Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Success!


Lollie

Recommended Posts

Lollie Enthusiast

Hi all!!!!!! :D I just wanted to share some good news about this past weekend! I had posted that I had concerns about going out of town this past weekend- eating out, feeling bad, ect..... ;)

Well I took everyone's advice. I packed a bunch of Lara bars, my favorite crackers, stocked up on Whole Foods cookies, and had the hotel put a refrigerator in the room. When we were settled in the room, we found the local whole foods and stocked up on yogurt, fruit, and other things that would be helpful.

This is the first time in about 10 years that I actually felt really good on a vacation. B) I did not get sick, not once! I actually ate at a seafood restaraunt, I ate at Chili's and I ordered room service berries to go with my yogurt. You see, I had not really eaten on vacation in all that time. I would always feel sick, I wouldn't have any energy, and by the end I couldn't wait to get home to where it didn't really matter that I was sick-it's always easier at home. But this time, and most importantly......I was able to really relax, and enjoy this mini-vacation! :D:D:D

I wanted to give a positive side to this crumby disease.....I would give up all the bread, restraunts, whatever, to just feel good and enjoy my life again, and now I feel like I finally have that, a LIFE!!!!!!

Thanks to all who gave me advice! And here's some hope to those just starting out- it does get better, just try to focus on the positive when ever you can! :)

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

That's great Lollie! Good for you! :D Really glad you had a healthy good time.

jerseyangel Proficient

That is wonderful to hear, Lollie! I always have had the same issues with travelling as you--I just find it easier to stay home :( . Stories like yours are just what I need to hear--I am not staying at home all summer this year, I'm determined to go away--at least for a long weekend! Thanks ;)

Lollie Enthusiast
That is wonderful to hear, Lollie! I always have had the same issues with travelling as you--I just find it easier to stay home :( . Stories like yours are just what I need to hear--I am not staying at home all summer this year, I'm determined to go away--at least for a long weekend! Thanks ;)

That's wonderful! I hope you have an amazing vacation!!!!! :D If, when the time comes, you need any advice or tips- feel free to PM me! I'll be happy to help!

Lollie

jerseyangel Proficient

I will do that! Thanks :D

jenvan Collaborator

Wonderful news Lollie! I'll be heading out of town for a trip in a few days also. It does pay to plan ahead!

Patti--You deserve a good trip!! :D

tiredofdoctors Enthusiast

Congratulations Lollie! :D That's fantastic! :D:D:D Lynne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Wow, that's wonderful Lollie!!!

Guest Pixi

Aww, Laura, that's so fantastic! :)

I'm 22 and I've been wondering how I'll manage the rest of my life -- vacations, a wedding (let's hope, lol), parties, events, etc.. -- with this dis-ease. Thanks for sharing that story.. I like knowing there's happy, travelling celiacs out there! Something to aspire to ;)

jackie4 Apprentice
Hi all!!!!!! :D I just wanted to share some good news about this past weekend! I had posted that I had concerns about going out of town this past weekend- eating out, feeling bad, ect..... ;)

Well I took everyone's advice. I packed a bunch of Lara bars, my favorite crackers, stocked up on Whole Foods cookies, and had the hotel put a refrigerator in the room. When we were settled in the room, we found the local whole foods and stocked up on yogurt, fruit, and other things that would be helpful.

This is the first time in about 10 years that I actually felt really good on a vacation. B) I did not get sick, not once! I actually ate at a seafood restaraunt, I ate at Chili's and I ordered room service berries to go with my yogurt. You see, I had not really eaten on vacation in all that time. I would always feel sick, I wouldn't have any energy, and by the end I couldn't wait to get home to where it didn't really matter that I was sick-it's always easier at home. But this time, and most importantly......I was able to really relax, and enjoy this mini-vacation! :D:D:D

I wanted to give a positive side to this crumby disease.....I would give up all the bread, restraunts, whatever, to just feel good and enjoy my life again, and now I feel like I finally have that, a LIFE!!!!!!

Thanks to all who gave me advice! And here's some hope to those just starting out- it does get better, just try to focus on the positive when ever you can! :)

Lollie

That is so reassuring. We booked a vacation to the Dominican Republic before my daughter was diagnosed. She is 14 and I was nervous about what she could eat but putting a refrigerator in the room is a great idea. It is great to hear such positive feedback. It makes me feel so much better to know that it does get better!! Jackie4

Guest BERNESES

Lollie- That is so great! Now that's progress!

Patti- You take a vaction- you deserve one- it's your turn.

Guest nini

that is success! I remember my first vacation after dx, Last year for spring break we drove to Florida for a week, Usually in the past road trips always made me ill (go figure lots of gluten!) and I didn't ever want to go... would have to stop at every bathroom along the way, you know the drill... anyway, my Florida vacation was awesome too... I packed a cooler and a bag of snacks for in the car, when we got there we stocked up at Whole Foods and I ate at Outback, Bonefish Grill, Whole Foods salad bar, and my favorite Mexican Restaurant El Adobe with no problems at all! My daughter and I felt so good and so pampered the entire time we were there!

Becky6 Enthusiast

That is so great!! I am so glad you had a wonderful time!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.