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Guest Hope's Ganma

New To Celiac Disease

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Guest Hope's Ganma

I just found out today that a biopsy that was taken from my intestine on Wednesday tested positive for Celiac Disease, but tested negative for bacteria. I do not know much about the disease except for what I have found on the web. They have scheduled me to see a dietician soon and I am to keep a food log. Can anyone give me advice on how to keep a food log, and explain exactly what I am in for. On top of this I also suffer from a number of health related issues, the biggest one being that I have hypothyroidism and have had to have both sides of my thyroid removed. I was completely healthy until the end of 2000 when I discovered my first thyroid tumor, since then it seems like I am falling apart. Any help and/or advice would be greatly appreciated.

Sherry

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Welcome to the board. I know there are people here with the same situation as yours and I'm sure they'll chime in soon.

The food log is not hard. This is the first one from a google search that I just did that gives you a form to complete. There are tons more and a lot of electronic ones as well.

http://familydoctor.org/299.xml

Going gluten free is not impossible, just takes determination and diligence. Someone said they wish they could get a PhD in label reading. :D

There are a number of links that explain what to avoid like the one on the home page of this site.

The Delphi forum also has lists put together by other Celiacs of mainstream store products that have been checked on. But your best bet is always to read the label. The less processed a food is the better off you are in being certain.

http://forums.delphiforums.com/n/main.asp?...tyurl=%2Fceliac

I'm pretty new at this as well and have made some goofs, but you will get the hang of it. Good luck and keep asking questions here. Everyone is nice and always willing to share.

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Basically, they want you to write down what you ate, and how much of it you ate. Hopefully, the dietician will be able to help you. You will get the hang of the gluten-free diet, it will just take time. Ask any questions, we will be glad to help!

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sherry, i had several meltdowns when 3 of my girls were diagnosed with celiac. we have only been gluten free since jan 1, but it has gotten so much easier already. it seems like there are alot of people on here that have only recently been diagnosed---maybe it's because us newbies just ask alot of questions. you're in good hands here.

christine

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I too am new! But I wanted to say welcome! :D I know that I was overwhelmed when I started the diet about a month and a half ago, but it has definantly gotten easier! You will get the hang of it, and you'll be healthier for it! Good Luck!

Lollie

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Guest nini

welcome to the board Sherry, you will get the hang of it. Just keep coming back here to this site for lots of information! There are a ton of resources and helpful people here to help you with any questions that come up.

I have a newbie survival kit that I can e-mail to anyone who wants it, but keep in mind it's a large zip file and if you are not on cable modem or other high speed internet, it may take a while to download.

if you are interested just e-mail me at nisla@comcast.net and put "request newbie Celiac Survival Kit"

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Welcome to the board Sherry. You will never find a place with more information and support than here. You will be amazed at what you will learn in such short of time. On here there are no dumb questions and we have all been down the same street just with a different pair of shoes.

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Guest Hope's Ganma

Thank you all so much for making me feel welcome. I will probably be asking more questions as time goes by but I am still kind of in shock.

Sherry

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