Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me!


JessicaB

Recommended Posts

JessicaB Explorer

WELL... I HAVENT BEEN ON HERE SINCE JAN... I HAD POSITIVE BLOODWORK, THE DOC SENT ME FOR A ENDOSCOPY AND I WAS TOLD IT WAS NEG. SO I THOUGHT YEAH I DONT HAVE CELIAC. WELL I WENT BACK FOR A FOLLOW UP, STILL IN PAIN. THE DOC SAID I DEF HAVE CELIAC SINCE MY BLOODWK SHOWED IT, HE WANTS ME TO GET A ENTROSCOPY AND MORE BIOPSYS, UNTIL IT SHOWS POS. ANYONE HAVE EXPERIENCE? WHAT DO YOU THINK? IM GOING TO GEORGE MASON UNIVERSITY HOSPITAL TOMORROW....... HELP IM ABOUT TO GO TO BED AND NEED SOME ADVICE,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Robbin

Wow, I think they are giving you the run-around. I am fairly new here, but positive bloodwork is POSITIVE. I don't understand putting you through another biopsy. You probably had some healing or they just didn't take enough samples. I personally would not go through it and would stay off gluten. Positive bloodwork and positive dietary response is enough for most drs. Heck, positive dietary response is enough for a lot of people here, myself included. Maybe someone with more expertise will post here, but I would also check out what Dr. Fine says on the enterolab site--www.enterolab.com (not linked, you have to do a search-I am not too skilled at the computer) Look under FAQ Result interpretation. Even though you didn't have the blood work done by him, he explains a lot in that FAQ section and you will have a clearer picture of what you are dealing with than what I could tell you in a post. Take care & God bless. :)

Guest Viola

Jessica, I don't think there has ever been a false positive in blood work. Which means if your blood was positive you have Celiac Disease. From what I've read they are actually talking about doing away with the biopsy eventually, as the blood work is so reliable.

Guest nini

If you have positive bloodwork, you absolutely HAVE celiac. you do not need any more biopsies as they can ONLY confirm it, never ever completely rule it out.

I was dx'ed by positive bloodwork only. I never had a biopsy and never will. Your Dr. is giving you the run around. You DO NOT need your Dr.s permission to go on this diet and you ABSOLUTELY have celiac! (can I emphasise that enough?)

Go gluten free immedieately and forgo any more testing, you don't need it.

jerseyangel Proficient

Yes, I believe that with your positive bloodwork, you are Celiac. Why put yourself through any more testing? The best thing for you would be to make sure you're 100% gluten-free--checking everything you eat or use on your body. I hope you begin to feel better soon :)

zip2play Apprentice

Why is more testing necessary? I say, stick with a gluten free diet!

Monica

tiffjake Enthusiast
Why is more testing necessary? I say, stick with a gluten free diet!

Monica

Ditto!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,947
    • Most Online (within 30 mins)
      7,748

    cookiesyum
    Newest Member
    cookiesyum
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • pdm1981
      It's also a symptom of EPI.
    • Wheatwacked
      Yes.  Proportionately a small piece to a toddler is like a whole slice to an adult.  This is an important clue.  She was doing well, accidentally ate gluten and later the old behavior returned. I remember reading posts here of people reacting to a kiss from someone who had just eaten gluten. Recent research indicates that 40% of first degree relatives of someone with Celiac have undiagnosed Celiac Disease.  Father, mother, siblings.  There is a whole list of symtoms of "silent celiac".  Here is an article of symptoms possibly mistaken for other causes than Celiac Disease.  When I finally stopped gluten at 63 years old, I counted 19 things that improved, including lifelong mouthbreathing.  I never smelled bad things, so I as a kid, I learned to respond to the other kid's response in order to not seem weird. I really recommend you pursue testing for all the family if you can, and the whole family following GFD.  It is difficult at first, but the benefits will be worth it.  
    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
×
×
  • Create New...