would help. It doesn't and now I am afraid to stop b/c I don't want my hair to get worse. Grrrrr. Anyone else with this problem? My dermatologist said that I could try stopping it, but said I could go either way.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...