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jackie4

Teenager Just Diagnosed

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Hi! I am feeling a little overwhelmed. My daughter's doctor said that her biopsy came back positive for celiac. She then said that she wanted to talk to the pathologist and run one more sllide test. Has anyone ever heard of this before. I usually ask a lot of questions but I wasn't prepared for that diagnosis. I know very little about celiac disease although I have already spent hours on-line. My daughter, who is 14, is having a hard time. She lives on peanut butter and white bread and bagels. Any recommendations for a good gluten-free bread. Thanks . Jackie

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Guest nini

my five year old loves Kinnickinick Tapioca Italian Rice Bread... and just about all the other Kinnickinick products... very very good and you can order them offf their website if you can't find them locally.

It's all about attitude. Focus on what your daughter CAN have, not what she can't. I've got a lot of great info if you'd like me to e-mail it to you...

nisla@comcast.net e-mail me if you want the info and that way I can attach the files for you.

http://www.kinnikinnick.com/

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I like the tapioca bread nini mentioned. Also, if you have a Whole Foods in your area they have a really good sandwhich bread from the WholeFoods GlutenFree BakeHouse. There are also some great recipes for making your own bread.

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I made the Bob's Red Mill Homemade Wonderful Bread Mix and it was really good, plus I can get it at Kroger. My son is really pickyy, but we have found lots of things that are ok for him to eat. We're also noticing that he's trying more foods now that he's been gluten free for a while.

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I agree with the Kinninick tapiocca rice bread suggestion, but what ever bread you try, TOAST it. Glutino makes very good bagels, and Foods by George has a good english muffin (It is about three times the size of the english muffins I was used to). The recipe in Bette Hagman's Gluten Free Gourmet for French bread is awesome right out of the oven, but it has a shelf life of about 15 minutes in my opinion.

Laura

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hey nini---can i get those files and info from you too? it has gotten alot easier already, but i sure could use some more ideas! jackie, my twins that are just recently diagnosed are 14 years old also------maybe your daughter would like to chat on line with them or e-mail them?

christine

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Hey

I also use the Bobs Red Mill Mix I have never baked it in the oven but we purchased a Kusinart bread maker at Williams Sonomma ( about $100 dollars) but it is well worth it all you do is add the mix and wet ingridents and you have the best bread I really felt as if I was eating real white bread, I also LOVE peanut butter if you daughter does also I buy Vans frozen waffles at either Kroger or Wild Oats, the Apple Cinniman are my favorite, they also have Orginal, Blue Berry and Flax that are alll gluten and dairy free. I toast them in the toaster and top with peanut butter and or apple butter! good luck! and I know how your daughter feels I was diganosed at her age too but hang in there it will get easier.

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My name's Jackie and I'm 14. :) Basically, if you toast your bread it'll taste a lot better. Also, peanut butter of whatever takes away the taste of the bread anyway so it doesn't matter to me.

If your daughter wants to talk sometime, I'm here.

-Jackie :)

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Guest nini

the files I have are in a zip file and I can easily e-mail them to anyone IF you e-mail me first! That way I can attach the file... I don't know how to do it through a pm or e-mail through this site... (don't think it can be done.) So just send me an e-mail request at nisla@comcast.net for my newbiesurvivalkit zip file... I'll be more than happy to send it.

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Guest Robbin

Hi again everyone, I hope I am not being a pain since I have been reading almost every post and category and commenting on alot, but I am so glad to see others with teenagers on here with ideas. My youngest (almost 13) is allergic to soy, all nuts, most raw vegetables (cooking changes the chemistry my dr. said which is why raw makes him break out in hives, but cooked doesn't) lactose intolerant, and the only fruits he can eat are cherries, pineapple, pears and apples. He is also allergic to goat's milk. I nursed him for 2 1/2 years too, so the breast-feeding protection didn't work so well on this kid. He is showing such classic celiac symptoms and I am convinced he is and his brother and I are as well. He is so thin and gaunt looking it breaks my heart, but he has been eating a little better lately since I have cut the gluten out at home. I mentioned before on another thread that he refuses to pack his lunch and eats only a few items on the menu at school. He says he isn't hungry anyway. Teens can be SO frustrating. He loves Italian ice and I noticed a pattern that when he goes for a long time without eating much, if I give him one of the little cups (Luigis) without making a big deal of it, a little while later he will eat a little better at dinner, so maybe something to "tweak" your childs' appetite sometimes is needed. Maybe low blood sugars or something. I don't know, but thank God for vitamins (gluten-free), gatorade, chips and ices, because sometimes that is all this kid eats. I think it is the fear of diarrhea and stomach aches, I can't blame him there. I will try the breads mentioned. Thanks for the great info! Robbin

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