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Bouchra

Can Celiac Disease cause Nausea?

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Hi, I have been diagnosed with Celiac Disease for 20 years but I was sick all the time with anaemia, constipation loosing weight lot, lost my hair even the color of my hair changed from black to yellow . After I started to eat regular food I gain lot weight my hair has grown my original color came back since I stoped following gluten-free. Now I am having severe nausea if I eat I get it if I don’t I still get. I tried all the medications from the Dr. Even if when I had chemo treatment the nausea stopped. I saw GA Dr he told me I could have cancer. celiac disease shows in my blood but I told him let “s do the biopsy. But I have to do COVID test first. I am looking forward to find out what it”s causing the nausea. I am going crazy. I don’t have energy to do anything. Thank you, Bouchra 

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So you were diagnosed with celiac disease, but apparently were not following a gluten-free diet? You said: "...since I stopped following gluten-free," so I assume you've been eating gluten during this 20 years. If so, this would likely be the cause of your severe nausea, and hopefully you don't have cancer, but keep seeing your doctor until you find out. If you have celiac disease you need to be 100% gluten-free for life.


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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2 hours ago, Scott Adams said:

So you were diagnosed with celiac disease, but apparently were not following a gluten-free diet? You said: "...since I stopped following gluten-free," so I assume you've been eating gluten during this 20 years. If so, this would likely be the cause of your severe nausea, and hopefully you don't have cancer, but keep seeing your doctor until you find out. If you have celiac disease you need to be 100% gluten-free for life.

Hi Scott, Thank you for quick response. Celiac Disease is showing in my blood. 15 years ago GA Dr told me there were lot tissues in my intestine. But I was always sick with severe anaemia. And I weight 80 pound. But since I started eating gluten I weight 180 pound. My family were happy to see me gain lot weight. But now with the nausea is killing me. I am looking forward to do endoscopy and biopsy. I don’t know if stress is causing me more nausea. I can’t wait for Tuesday though. I already start to buy gluten free food. Thank you so much. I really appreciate your answer. Bouchra 

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9 minutes ago, Scott Adams said:

Be sure to keep eating gluten until the tests are done. Also, did you get another blood test for celiac disease? This should have been done before your biopsy.

Yes. They did. It showed in my blood again. Because the nausea couldn’t stop without eating any kind food. I contact my Dr. Because it got worse with pain. One Dr was on call my God she was so tough with me” She told me. The only answer I got for you “ Is Celiac and you must have cancer” I was choked I was telling her please don’t tell me celiac disease because I get sick when I follow the diet. But I am very curious to know. Tuesday sounds to far right now. This is the worse nausea I got since I had my chemo treatment. I asked my primary Dr to give me some medication to calm me down. Sincerely, Bouchra 

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32 minutes ago, RMJ said:

I used to have troubles with nausea but it finally went away when I got my celiac antibodies down to a normal level.

Hi, Where did you get it from please? Because I have to check if it will cause me bleeding before I buy it. Unfortunately I am fighting for other health issues. Thank you, Bouchra 

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Hi Bouchra,

You don't have to eat a lot of gluten for the celiac testing to work.  A slice or 2 of wheat bread a day is enough.  Your doctor can confirm.  It may help your symptoms if you cut out all dairy from your diet for a few months.

Pepto Bismol liquid can help symptoms and peppermint tea or peppermint Altoids mints can help with gassy stomach. 


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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27 minutes ago, Bouchra said:

Hi, Where did you get it from please? Because I have to check if it will cause me bleeding before I buy it. Unfortunately I am fighting for other health issues. Thank you, Bouchra 

I’m sorry I don’t understand the question?  I didn’t mention anything one could purchase.

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9 hours ago, Bouchra said:

Hi, I have been diagnosed with Celiac Disease for 20 years but I was sick all the time with anaemia, constipation loosing weight lot, lost my hair even the color of my hair changed from black to yellow . After I started to eat regular food I gain lot weight my hair has grown my original color came back since I stoped following gluten-free. Now I am having severe nausea if I eat I get it if I don’t I still get. I tried all the medications from the Dr. Even if when I had chemo treatment the nausea stopped. I saw GA Dr he told me I could have cancer. celiac disease shows in my blood but I told him let “s do the biopsy. But I have to do COVID test first. I am looking forward to find out what it”s causing the nausea. I am going crazy. I don’t have energy to do anything. Thank you, Bouchra 

Bouchra,

You sound like you have nutritional deficiencies!  Celiac Disease damages the intestines and causes malabsorption. You haven't been absorbing enough vitamins and minerals on the gluten free diet.  The gluten free diet can be deficient in some vitamins and minerals.  Sometimes you have to take vitamins and mineral supplements.

Gluten containing foods contain more vitamins because they are enriched with vitamins.  The gluten containing foods have vitamins added to them.  

Unfortunately, the gluten containing foods cause more intestinal damage and you can't absorb vitamins again.  The Celiac antibodies in your blood show that your body is attacking the small intestines again.  This is the autoimmune response to gluten in Celiac Disease.

The gluten containing foods can cause weight gain, but some of that weight gain is water and bloating because of the autoimmune reaction.

Anemia is caused by not absorbing enough iron, and vitamins like B12, folate (B9), riboflavin (B2), pyridoxine (vitamin B6), and Vitamin C.

Constipation can be caused by not enough Vitamin D, magnesium and thiamine (Vitamin B1).

Thiamine deficiency will cause hair loss.  Hair changing color can be caused by not absorbing enough protein and not absorbing enough zinc and Vitamin A.

Chemotherapy can cause thiamine deficiency.  Thiamine deficiency causes nausea.  Thiamine deficiency can also make you very tired ( extremely fatigued). Thiamine deficiency will also make you very anxious.  

Thiamine and niacin (vitamin B3),  riboflavin, pyridoxine (vitamin B6) and magnesium are needed to heal the intestines. 

You need to ask your doctors to check you for vitamin deficiencies, especially for thiamine deficiency.  You should talk to the doctors about supplementing with vitamins and minerals.  

Doctors are focused on prescription medications and medical procedures. Doctors tend to overlook vitamin and mineral deficiencies in Celiac Disease.  

Please get checked for vitamin and mineral deficiencies soon.

Best wishes for you on your journey to health.

 

 

 

 

Edited by knitty kitty
Typo

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8 hours ago, knitty kitty said:

Bouchra,

You sound like you have nutritional deficiencies!  Celiac Disease damages the intestines and causes malabsorption. You haven't been absorbing enough vitamins and minerals on the gluten free diet.  The gluten free diet can be deficient in some vitamins and minerals.  Sometimes you have to take vitamins and mineral supplements.

Gluten containing foods contain more vitamins because they are enriched with vitamins.  The gluten containing foods have vitamins added to them.  

Unfortunately, the gluten containing foods cause more intestinal damage and you can't absorb vitamins again.  The Celiac antibodies in your blood show that your body is attacking the small intestines again.  This is the autoimmune response to gluten in Celiac Disease.

The gluten containing foods can cause weight gain, but some of that weight gain is water and bloating because of the autoimmune reaction.

Anemia is caused by not absorbing enough iron, and vitamins like B12, folate (B9), riboflavin (B2), pyridoxine (vitamin B6), and Vitamin C.

Constipation can be caused by not enough Vitamin D, magnesium and thiamine (Vitamin B1).

Thiamine deficiency will cause hair loss.  Hair changing color can be caused by not absorbing enough protein and not absorbing enough zinc and Vitamin A.

Chemotherapy can cause thiamine deficiency.  Thiamine deficiency causes nausea.  Thiamine deficiency can also make you very tired ( extremely fatigued). Thiamine deficiency will also make you very anxious.  

Thiamine and niacin (vitamin B3),  riboflavin, pyridoxine (vitamin B6) and magnesium are needed to heal the intestines. 

You need to ask your doctors to check you for vitamin deficiencies, especially for thiamine deficiency.  You should talk to the doctors about supplementing with vitamins and minerals.  

Doctors are focused on prescription medications and medical procedures. Doctors tend to overlook vitamin and mineral deficiencies in Celiac Disease.  

Please get checked for vitamin and mineral deficiencies soon.

Best wishes for you on your journey to health.

 

 

 

 

Good Morning, You are absolutely right. Thank you for explaining everything with details. Now it makes sense. I have to take vitamins. I will ask my Dr when I will see him. I can’t wait for endoscopy to check if I caused lot damage. Sorry my mind is going crazy I can’t think straight. Now I have better understanding for celiac diseases. Thanks again, Bouchra  

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Dear Bouchra,

I don't want to confuse you, but I must told you that the blood test supposed to check whether you're celiac or not, it's not reliable. Your doctor gave you a good advice : do the biopsy and the endoscopy so you will have a proper result. Let us know what the result will be and, for the moment, keep eating gluten, as the gluten-free diet has caused you a lot of severe problems. I think your nausea could be caused by a drug...which drugs (medicines) are you taking ?

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6 hours ago, Neytiri said:

Dear Bouchra,

I don't want to confuse you, but I must told you that the blood test supposed to check whether you're celiac or not, it's not reliable. Your doctor gave you a good advice : do the biopsy and the endoscopy so you will have a proper result. Let us know what the result will be and, for the moment, keep eating gluten, as the gluten-free diet has caused you a lot of severe problems. I think your nausea could be caused by a drug...which drugs (medicines) are you taking ?

Hi, Thank you for your reply. I am medications for depression anxiety nausea Tylenol and sleeping pill so I can sleep through the pain because I am still recovering from my second surgery on my neck. Unfortunately I don’t like taking medication. When my nausea got severe I contacted my primary dr and referred me to see Gastroenterologist. Which I did. And I told him I have celiac disease for 20 years but I stopped following the diet because I was always sick. He wanted me to do blood work for infection, anaemia, platelets account and celiac. And he suggested to do endoscopy and biopsy. I told him” I agree let”s do it please. I am curious to find out the cause. But it was strange while I was in his office I saw pic of human inside stomach then I saw “ Celiac Trunk” I asked to explain to me. He told me it”s vine of celiac attached to the stomach.  Now my stomach bloated. I have to drink milk to pass gas. I apologize for using that word. Thank you so much 

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9 hours ago, RMJ said:

Anxiety can be part of celiac disease.  

When is your endoscopy?  I hope you don’t have to wait long for answers.

Hi, it”s on Tuesday September 29. Today I have to go for Covid test. I will ask the Dr to let me know the result ASAP because I am still having nausea. 

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21 hours ago, Bouchra said:

Hi, Thank you for your reply. I am medications for depression anxiety nausea Tylenol and sleeping pill so I can sleep through the pain because I am still recovering from my second surgery on my neck. Unfortunately I don’t like taking medication. When my nausea got severe I contacted my primary dr and referred me to see Gastroenterologist. Which I did. And I told him I have celiac disease for 20 years but I stopped following the diet because I was always sick. He wanted me to do blood work for infection, anaemia, platelets account and celiac. And he suggested to do endoscopy and biopsy. I told him” I agree let”s do it please. I am curious to find out the cause. But it was strange while I was in his office I saw pic of human inside stomach then I saw “ Celiac Trunk” I asked to explain to me. He told me it”s vine of celiac attached to the stomach.  Now my stomach bloated. I have to drink milk to pass gas. I apologize for using that word. Thank you so much 

Dear Bouchra, I have to tell you that one of the most common side effects of antidepressants is indeed nausea. It must be written within the leaflet. However, I still suggest you to discuss it with your doctor.

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27 minutes ago, Neytiri said:

Dear Bouchra, I have to tell you that one of the most common side effects of antidepressants is indeed nausea. It must be written within the leaflet. However, I still suggest you to discuss it with your doctor.

Hi Neytiri, The antidepressant medication I take. It causes nausea but it”s the only medication helping me right now and it dose not interfere with Platelets accounts. I am mentally exhausted from this. I am back now on celiac diet. I don’t have energy to do anything I keep drinking OJ to give little push. Good Lord! Thank you, Bouchra 

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1 hour ago, RMJ said:

To be sure you have an accurate diagnosis, you should continue eating gluten until you have your endoscopy.

Tomorrow I will eat gluten. And we will see what happen on Tuesday! My big day for endoscopy and biopsy. I can’t wait to find out though. Thank you so much for your help

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15 hours ago, Bouchra said:

Hi Neytiri, The antidepressant medication I take. It causes nausea but it”s the only medication helping me right now and it dose not interfere with Platelets accounts. I am mentally exhausted from this. I am back now on celiac diet. I don’t have energy to do anything I keep drinking OJ to give little push. Good Lord! Thank you, Bouchra 

Dear Bouchra, 

I've written to you this piece of info, because I thought you didn't know that. My message wasn't criticism, I am instead favourable to the assumption of antidepressants (I am taking one too).

12 hours ago, RMJ said:

To be sure you have an accurate diagnosis, you should continue eating gluten until you have your endoscopy.

You're right RMJ

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13 hours ago, Bouchra said:

Tomorrow I will eat gluten. And we will see what happen on Tuesday! My big day for endoscopy and biopsy. I can’t wait to find out though. Thank you so much for your help

Good Morning Neytiri, Thank you for mentioning the antidepressant medication because I gave the Dr the list of my medications but he didn’t say anything at all. He jumped directly to celiac disease and he told celiac disease is causing me the nausea then he added” I think you have cancer in my stomach” I told him I want do endoscopy and biopsy. I am not embarrassed about the antidepressant medications. Please don’t say that!! I am dealing with lot things since 2018. I got injured at my work. I ended up with herniate desk on my neck c5-c6, c6- c7. I had surgery. it didn’t go well because one of the implant got twisted then I had second surgery the Dr had to open my neck again to fix it. And I am still having pain. Plus the company I used to work for determinate my job that I worked for 10 years because of my injury.  I have to take antidepressant medications to help me out dealing with this. I am just curious to find out what “s causing the nausea because I didn’t had it since my last chemo on May 2019. The medication for depression I have been taking in it since June 2018. That”s why I am surprised. And the mean time I want find out if I caused any damage to my intestine because I have been cheating for long time. I am not embarrassed to say I am depressed. Not me :) I understand what you are saying. I hope I will make through tomorrow. Sincerely, Bouchra

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3 hours ago, Bouchra said:

Good Morning Neytiri, Thank you for mentioning the antidepressant medication because I gave the Dr the list of my medications but he didn’t say anything at all. He jumped directly to celiac disease and he told celiac disease is causing me the nausea then he added” I think you have cancer in my stomach” I told him I want do endoscopy and biopsy. I am not embarrassed about the antidepressant medications. Please don’t say that!! I am dealing with lot things since 2018. I got injured at my work. I ended up with herniate desk on my neck c5-c6, c6- c7. I had surgery. it didn’t go well because one of the implant got twisted then I had second surgery the Dr had to open my neck again to fix it. And I am still having pain. Plus the company I used to work for determinate my job that I worked for 10 years because of my injury.  I have to take antidepressant medications to help me out dealing with this. I am just curious to find out what “s causing the nausea because I didn’t had it since my last chemo on May 2019. The medication for depression I have been taking in it since June 2018. That”s why I am surprised. And the mean time I want find out if I caused any damage to my intestine because I have been cheating for long time. I am not embarrassed to say I am depressed. Not me :) I understand what you are saying. I hope I will make through tomorrow. Sincerely, Bouchra

Dearest Bouchra,

I think your doctor is a bit shallow : it's not right to say such cruel things without evidence :(

I'm sorry for what you have been through, that was truly tough ! Hope you can sort all things out ;)

Me neither, I am not at all embarrassed to say that I suffer from depression because I think that's a disease, just like the others (even though it doesn't involve the body itself).

Let us know the results of your exams, we'll keep giving you support 💪 (right guys ? ;) )

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1 hour ago, Neytiri said:

Dearest Bouchra,

I think your doctor is a bit shallow : it's not right to say such cruel things without evidence :(

I'm sorry for what you have been through, that was truly tough ! Hope you can sort all things out ;)

Me neither, I am not at all embarrassed to say that I suffer from depression because I think that's a disease, just like the others (even though it doesn't involve the body itself).

Let us know the results of your exams, we'll keep giving you support 💪 (right guys ? ;) )

My dear Neytiri, Thank you so much for your support, and Thank you for making me laugh. Everything will get better God welling. It”s funny I am expecting the Dr to tell me “ I never seen this before” like my other surgeon told me the last time :(. I got used to it :). I will let you know about the result tomorrow. Thanks again for everything 🌺❤️ 

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Hi Bouchra,

I hope you get a clear diagnosis from your tests.  But it sounds like you already know you have celiac disease and just haven't been following the gluten-free diet.  Since celiac disease has no cure it doesn't go away.  So new testing can confirm celiac or if you haven't been eating gluten long enough it may give a false negative.  They used to say 12 weeks of eating gluten before blood testing and 2 weeks eating gluten before the endoscopy and I think that is still the University of Chicago celiac center recommendation.

People with celiac who go gluten-free sometimes expect they will be quickly healed and feel much better.  But the reality is it can takes months or years to heal the damage celiac causes.  And the amount of gluten it takes to make a person sick is vey small.  So going 95% gluten-free is about like not going gluten-free at all.  We have to be careful of cross contamination and shared utensils and pots, toasters etc.

But being 100% gluten-free is the way to go to get healed and healthy.  We don't absorb nutrients well with a damaged gut so many body systems can do poorly because of that issue.

I can tell you I went gluten-free and felt better but did not feel a lot better for 5 years.  It doesn't take that long for everyone but for some it does.

Edited by GFinDC

Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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15 hours ago, Bouchra said:

My dear Neytiri, Thank you so much for your support, and Thank you for making me laugh. Everything will get better God welling. It”s funny I am expecting the Dr to tell me “ I never seen this before” like my other surgeon told me the last time :(. I got used to it :). I will let you know about the result tomorrow. Thanks again for everything 🌺❤️ 

You're welcome ! 😍😊 hope for the better 🙏

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