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Bouchra

Can Celiac Disease cause Nausea?

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11 hours ago, Neytiri said:

You're welcome ! 😍😊 hope for the better 🙏

Hi Dear, You got love this. I am officially 100% gluten-free for the rest of my life. But I have something else cooking inside my stomach. It is not cancer but it “s related to Celiac Family :) I have no idea what it is. Dr couldn’t tell me. But I have to wait for the result of biopsy. I guess Celiac has family that I am not a wear of. My number were high on gluten 82%. Dr reffed me to see nutrition which I expected.  Then the hospital has wrong information in my chart about my illness. You couldn’t believe what they wrote there. I don’t understand why this people put wrong information and diagnose on my chart. My heart rates was high. I told them my anxiety level is higher. Plus I got mad after they read to me the reason why I am having endoscopy done and biopsy plus someone wrote on my chart I had surgery on 2016. Now I have to wait for the result:( I was watching my stomach on TV :) it funny how things happen. I have so many questions about gluten free food to buy. But I don’t know from where to start. God bless you for your help and support 🌺❤️😔

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On 9/28/2020 at 6:23 PM, GFinDC said:

Hi Bouchra,

I hope you get a clear diagnosis from your tests.  But it sounds like you already know you have celiac disease and just haven't been following the gluten-free diet.  Since celiac disease has no cure it doesn't go away.  So new testing can confirm celiac or if you haven't been eating gluten long enough it may give a false negative.  They used to say 12 weeks of eating gluten before blood testing and 2 weeks eating gluten before the endoscopy and I think that is still the University of Chicago celiac center recommendation.

People with celiac who go gluten-free sometimes expect they will be quickly healed and feel much better.  But the reality is it can takes months or years to heal the damage celiac causes.  And the amount of gluten it takes to make a person sick is vey small.  So going 95% gluten-free is about like not going gluten-free at all.  We have to be careful of cross contamination and shared utensils and pots, toasters etc.

But being 100% gluten-free is the way to go to get healed and healthy.  We don't absorb nutrients well with a damaged gut so many body systems can do poorly because of that issue.

I can tell you I went gluten-free and felt better but did not feel a lot better for 5 years.  It doesn't take that long for everyone but for some it does.

Hi, This is the third time I got diagnosed with celiac disease but Dr told me my stomach is getting sensitive plus there is something in my stomach is causing inflammation and he told it”s part of Celiac Family I am 100% gluten-free. Which I know. But I have to wait for the result of the biopsy. I am mentally exhausted and I don’t know from where to start. Now I am getting more depressed because Dr confused me more when he said celiac family. I never heard about it. Thank you so much for your help and your support, Bouchra 

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10 hours ago, Bouchra said:

Hi Dear, You got love this. I am officially 100% gluten-free for the rest of my life. But I have something else cooking inside my stomach. It is not cancer but it “s related to Celiac Family :) I have no idea what it is. Dr couldn’t tell me. But I have to wait for the result of biopsy. I guess Celiac has family that I am not a wear of. My number were high on gluten 82%. Dr reffed me to see nutrition which I expected.  Then the hospital has wrong information in my chart about my illness. You couldn’t believe what they wrote there. I don’t understand why this people put wrong information and diagnose on my chart. My heart rates was high. I told them my anxiety level is higher. Plus I got mad after they read to me the reason why I am having endoscopy done and biopsy plus someone wrote on my chart I had surgery on 2016. Now I have to wait for the result:( I was watching my stomach on TV :) it funny how things happen. I have so many questions about gluten free food to buy. But I don’t know from where to start. God bless you for your help and support 🌺❤️😔

Bouchra, I'm so sorry to hear these news :( these doctors are truly shallow and clumsy ! You cannot write something wrong on such important papers ! 😠

As regards this "celiac family", unfortunately I've never heard about this :( however, it's good news that it's not cancer : that would have been worse ;)

As concerns instead the gluten-free products, I suggest you to buy ONLY certified gluten-free products (here in Italy they use a specific symbol on the packages) and be careful not to contamine your kitchen utensils and pots with gluten

Let us know the definitive result :)

God bless you too for you being good company 😊🙏

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@Bouchra hopefully the 3rd time is the charm! Actually it's pretty awful that this is still happening given the vast amount of information that anyone can find with a simple search about celiac disease. You should only need to be diagnosed once, and then should go gluten-free for life right after, no if's, and's, or but's! There is no such thing as "celiac family", but your direct family members need to also now be screened for celiac disease, as there is a much higher chance that some of them also have it...hopefully that's what your doctor meant! 😉


Scott Adams

Celiac.com - Celiac Disease Board Moderator

Founder Celiac.com

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5 minutes ago, Scott Adams said:

@Bouchra hopefully the 3rd time is the charm! Actually it's pretty awful that this is still happening given the vast amount of information that anyone can find with a simple search about celiac disease. You should only need to be diagnosed once, and then should go gluten-free for life right after, no if's, and's, or but's! There is no such thing as "celiac family", but your direct family members need to also now be screened for celiac disease, as there is a much higher chance that some of them also have it...hopefully that's what your doctor meant! 😉

Hi Scott, Non of my family got it except me. When the Dr told me. “ Part of celiac disease”s family” I asked him if it”s gallbladder” Because my dad had it removed. He told me “ No!! could be lupus? Or something from celiac disease. And he told me I will see in month. I can’t wait for the result of the biopsy. I already start my diet today. But I am felling depressed I have no energy to do anything. I was surprised about the mistakes they had on my chart. The nurse thought I am having test done because of the diarrhea. I told her “ No the nausea!!” Plus other mistake they had. I am glad I correct the mistake. I feel so hopeless 😩. Thank you so much for your support. Bouchra 

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48 minutes ago, Scott Adams said:

If I were you I would call your doctor and get the OK to go gluten-free now, if you aren't currently. You only need to eat gluten until the tests are done.

He told me I have celiac disease and I have to eat gluten-free for the rest of my life. He put it in my chart and he told me he will refer me to see nutrition which I did on 1998 in Boston. He told me about it when I was in recovery room. 

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