Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Flax Oil

elkris

By elkris
in Dermatitis Herpetiformis

Recommended Posts

elkris Newbie
elkris
Posted

Hi All,

Just a quick note to say that I've had dh since I was in high school. (I'm almost 59 now) I take many supplements as I am sure we all do. I started taking flax seed oil many years ago and discovered it quickly dries up the dh rash and cuts the itching almost immediately. Please try it. I have never taken dapsone as I can control the rash with flax. I've tried many brands and they all seem to work. I only get breakout these if I accidently eat gluten as in salad dressing, etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Robbin
Guest Robbin
Posted

How much do you take and what is the brand? I have had a severe rash problem off and on for years. It has recently disappeard, but if it returns, I would like to try it instead of chemicals/drugs. It hasn't been diagnosed as dh, but is definitly gluten related since it went away after going gluten-free. Do you know anything about why it works, perhaps contains an amino acid or nutrient we are missing with the celiac problem? OOps, I see you said 'many brands - all work'

mixmax74 Newbie
mixmax74
Posted

Thanks for the tip. Is this something you ingest or apply externally? How much/how often?

Best regards

elkris Newbie
elkris
Posted
  • Author
Thanks for the tip. Is this something you ingest or apply externally? How much/how often?

Best regards

Hi,

I have only taken as a pill. I tried the liquid once and found it too yukky a taste. I never thought about putting it on topically but maybe that would work too. I have no idea as to why it works. Guess I'm a gatherer of cures but mainly don't understand the science behind it. I've been meaning to pass this along for years but never got around to looking at the posts.

Ellie

CeliaCruz Rookie
CeliaCruz
Posted

Be careful. I tried flax oil and flax seeds for my eczema a few years ago and it only made it worse. Apparently a LOT of people are allergic to flax. If it works, great. But if you are only getting worse, you might have an allergy to it and you should stop taking it immediately. Also, keep in mind that it has a long half-life in the body so if you are having a reaction and you stop taking it, you might still be seeing symptoms for a few days afterwards.

Guest Robbin
Guest Robbin
Posted

Thanks celia, for the added input- I know a lady allergic to flax and her symptoms WERE eczema! Anyway, I sure miss Wonder Bread too!!!! :)

alexandria Newbie
alexandria
Posted
Hi All,

Just a quick note to say that I've had dh since I was in high school. (I'm almost 59 now) I take many supplements as I am sure we all do. I started taking flax seed oil many years ago and discovered it quickly dries up the dh rash and cuts the itching almost immediately. Please try it. I have never taken dapsone as I can control the rash with flax. I've tried many brands and they all seem to work. I only get breakout these if I accidently eat gluten as in salad dressing, etc.

My husband also has DH. I am excited for him to try the flax oil! You said the itch went away almost immediately? That would be great. Thanks for sharing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dlapham celiac & DH Newbie
Dlapham celiac & DH
Posted
Hi All,

Just a quick note to say that I've had dh since I was in high school. (I'm almost 59 now) I take many supplements as I am sure we all do. I started taking flax seed oil many years ago and discovered it quickly dries up the dh rash and cuts the itching almost immediately. Please try it. I have never taken dapsone as I can control the rash with flax. I've tried many brands and they all seem to work. I only get breakout these if I accidently eat gluten as in salad dressing, etc.

I to am 59+ yrs old and have had D/H for over 18 years. I tried sulfapyridine and it sorta worked then I went to dapsone and it did work at 50 mg. once a day. But being the nasty drug that it is, it lowered my RBC and basically all the readings related to my red blood cells. After cutting down to 25 mg a day after being gluten-free for about 3 months, my red count is better (the test was at about 3 months gluten-free, but I am now 5 months gluten-free and will have another test in about one month). Your experience with flax seed oil is most interesting and holds out hope for some of us. I am going to try it as soon as I can pick some up. Thanks for letting us know about it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748
    Shrub
    Newest Member
    Shrub
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.