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Prolia for Osteoporosis for those with Celiac Disease

JudySharlene
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JudySharlene Newbie
JudySharlene
Posted

 How do Celiac Disease patients react to injections of Prolia every 6 months? How safe it this medication for us?

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GFinDC Veteran
GFinDC
Posted
38 minutes ago, JudySharlene said:

 How do Celiac Disease patients react to injections of Prolia every 6 months? How safe it this medication for us?

Sorry, I don't know about Prolia, but I've read bad things about Fosamax.   IMHO the first thing to try for bone health is getting enough calcium, boron and vitamin D.  Also, CVS sells something called triple joint health the might be helpful.

Scott Adams Grand Master
Scott Adams
Posted

Are you worried that Prolia may contain gluten? Injected medications would not contain any gluten.

JudySharlene Newbie
JudySharlene
Posted
  • Author
4 hours ago, JudySharlene said:

 How do Celiac Disease patients react to injections of Prolia every 6 months? How safe it this medication for us?

 

2 hours ago, Scott Adams said:

Are you worried that Prolia may contain gluten? Injected medications would not contain any gluten.

No I was just reading the side effects. As usual I have not found anything specifically addressing Celiac Patients. Most side effects are the same as other Osteoporosis treatments like fosamax ,( which I took with no real improvement). Side effects include jaw problems, increased infections, bone, joint, and muscle pain, weakness, and low calcium. Thanks for caring and understanding.

Scott Adams Grand Master
Scott Adams
Posted

Sure, and nearly all prescription medications can have side-effects (and some can contain gluten). If this has been prescribed to you to treat osteoporosis, it would be a good idea to follow your doctor's advice, as this can be a terrible condition if left untreated.

Pat Jackson Apprentice
Pat Jackson
Posted

I was diagnosed with osteoporosis before menopause, which probably should have been a red flag for celiac, but this was 20 years ago.  When I asked the dr why I had it, he just shrugged his shoulders and said we could treat it.  In the following years, I had pretty much every treatment available.  Fosamax was really hard on my stomach, and something else was too.  Also, nothing made much difference.  Then, when the dr wanted to give me Prolia, I read the same warnings and was scared.  I put it off for probably a year because it sounded awful.  But I've now had it every 6 months for about 4 years and not had a single problem with it.  I get a DEXA scan every year, and the Prolia is the first medicine that has given me any improvement.  A visit to an orthopedic dr convinced me to try it.  I asked him for an opinion, and he didn't even hesitate.  He sees a lot of women with broken bones and told me not to wait.  

AmericanaMama Contributor
AmericanaMama
Posted
On 4/29/2021 at 3:19 PM, JudySharlene said:

 How do Celiac Disease patients react to injections of Prolia every 6 months? How safe it this medication for us?

I was diagnosed with osteoporosis and osteopenia. Three years later it was just osteopenia. I wonder how the results are interpreted? Hmmm. That was when my pcp thought I had been on Nexium too long and it was causing the osteoporosis. Now I think it's likely to be a combo platter of that and celiac disease. I've started a higher dose of Vit D and Calcium based on a calculation that I got from, I think either the American osteoporosis foundation or the UK one. At any rate, it's now osteopenia. When I consulted with my rheumy (I also have Sjogren's) about the idea of taking Prolia as I was at that time looking at it that time. He basically said that, in his opinion, the results weren't "quality bone" enough for him to suggest it and that I wasn't at a dangerous level for it. I've seen recently that there is discussion about whether treatment is even a good idea with what is offered currently. I guess we shall see. Opinions vary, eh?

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