Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter
3 3
CharlesBronson

Emergency Endoscopy This Week. Need Advice!

Rate this topic

Recommended Posts

Hello Celiac friends,

I was fortunate to get an emergency endoscopy for this Friday, as I've been continually sick and unable to tolerate food since I've gone gluten free over a year and a half ago. I'm guessing that my intestines are far from healed.

But what else should the doctor be looking for while he's down there? What are some complications that tend to arise with celiac that could have developed since my last endoscopy?

I know gastritis is one. And lesions on my intestinal walls is another.

Any advice is much appreciated!!!

 

 

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Have you had one before?

I had an Endoscopy in early May I believe it was... Dr saw mild Gastritis before the biopsy found Celiac...

so yes Gastritis can be there..  

Share this post


Link to post
Share on other sites

Hello! Yes I had an endoscopy about a year and a half ago and found out I have celiac.

I get very tired and nauseous. Nausea can turn to pain and cramps with certain foods. I seem to have sensitivities to everything... but the worst ones are glutamate, histamine, and grains. 

 

Thanks!

Share this post


Link to post
Share on other sites

When was the last time your antibodies (DGP or TTG) were tested?  This should help determine if your celiac disease is still active.  I am sure your GI will re-biopsy and check for things like SIBO, Crohn’s, active celiac disease or refractory celiac disease.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Hey, did you ever get a HIDA scan?  Your gallbladder can cause severe pain and nausea.  If I recall your ultrasound was okay, but that can not catch a non-functioning gallbladder (which is commonly linked to celiac disease).

Be sure to get and keep all your medical records.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites
25 minutes ago, cyclinglady said:

Hey, did you ever get a HIDA scan?  Your gallbladder can cause severe pain and nausea.  If I recall your ultrasound was okay, but that can not catch a non-functioning gallbladder (which is commonly linked to celiac disease).

Be sure to get and keep all your medical records.  

No I never got the HIDA scan. I got an ultrasound and they did a CT Scan (with dye) on my whole abdomen and said my gallbladder was Ok. I'll definitely bring up the HIDA scan again though. I'm desperate. 

Share this post


Link to post
Share on other sites
1 hour ago, CharlesBronson said:

No I never got the HIDA scan. I got an ultrasound and they did a CT Scan (with dye) on my whole abdomen and said my gallbladder was Ok. I'll definitely bring up the HIDA scan again though. I'm desperate. 

They do a contrast with the HIDA scan.  Then they inject a hormone that causes the gallbladder to squeeze and empty.  This is called the refractory rate.  If your gallbladder is not emptying, you are going to suffer, you need that bile to digest any fats.  Eventually the gallbladder stops functioning and it can rot ( infection).   That is what happened to me.  Emergency surgery while on a business trip.  Not fun.  
 

Gallbladders are a family curse.  All were non-functioning.  No stones. Look good on all other tests.  They thought my Dad had cancer because he was in so much pain and stopped eating solid food.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites
44 minutes ago, cyclinglady said:

They do a contrast with the HIDA scan.  Then they inject a hormone that causes the gallbladder to squeeze and empty.  This is called the refractory rate.  If your gallbladder is not emptying, you are going to suffer, you need that bile to digest any fats.  Eventually the gallbladder stops functioning and it can rot ( infection).   That is what happened to me.  Emergency surgery while on a business trip.  Not fun.  
 

Gallbladders are a family curse.  All were non-functioning.  No stones. Look good on all other tests.  They thought my Dad had cancer because he was in so much pain and stopped eating solid food.  

Wow... This is so good to know. Thank you so much for this information. I'm sorry you had to go through that. I'll DEFINITELY bring it up again and say I'm very concerned about my gallbladder and a HIDA scan is necessary. 

Can I ask what your symptoms were CyclingLady? Did they involve pain, nausea and exhaustion? 

Share this post


Link to post
Share on other sites

I do not recall exhaustion.  But pain and nausea that occurred...humm....when I ate.   Even traveled without eating all day.  I was like my Dad just consuming liquids or not eating.     I also recall being afraid to eat my first meal post surgery.  But I ate and had no pain.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

So my biopsy results show that my villi have now returned to normal. Does that mean that my celiac is healed??? It sure doesn't feel healed.

Biopsy also said there's "near normal duodenal mucosa with focal active inflammation, non specific." 

In the comments it says it's neutrophilic inflammation likely from a peptic injury?? 

Can anyone help me make sense of this??

Thank you

 

Share this post


Link to post
Share on other sites

Sounds like your villi healed (celiac disease in remission), but you might  have another problem.  Best to talk to your doctor, ‘cause I am just a lady on the Internet!  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites
39 minutes ago, cyclinglady said:

Sounds like your villi healed (celiac disease in remission), but you might  have another problem.  Best to talk to your doctor, ‘cause I am just a lady on the Internet!  

Hahahah! Thanks so much for helping 'Lady on the Internet' :) 

My doctor didn't book me for an emergency follow up or anything (didn't even call me) so it must be minor (if anything at all). With COVID, the GI docs in my area are very busy and I probably won't see one until next year. 

Share this post


Link to post
Share on other sites
40 minutes ago, CharlesBronson said:

Hahahah! Thanks so much for helping 'Lady on the Internet' :) 

My doctor didn't book me for an emergency follow up or anything (didn't even call me) so it must be minor (if anything at all). With COVID, the GI docs in my area are very busy and I probably won't see one until next year. 

If the report was posted by the pathologist, chances are your GI did not even get to see it or comment in your chart.   Follow up with him in a few days.  My diagnosing GI forgot to call me for a few weeks.  I knew though I had celiac disease after binging before my endoscopy, so I went gluten free.  Not that I would recommend doing that, but my hubby had been gluten free, so I knew the diet well.  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
3 3