Nutrient absorbtion

[Tonedown]

Celiacs have no or reduced villi, therefore if there are no villi lining your intestines how do we absorb the nutrients from our food.

My doctor said there are other ways, can someone explain how, if you could be specific that would be appreciated.

Also is there a test that can confirm what amount of nutrients are being absorbed. Should I be having regular blood tests for vitamin and mineral deficiencies.

 I take a one a day multi vitamin morning and night, how do I know how much of this tablet is being absorbed, for all I know it could be 5% or 80% huge difference.

Any information on these concerns would be of great value.

Most doctors don't seemed concerned, when I ask about taking multi vitamins they say it couldn't hurt, very disinterested attitude.

Are there specific test that are implemented for celiacs for nutrient absorbtion.

Cheers tony

[cristiana]

Hi Tone and welcome to the forum

As I understand it, villi increase the surface area of the small intestine.  The fewer or the more damaged the villi, the less nutrients we absorb.  Generally speaking, I've always been led to believe that if we have this issue, we will still keep absorbing some nutrients, just less.   (Hopefully someone better qualified will chime in to provide more info, or to correct me if I'm off beam.)  

I had the exact same response re: vitamins.  I was told to take iron  - that was about the only info I was given.  As I felt so off  I paid to see a private nutritionalist and she told me that whilst I should be making sure to eat a healthy and varied diet, I really ought to consider taking vitamins during the initial healing phase and she gave me a rather expensive multivitamin to take for the first few months.  I believe it was a real help.

I believe you may be from OZ - I don't know if vitamin/mineral testing is widely offered over there.  Here in the UK some doctors will test for D, B12, and folate, plus iron, but that's been about the extent of it in my experience.  And I had to push for some of those.  You may have more success if you go private.

To this day I still take vitamin D (they did discover a deficiency), B12 when my levels get low and magnesium, which helps against twitching and tingling I occasionally suffer from in my face and limbs.

I hope this is some help.

Cristiana

[Tonedown]

8 hours ago, cristiana said:

Hi Tone and welcome to the forum

As I understand it, villi increase the surface area of the small intestine.  The fewer or the more damaged the villi, the less nutrients we absorb.  Generally speaking, I've always been led to believe that if we have this issue, we will still keep absorbing some nutrients, just less.   (Hopefully someone better qualified will chime in to provide more info, or to correct me if I'm off beam.)  

I had the exact same response re: vitamins.  I was told to take iron  - that was about the only info I was given.  As I felt so off  I paid to see a private nutritionalist and she told me that whilst I should be making sure to eat a healthy and varied diet, I really ought to consider taking vitamins during the initial healing phase and she gave me a rather expensive multivitamin to take for the first few months.  I believe it was a real help.

I believe that you may be from OZ - I don't know if vitamin/mineral testing is widely offered over there.  Here in the UK some doctors will test for D, B12, and folate, plus iron, but that's been about the extent of it in my experience.  And I had to push for some of those.  You may have more success if you go private.

To this day I still take vitamin D (they did discover a deficiency), B12 when my levels get low and magnesium, which helps against twitching and tingling I occasionally suffer from in my face and limbs.

I hope this is some help.

Cristiana

Thanks christiana it does help, I will talk to my doctor about blood test.

I would think with the number of people that suffer from celiac that there would be a program specific to monitor the condition. As mentioned I take two multi vitamin a day. My diet consists 99% healthy. Can't remember the last time a had takeaway food of any sought. I concern myself with overdoing vitamins that have adverse effects.

Not knowing how much I am absorbing is my main concern, what long term affects could be.

Think I remember hearing they can test nutrient absorbtion from stool sample, will enqire.

Maybe one day when  celiac numbers increase, which I'm sure they will, there will be improved medical programs. I see so many people with bloated stomachs and wander if they could have celiacs and not know it.

Again thanks

Cheers Tony from oz.

 

[cristiana]

Don't mention it , Mate (I think that's what you say in Oz?!)

Spent a few months there myself years ago and put on a stone - what amazing food  you have over there.  I had a big stomach at the time - overindulgence being the cause methinks!

I've just done some reading for you and definitely ask to be screened for iron, folate and B12 deficiencies because apparently coeliac damage can affect the part of the small intestine where they are absorbed.  

[trents]

I would recommend taking a high potency B-complex. Don't worry about overdoing it on B-vitamins as they are water soluble and any excess will be excreted in your urine. 

Tonedown, what do you mean by saying you are following a "99% healthy diet"? Are you following a strict gluten free diet yet? If not, taking vitamins is no substitute for eliminating gluten from your diet to allow healing of the villi.

[Timorous]

Hi Tony,

definitely take a calcium supplement.

your calcium level is critical in order keep your teeth and bones strong and to protect you from osteoporosis etc. When the intestinal villi are compromised calcium absorption is affected. Also, if you have had coeliac disease undiagnosed for a lengthy period your calcium levels will be low. It takes a long time for your calcium levels to adjust. I take a good quality calcium supplement every day and always will. 
there is a scan which you can get to check your bone density/ calcium level. its called a DEXA scan. It’s done it a couple of minutes is non invasive and done as an out patient. I recommend every coeliac should have one as soon as their condition has been diagnosed. The condition of the bones will give some insight into how long they have had the condition undiagnosed.

good luck.

tim 

[trents]

53 minutes ago, Timorous said:

Hi Tony,

definitely take a calcium supplement.

your calcium level is critical in order keep your teeth and bones strong and to protect you from osteoporosis etc. When the intestinal villi are compromised calcium absorption is affected. Also, if you have had coeliac disease undiagnosed for a lengthy period your calcium levels will be low. It takes a long time for your calcium levels to adjust. I take a good quality calcium supplement every day and always will. 
there is a scan which you can get to check your bone density/ calcium level. its called a DEXA scan. It’s done it a couple of minutes is non invasive and done as an out patient. I recommend every coeliac should have one as soon as their condition has been diagnosed. The condition of the bones will give some insight into how long they have had the condition undiagnosed.

good luck.

tim 

Tim, your advice sounds good on the surface but may not be sound. First, serum calcium levels are seldom low with celiac disease because the body keeps them stable by leaching it from the bones. If serum calcium levels are low, it is usually an indicator of some other disease process, medications or vitamin D deficiency that blocks calcium uptake or binds with it. http://chemocare.com/chemotherapy/side-effects/hypocalcemia-low-calcium.aspx

Second, calcium supplementation can have the opposite of the intended effect by acting as a base (opposite of an acid) that neutralizes stomach acid which in turn reduces calcium absorption from our diet. It is wiser to make sure you're getting adequate calcium from natural sources that don't have such a neutralizing effect on stomach PH.

Doctors often prescribe calcium supplements because they don't know what else to do for osteoporosis and aren't willing to investigate the underlying cause.

Getting a DEXA scan is good advice, however.

[Posterboy]

Tony,

Trents has given you good advice.

I just wanted to say don't take Calcium by itself.  Make sure to take it with Magnesium.

When we get too low in Magnesium......our bodies "Calcify" with too much Calcium.

In the Kidney this will lead to Kidney Stones.

Here is a nice article about it.

Entitled "Effects of magnesium hydroxide in renal stone disease"

https://pubmed.ncbi.nlm.nih.gov/6764473/

I hope this is helpful but it is not medical advice.

Posterboy,

[Posterboy]

10 hours ago, Timorous said:

Hi Tony,

definitely take a calcium supplement.

your calcium level is critical in order keep your teeth and bones strong and to protect you from osteoporosis etc. When the intestinal villi are compromised calcium absorption is affected. Also, if you have had coeliac disease undiagnosed for a lengthy period your calcium levels will be low. It takes a long time for your calcium levels to adjust. I take a good quality calcium supplement every day and always will. 
there is a scan which you can get to check your bone density/ calcium level. its called a DEXA scan. It’s done it a couple of minutes is non invasive and done as an out patient. I recommend every coeliac should have one as soon as their condition has been diagnosed. The condition of the bones will give some insight into how long they have had the condition undiagnosed.

good luck.

tim 

Tim,

It is not just Calcium that is important for Bone health.

Boron and Vitamin K and Magnesium are also important.

Here is one on Vitamin K's role in Bone health

Entitled "Bone health and osteoporosis: the role of vitamin K and potential antagonism by anticoagulants"

https://pubmed.ncbi.nlm.nih.gov/17906277/

And this one Magnesium and  how it might protect someone against bone fractures.

Entitled "Magnesium may prevent bone fractures"

Where they note quoting

"Men with higher levels of magnesium were 44 percent less likely to have bone fractures. Additionally, over the 20-year follow-up period, none of the 22 men who had very high levels of magnesium had a bone fracture."

And while taking Calcium can be important for Bone health it is best taken in Combination with Magnesium if you want to increase your Bone health.

And Vitamin D and Vitamin K should be taken together as well for best results.

This Deanna Minich article explains how Vitamin and Minerals interact in the body well.

https://www.deannaminich.com/vitamin-and-mineral-interactions-the-complex-relationship-of-essential-nutrients/

Essentially to say it simply...

Nothing exists in a vacuum…..

Taking Calcium without Magnesium, Vitamin D and Vitamin K together can actually weaken bones….

You should never take Calcium without Magnesium…..to help keep your Bodies’ ratio’s in their proper proportions….or else organ Calcification can occur like Kidney Stones and Bone Spurs and that is definitely something you want to avoid!

I hope this is helpful but it is not medical advice.

Posterboy,

[AnonyousCda]

On 5/11/2021 at 1:17 AM, Tonedown said:

Celiacs have no or reduced villi, therefore if there are no villi lining your intestines how do we absorb the nutrients from our food.

My doctor said there are other ways, can someone explain how, if you could be specific that would be appreciated.

Also is there a test that can confirm what amount of nutrients are being absorbed. Should I be having regular blood tests for vitamin and mineral deficiencies.

 I take a one a day multi vitamin morning and night, how do I know how much of this tablet is being absorbed, for all I know it could be 5% or 80% huge difference.

Any information on these concerns would be of great value.

Most doctors don't seemed concerned, when I ask about taking multi vitamins they say it couldn't hurt, very disinterested attitude.

Are there specific test that are implemented for celiacs for nutrient absorbtion.

Cheers tony

Christina information is spot on. 

Good gut flora is key.  Berberine 1,500mg daily.  multi daily pill. That's great for normal people. People with celiac disease should up take those doses mg.  Vitamins, Minerals, Amino acids, Iodine, slippery elm, aloe vera and just no eating gluten.  Yes, this does mean increase costs for your health. 

[Posterboy]

On 5/12/2021 at 11:23 PM, AnonyousCda said:

Christina information is spot on. 

Good gut flora is key.  Berberine 1,500mg daily.  multi daily pill. That's great for normal people. People with celiac disease should up take those doses mg.  Vitamins, Minerals, Amino acids, Iodine, slippery elm, aloe vera and just no eating gluten.  Yes, this does mean increase costs for your health. 

AnonyousCda,

Try eating more fermented foods if you can tolerate them they can help restore good gut flora....without them it can be hard to synthesize the B-Vitamins our body, brain and  our GI tract needs to stay health.

Here is a nice article over viewing the role o fermented foods in good gut health and consequently brain health.

It is known as the "Gut Biome/Brain Axis".....if your 2nd brain your GI tract....is not healthy your first brain will never be healthy either. Fermented foods can help restore this healthy axis between your GI tract and your brain....

See this research about it

Entitled "Gut microbiota-derived vitamins - underrated powers of a multipotent ally in psychiatric health and disease" including B-Vitamins.

https://pubmed.ncbi.nlm.nih.gov/33428888/

quoting the abstract

"Despite the well-established roles of B-vitamins and their deficiencies in health and disease, there is growing evidence indicating a key role of those nutrients in functions of the central nervous system and in psychopathology. Clinical data indicate the substantial role of B-vitamins in various psychiatric disorders, including major depression, bipolar disorder, schizophrenia, autism, and dementia, including Alzheimer's and Parkinson's diseases. As enzymatic cofactors, B-vitamins are involved in many physiological processes such as the metabolism of glucose, fatty acids and amino acids, metabolism of tryptophan in the kynurenine pathway, homocysteine metabolism, synthesis and metabolism of various neurotransmitters and neurohormones including serotonin, dopamine, adrenaline, acetylcholine, GABA, glutamate, D-serine, glycine, histamine and melatonin. Those vitamins are highly involved in brain energetic metabolism and respiration at the cellular level. They have a broad range of anti-inflammatory, immunomodulatory, antioxidant and neuroprotective properties. Furthermore, some of those vitamins are involved in the regulation of permeability of the intestinal and blood-brain barriers. Despite the fact that a substantial amount of the above vitamins is acquired from various dietary sources, deficiencies are not uncommon, and it is estimated that micronutrient deficiencies affect about two billion people worldwide. The majority of gut-resident microbes and the broad range of bacteria available in fermented food, express genetic machinery enabling the synthesis and metabolism of B-vitamins and, consequently, intestinal microbiota and fermented food rich in probiotic bacteria are essential sources of B-vitamins for humans. All in all, there is growing evidence that intestinal bacteria-derived vitamins play a significant role in physiology and that dysregulation of the "microbiota-vitamins frontier" is related to various disorders. In this review, we will discuss the role of vitamins in mental health and explore the perspectives and potential of how gut microbiota-derived vitamins could contribute to mental health and psychiatric treatment."

So you can see how when this Gut Biome Axis gets out of alignment serious health issues are sure to follow like mental and GI issues...from "Bad Bugs"......think like SIBO etc.

Here is another one that studies these connnections

Entitled "Gut microbiota, kynurenine pathway and mental disorders - Review"

https://pubmed.ncbi.nlm.nih.gov/33203568/

Where they say quoting

"Available evidence suggests that toxicity of kynurenine metabolites may be reduced by adjunction of probiotics which can affect proinflammatory cytokines. Due to their potential for modulation of the kynurenine pathway, gut microbiota pose an interesting target for future therapies."

We see this in work/practice in Celiac's because Tryptophan a metabolite of the Kynurenine pathway as precursor to Niacin helps  regulate Tight Junctions in the GI tract leading to Leaky Gut.

See this research entitled

"Dietary Tryptophan Enhanced the Expression of Tight Junction Protein ZO-1 in Intestine: Trp enhanced tight junction protein ZO-1…"

https://www.researchgate.net/publication/312962348_Dietary_Tryptophan_Enhanced_the_Expression_of_Tight_Junction_Protein_ZO-1_in_Intestine_Trp_enhanced_tight_junction_protein_ZO-1

Which is exactly what the latest research on this topic confirms that Tryptophan can accelerate intestinal healing in Celiac's.

See this 2020 research about it.

https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx

Showing a Tryptophan deficiency in Celiac's IMHO can lead to Leaky Gut issues...

This similar effect/relationship to Tryptophan and Gut health has also been studied in UC and Chrons and IBS as well.

I hope this is helpful but it is not medical advice.

Posterboy,

[Wheatwacked]

One day I found a website that will create a meal plan based on your nutritional goal. I requested a plan for 100% RDA Potassium. They came back with a plan that looked very good. The note at the end of the page: "This plan supplies almost half of the daily requirement for potassium." In the end I made a spreadsheet that uses the US nutritional database and my food log to calculate how much of each essential I was actually eating and used it to determine which vitamins and minerals to supplement. If you are eating pickles and such made with vinegar (sometimes referred to as Quick Pickling) as is most of the commercial pickled food in the U.S.; it simply has minimal nutritional value. Vinegar is an antibiotic.

[trents]

But do RDA's take into account the inhibited nutrient absorption typically experienced by celiacs?

[Timorous]

On 5/12/2021 at 2:42 PM, trents said:

Tim, your advice sounds good on the surface but may not be sound. First, serum calcium levels are seldom low with celiac disease because the body keeps them stable by leaching it from the bones. If serum calcium levels are low, it is usually an indicator of some other disease process, medications or vitamin D deficiency that blocks calcium uptake or binds with it. http://chemocare.com/chemotherapy/side-effects/hypocalcemia-low-calcium.aspx

Second, calcium supplementation can have the opposite of the intended effect by acting as a base (opposite of an acid) that neutralizes stomach acid which in turn reduces calcium absorption from our diet. It is wiser to make sure you're getting adequate calcium from natural sources that don't have such a neutralizing effect on stomach PH.

Doctors often prescribe calcium supplements because they don't know what else to do for osteoporosis and aren't willing to investigate the underlying cause.

Getting a DEXA scan is good advice, however.

Trents, thanks for your interesting and informative comments on my reply to Tony's post.

I agree it's much better to obtain ones calcium from natural dietary sources however with the poor absorption from intestinal villious atrophy surely one needs to take a supplement in some form to help prevent further leeching of calcium from the bones.

When I was finally diagnosed 6 years ago at age 54  I had a dexa scan which showed me to be Osteopenic. This situation had occurred i imagine from poor calcium uptake in the period leading up to my diagnosis due to poor nutritional absorption. 

Obviously I would not want this to progress to Osteoporosis so I immediately started taking calcium supplements to boost my uptake.

I take a calcium supplement daily (with magnesium and vit K) My supplement is derived from a natural source (seaweed) which also apparently has a better uptake. I also have a bottle of 'Good State' Ionic calcium with magnesium and boron which I also take regularly.  I flip between these two products to try and keep my body's calcium optimum and prevent me from slipping into Osteoporosis. Your comments have made me question whether I am doing the right thing.

As I am now 6 years on from my initial diagnosis and otherwise healthy and fit etc. I imagine my villi are probably healed up now and absorption from my diet may be enough. I plan to get another dexa scan asap to check my bone density.

Thanks very much for your comments and I would appreciate anything further you could  add in order to give me the optimum chance of not slipping into Osteoporosis.

Best wishes

Tim

[cristiana]

58 minutes ago, Timorous said:

As I am now 6 years on from my initial diagnosis and otherwise healthy and fit etc. I imagine my villi are probably healed up now and absorption from my diet may be enough. I plan to get another dexa scan asap to check my bone density.

Thanks very much for your comments and I would appreciate anything further you could  add in order to give me the optimum chance of not slipping into Osteoporosis.

Hi Tim

Fellow Brit here.  

Thank you for your posts - I've been very interested to read the exchanges between you and Trents.  My mum had osteoporosis (not sure if she was a coeliac) so I'm trying to be careful, too.

I've been offered two Dexa scans since my diagnosis (2013).  I guess it varies enormously between different Health Authority areas and consultants, but I think I'm on a three yearly programme.  When you have your next scan it might pay you to find out if you have slipped off the NHS radar because I think I'm on some sort of automatic recall? 

Care seems to vary so much.  A coeliac friend of mine, diagnosed in the same town and not long before me, hasn't seen a consultant for an annual review since her initial diagnosis.  I had to tell her that also, as a coeliac, she was entitled to a Covid jab being in the category 6 priority group.

Mindful of my family history, perhaps, my consultant gastroenterologist has in the last year put me onto Fultium D supplements - he noticed my D was low (about 40).   Since then I notice that at our reviews he always asks for a vitamin D reading and also calcium in the blood test.   Have you been offered theses tests?

C.

[Timorous]

44 minutes ago, cristiana said:

Hi Tim

Fellow Brit here.  

Thank you for your posts - I've been very interested to read the exchanges between you and Trents.  My mum had osteoporosis (not sure if she was a coeliac) so I'm trying to be careful, too.

I've been offered two Dexa scans since my diagnosis (2013).  I guess it varies enormously between different Health Authority areas and consultants, but I think I'm on a three yearly programme.  When you have your next scan it might pay you to find out if you have slipped off the NHS radar because I think I'm on some sort of automatic recall? 

Care seems to vary so much.  A coeliac friend of mine, diagnosed in the same town and not long before me, hasn't seen a consultant for an annual review since her initial diagnosis.  I had to tell her that also, as a coeliac, she was entitled to a Covid jab being in the category 6 priority group.

Mindful of my family history, perhaps, my consultant gastroenterologist has in the last year put me onto Fultium D supplements - he noticed my D was low (about 40).   Since then I notice that at our reviews he always asks for a vitamin D reading and also calcium in the blood test.   Have you been offered theses tests?

C.

Hi Cristiana,

Thanks for your message.

Yes, as you say, care programmes for Ceoliacs do seem to vary enormously as do GP's knowledge and interest in celiac disease. Although I think this is changing for the better nowadays, with much more awareness, even since my diagnosis in 2015 I've noticed it has moved forward alot.

You seem to have your bases well covered. I've never even seen a consultant gastroenterologist! although I've had one further Dexa scan since the initial one immediately after diagnosis. And thst was o ly after I'd requested it!

I will now speak to my GP for sure and get something booked up and also speak to them about a regular programme of checks. I did have my D level checked with blood tests a while ago and it was fine. I have been taking a d vit supplement for a few years now so that probably sorted that. 

I generally fell pretty okay. My main concern now is ensuring the best possible defence against osteoporosis in the future. There are many different calcium supplements out there, some much better (and more expensive it seems) than others. The calcium supplement I have been on for a while now is from Germany it's called 'Better Foods' marine calcium. And I also get bottle of liquid ionic calcium with magnesium. Both available on Amazon. 

Good luck going forward Christiana.

Best,

Tim

[trents]

Tim, supplement your calcium with vitamin D3 and magnesium. These are all important for bone health.

Most of our bone density is laid down in our youth. I'm not sure leaching losses can be made up once we get in our middle years but the leaching can be arrested. How old are you now?

Edited May 15, 2021 by trents

[Posterboy]

3 hours ago, Timorous said:

Thanks very much for your comments and I would appreciate anything further you could  add in order to give me the optimum chance of not slipping into Osteoporosis.

Tim,

Try you some Boron.

Here is couple articles on it.

http://www.magnesiumsupplementbenefits.com/boron.php

And this one

Entitled ":The Physiological Role of Boron on Health"

https://pubmed.ncbi.nlm.nih.gov/29546541/

It does this by regulation the natural ratio of Calcium/Magnesium in the body causing you to decrease your Calcium excretion through the kidneys.

Also so this thread.

It is where me and wheatwacked talked in detail how managing for Magnesium helps control your electrolyte balance in the body. Most of the discussion on Magnesium forms is near the end of the thread.

Once we get low in Magnesium....we get over run with Calcium leading to muscle cramps.

The reason for this is.....Magnesium releases the muscle and Calcium constricts the muscle and why "Charlie Horses" happen when we get low in Magnesium.....the excess Calcium constricts the muscle and there is not enough Magnesium to naturally relax the muscle anymore.

And why you should always take Magnesium with Calcium.....but you can take Magnesium without Calcium because the body controls for Magnesium......thus restoring your natural Calcium/Magnesium (IE Electrolyte Balance) by taking Magnesium.

The biggest problem is finding a highly available Magnesium supplement like Magnesium Citrate or Magnesium Glycinate.

See this thread that explains why the form of Magnesium matters and which is the best Magnesium supplement form is the best to take.

I hope this is helpful but it is not medical advice.

Posterboy,

[Posterboy]

On 5/11/2021 at 3:17 AM, Tonedown said:

I take a one a day multi vitamin morning and night, how do I know how much of this tablet is being absorbed, for all I know it could be 5% or 80% huge difference.

Tony,

Our body won't/can't absorb what it can't dissolve......it is one of the reasons Celiac's get low in Iron often....

When our Stomach Acid gets too low it cant' dissolve Iron and other minerals like Zinc and Magnesium and get low in them.

This has been proven to be true because Iron deficiency Anemia can be cause strictly because our Stomach Acid is not strong enough to dissolve.

See this article about it...

Entitled "Is achlorhydria a cause of iron deficiency anemia?" and the resounding answer is YES!

https://pubmed.ncbi.nlm.nih.gov/25994564/

Concerning your original question.....the form of your Vitamin matters as well as does it Co-factor.

And why B-Vitamins are important because they (B-Vitamins) drive our Enzymic pathways as Co-Factors they help us absorb our other Nutrients.

See this research that shows how being low in Niacin aka Vitamin B3 affects our bodies ability to absorb Iron and Zinc (common nutrients for Celiac's to be low in BTW)

Entitled "Effect of nicotinic acid on zinc and iron metabolism"

https://pubmed.ncbi.nlm.nih.gov/9353874/

This is true for Vitamin B1 (Thiamine) and Vitamin B2 (Riboflavin) as well!

I also recommend this Seattle PI article that goes into great detail between Active and Passive absorption....and why it matters!

https://education.seattlepi.com/food-nutrients-bloodstream-osmosis-4574.html

Here is a nice Posterboy blog posts that explains the many Vitamin and Minerals a Celiac patient is often low in and how they are going undiagnosed at diagnosis because there is no "Overt Symptom's" or at least Vitamin and Mineral deficiencies are NOT being recognized today for what they are....Symptom's of the many faces of Celiac disease.

I (the Posterboy) wrote about how Lupus, Pellagra and Beri Beri often overlap in Celiac disease but goes undiagnosed or misdiagnosed as Celiac disease or UC or IBS or SIBO etc...

Maybe it will help you to read it.

Here is the research that shows how Low Tryptophan levels leads to the development of IBS.

Entitled "Tryptophan: ‘essential’ for the pathogenesis of irritable bowel syndrome?"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266036/

This research is 7+ years old and because doctor's don't study nutrition.....they still don't know understand how stress and poor nutrition can be the trigger for IBS and other GI problems!

From my previous post we know that this is true in Celiac disease as well.

Tryptophan helps accelerate intestinal healing in Celiac's

https://www.news-medical.net/news/20201022/Tryptophan-found-in-turkeys-can-accelerate-intestinal-healing-in-people-with-celiac-disease.aspx

These are connected and related conditions tied to poor nutrition and why Celiac's present with multiple Vitamin and Mineral deficiencies especially Zinc, Iron and the B-Vitamins like Thiamine (B1), Riboflavin (B2), Niacin (B3), Folic Acid, B6 and B12 etc.

I hope this is helpful but it not medical advice.

Posterboy,

[Timorous]

9 hours ago, trents said:

Tim, supplement your calcium with vitamin D3 and magnesium. These are all important for bone health.

Most of our bone density is laid down in our youth. I'm not sure leaching losses can be made up once we get in our middle years but the leaching can be arrested. How old are you now?

Hi Trents,

I'm 62 now. Initial diagnosis was 6 years ago.

I do currently supplement my calcium intake with magnesium and D3.

I also take an ionic liquid calcium from the brand Good State which has some Boron added as well as magnesium chloride. Although I'm currently having trouble getting it shipped to the UK from the US. 

If as you say, I cannot improve my bone density with optimum nutrition then I suppose my goal would then be to arrest the loss and try to prevent it getting any worse. 

Thanks for your helpful advice and comments, much appreciated.

Best,

Tim

[Russ H]

Are you exercising? You need to regularly stress the skeleton to maintain and increase bone density. Regular fast walking, running or weight training. Cycling is no good unless it is rough mountain biking. Join a gym or buy some weights and perform exercises like squats to stress the spine and femoral neck. Absorbing sufficient calcium will have no effect if you don't stress the skeleton. Also, avoid alcohol. Generally, with good diet and exercise you can increase bone density even when older.

[Timorous]

12 minutes ago, Russ314 said:

Are you exercising? You need to regularly stress the skeleton to maintain and increase bone density. Regular fast walking, running or weight training. Cycling is no good unless it is rough mountain biking. Join a gym or buy some weights and perform exercises like squats to stress the spine and femoral neck. Absorbing sufficient calcium will have no effect if you don't stress the skeleton. Also, avoid alcohol. Generally, with good diet and exercise you can increase bone density even when older.

Russ314, I do excersise regularly. I am on my feet most days for work and I walk a lot when I’m not working. I also do sit ups me press ups every other day combined with upper body excersise with weights. Bad knees from years of playing squash won’t allow me to do squats though. Alcohol intake is very low. I am 5’9’ and weigh 160 pounds. Diet is good and I’m very careful to avoid the Nasty G. 

youve given me heart to suggest I can still improve my BD even at my age. I truly hope so.

thanks,Tim

[Russ H]

There are studies showing improvement in bone density for people in their 80s. Sounds like you are doing the right stuff. My knees are shot from years of running with poor form. Even if you can't squat, can you manage things like star jumps or stair climbing? Also, low testosterone is a risk factor for osteoporosis, and that can be corrected.

[Posterboy]

1 hour ago, Timorous said:

I also take an ionic liquid calcium from the brand Good State which has some Boron added as well as magnesium chloride. Although I'm currently having trouble getting it shipped to the UK from the US. 

Tim,

Don't under estimate how Magnesium can help with your pain from Arthritis.

Add a Magnesium Glycinate or Magnesium Citrate can help your Arthritis pain. With meals for best effect...

Here is a couple good links about it.

Entitled "Magnesium Deficiency Could Be Causing Your Joint Pain"

https://www.drnewtons.com/blog/magnesium-deficiency-could-be-causing-your-joint-pain-2/

And this one which is more technical but helpful if you want to know the science behind it!

Entitled "The role of magnesium in pain"

https://www.ncbi.nlm.nih.gov/books/NBK507245/

I had early onset Arthritis in my late 20's and joint pain and damaged reversed after taking Magnesium and Niacinamide (the non-flushing form) of Niacin aka Vitamin B3.

I will only mention to research William Kaufman to find out how Niacinamide was used 50+ years ago to treat "bed bound" Arthritis patients who had full joint mobility after a year on Niacinamide.

Frequency is the key here...

But after medicines become popular in the late 50s and 60s sadly Vitamins and Minerals fell out of favor....and this knowledge was lost.....to the next generation of doctors who don't believe Vitamins and Minerals can help us today, sadly!

Here is two articles about it...

http://www.doctoryourself.com/kaufman5.html

http://www.doctoryourself.com/kaufman3.html

I have also written a Posterboy blog post on best how to take Niacinamide and a B-Complex.

Maybe it will help you to read it!

Any one of these two blog posts might help if not just search for the Posterboy on Celiac.com and many threads will come up about either Magnesium or Niacinamide.

Good luck on your continued journey both Niaciamide and Magnesium helped my early onset Arthritis and I happy to say my  joints  haven't hurt in years!

I still take Magnesium to this day it helped me so much! PTL

IF you haven't read it yet....go back and read the thread on how Magnesium helped my depression issues too! (the end of it especially) about why the form of Magnesium matter.....Glycinates and Citrates (with Meals) are the best forms of Magnesium to take.

Linked here again for your convenenince

Magnesium helps so many things one doctor wrote a book about it calling it the "Magnesium Miracle"....

Because our bodies "Waste Away" without it!

I like to say as Chlorophyll is to the plant.....so is Magnesium is too the Animal!

I hope this is helpful but it is not medical advice.

2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

[Posterboy]

Tim,

I was rushing and forgot to include this recent research on Niacinamide proving IMHO that Niaciamide as was as the Magnesium will help your joint pain...

Entitled "The effect of niacinamide on osteoarthritis: a pilot study"

https://pubmed.ncbi.nlm.nih.gov/8841834/

Both Magnesium and Niacinamide down regulate inflammation in the body and why they can help joint pain.

Also taking Lysine might help as well and taking Epsom Salts (a popular and easy to find) Magnesium Supplement you can put in your bath......should help as well!

Be careful to never use Epsom Salts alone.....because you can fall asleep in your bath from the relaxing effects of Magnesium......and you don't want to kill yourself in the process! (Obviously)

Here is a quick google search on Epsom Salts named after a town in Jolly old England where it first became popular.

http://www.epsomsaltsoakbath.com/health-benefits-of-magnesium-sulfate/

Again I hope this his helpful but it is not medical advice.

Posterboy,