Could this be the underlying cause of our allergies

[Jackie Garrett]

I didn’t realise after all these years of putting up with so many different symptoms and I never made the connection with Milk until this last year, I am now well as long as I stay off of all Dairy (I will say though, it’s likes saying goodbye to an old friend) but it’s how I improved my health, is there a connection with Celiac Disease and milk intolerance ??  below is a very interesting article I came across recently.

https://pmj.bmj.com/content/81/953/167/

[trents]

Jackie, many people with celiac disease cannot tolerate either the milk protein casein or the sugar (lactose) in milk. For some, casein can cause villi blunting like celiac disease does.

[Jackie Garrett]

Does milk intolerance bring on Celiac Disease ???? many people do not know that milk is causing a lot of their symptoms as in my case i just didn’t connect that it could be the milk, it was only when I stopped consuming Dairy that my health has improved. Lactose is in a lot of Medication which is why when I was on it became worse. Milk has high amounts of Histamine and once we get histamine overload we begin I believe to get our health problems and that includes allergies ( my opinion of course) so many of the population can not tolerate milk don’t you think that is telling us something ?

[trents]

No. Milk intolerance does not bring on celiac disease but celiac disease can contribute to milk intolerance. Many celiacs report that their milk intolerance disappeared after they went on a gluten free diet and found healing in their gut.

Milk intolerance can exist apart from celiac disease and many people who are milk intolerant do not have celiac disease or gluten intolerance. 

Jackie, have you actually been tested for and diagnosed as having celiac disease? Are you sure you have a problem with gluten? As I think back over your posts it makes me wonder if your real problem is not gluten but dairy.

Edited September 7, 2021 by trents

[Jackie Garrett]

8 minutes ago, trents said:

No. Milk intolerance does not bring on celiac disease but celiac disease can contribute to milk intolerance. Many celiacs report that their milk intolerance disappeared after they went on a gluten free diet and found healing in their gut.

Milk intolerance can exist apart from celiac disease and many people who are milk intolerant do not have celiac disease or gluten intolerance. 

Jackie, have you actually been tested for and diagnosed as having celiac disease? Are you sure you have a problem with gluten? As I think back over your posts it makes me wonder if your real problem is not gluten but dairy.

No, I don’t have a problem with Gluten but I believe Dairy intolerance brings on many different conditions not just allergies and if someone who has Gluten intolerance  may find they improve their condition by avoiding Dairy, who knows they maybe able to tolerate Gluten again, you have to look at all angles, in some cases it may be the case and some not. It really must be looked into.

[trents]

Celiac disease has a genetic base. I don't know that dairy intolerance does.

[Jackie Garrett]

36 minutes ago, trents said:

Celiac disease has a genetic base. I don't know that dairy intolerance does.

I’m not sure, i believe it could be, one of my sons is sensitive to milk too, and I didn’t pick up on that for years as who questions milk it is meant to be good for us, is it the Histamine/ Lactose/Casein in the milk causing the problems? it needs to be Scientifically looked at. All I know is how I got well when I came off the milk and realised the milk that I was ingesting was causing all my health issues, and wondered if this could be a possibility for some Gluten intolerant people also other people with different health issues, believe me I wish it wasn’t milk.

[trents]

I agree that more scientific research should be done in this area. I really doubt however that going off dairy will cure celiac disease or gluten sensitivity. I think you got the chicken or the egg question bass akwards on that issue.

[Jackie Garrett]

2 minutes ago, trents said:

I agree that more scientific research should be done in this area. I really doubt however that going off dairy will cure celiac disease or gluten sensitivity. I think you got the chicken or the egg question bass akwards on that issue.

One day we will have the answers, it’s down to us with allergies and other symptoms avoiding different things in our diet and how we heal from avoiding these things,  will hopefully lead to the Scientists looking into what we are consuming and how safe it really is, but Lactose is in a lot of medication/ food preservatives/ alcohol  and that is worth a lot of money to these industries.

[fllstuart77]

my Dr said celiacs cant tolerate Milk..    maybe in small amounts

[Jackie Garrett]

3 minutes ago, fllstuart77 said:

my Dr said celiacs cant tolerate Milk..    maybe in small amounts

I was tolerating it, but it was only when I came off of it that my health improved, I had so many symptoms I just didn’t connect it to milk, it was the last thing I thought could be causing all my health issues.

[trents]

5 hours ago, fllstuart77 said:

my Dr said celiacs cant tolerate Milk..    maybe in small amounts

It's not uncommon for celiacs to not be dairy intolerant but far from universal. Many celiacs have no problem with milk/dairy.

[Jackie Garrett]

41 minutes ago, trents said:

It's not uncommon for celiacs to not be dairy intolerant but far from universal. Many celiacs have no problem with milk/dairy.

Maybe they are and don’t realise, like me, I just didn’t suspect milk and carried on for years, I just thought I was unlucky to have all these symptoms  I never once put it down to milk that’s why I mentioned is it the underlying cause that is not getting picked up on, will people be able to tolerate Gluten and other foods again when Dairy is avoided. It is higher in Histamine, and I believe too much histamine in our bodies makes it malfunction.

[trents]

When I say "have no problem with milk/dairy" I mean they are asymptomatic, whereas by your own testimony "I just thought I was unlucky to have all these symptoms."

[AlwaysLearning]

In response to the original post title, I do think there is a need to clarify between allergies and autoimmune diseases. For each, a different type of T cell is involved.

The link to the study posted appears to describe an autoimmune reaction to the proteins in milk, which would be a good parallel to the reactions that celiac's have to the gluten protein. And yes, if you are still looking for a diagnosis, considering dairy as a possible cause of problems the same as one would consider gluten as a cause for problems is logical. 

Autoimmune diseases are an immune reaction where tissue destruction occurs as the body attacks itself. The reaction might be triggered by what is seen as a foreign invader, but the reaction is misdirected, attacking your own body instead of the invader. For autoimmune reactions triggered by food, you can generally expect digestive issues though attacks can really occur anywhere in your body and take on a multitude of forms.

Allergies are an immune reaction to what is perceived as a foreign invader, but the reaction isn't to attack, rather to expel the invader, the same as the body might work to expel a virus or a parasite. The histamines are produced by your body and fit into receptors that trigger additional reactions, such as to produce mucus, to cough or to sneeze, to make your eyes water, or to make your skin itch. Even the more-extreme reactions of anaphylaxis is still the same reaction, just exaggerated, to try to expel.

And dairy might have two different ways to trigger allergic reactions. If you truly are allergic to dairy, then your body will produce histamines as a reaction. But foods can also contain histamines. Though dairy starts out low in histamines, the fermentation process for something like yoghurt can result in it having higher histamine content. 

The more histamines you have built up in your system already, the more likely you are to have an allergic-style reaction to foods that are high in histamines. You're not allergic to the food, you're just overloaded on histamines. If you eat a lot of avocados and nuts on a regular basis, you probably are familiar with the reaction of getting a little sneezy after meals.

But lactose intolerance, an autoimmune reaction, is not the same as a dairy allergy, which is an allergic reaction. I looked it up, but I did not get an answer on whether or not it is possible to be both lactose intolerant and allergic to dairy at the same time. But the University of Chicago says it is possible to have both celiac and have a wheat allergy at the same time.

Also note that if your thyroid is overactive, your body will be overproducing histamines no matter what you eat, and you could have what seem like allergic reactions to almost anything. Severe hyperthyroidism can mean even a light scratch across your skin can cause welts to rise (dermatographia). You might break out in hives just by washing your hands or going outside in cold weather. 

But there can be overlap. For example, if an autoimmune disease causes your body to attack your thyroid causing tissue damage that results in hyperthyroidism (overactive thyroid), the result would be an over production of histamines resulting in an allergic-style reactions. It is no wonder so many have difficulty getting diagnosis.

But I think many of us who have celiac have used the term allergy to describe our condition at one time or another. Even though we know we're using the term incorrectly, it can be easier to just say you have food allergies than to try to explain something like celiac to the uninitiated, especially in a world where many believe that gluten free is just a crazy fad.

But I hope this explanation helps some future reader understand the crazy stuff their body is doing.

[notme]

the enzyme your body uses to digest milk/lactose is made on the tips of your villi.  if your villi are damaged, you won't be producing enough to digest it until your villi are healed.  many celiacs (me included) have to skip dairy/milk for some time when they are first diagnosed.  after about 6 months, i was able to add dairy/milk back into my diet (cheese is life lolz) because my body was making the enzyme again.   my brother was 'lactose intolerant' until i was dx'd with celiac, then (since we have the same mom & dad) he researched celiac and quit gluten.   after years of thinking he would never be able to eat real dairy products, he can now eat all that he wishes to eat/drink.

jackie garrett - do you have celiac disease?

[Scott Adams]

4 hours ago, Jackie Garrett said:

Maybe they are and don’t realise, like me, I just didn’t suspect milk and carried on for years, I just thought I was unlucky to have all these symptoms  I never once put it down to milk that’s why I mentioned is it the underlying cause that is not getting picked up on, will people be able to tolerate Gluten and other foods again when Dairy is avoided. It is higher in Histamine, and I believe too much histamine in our bodies makes it malfunction.

Are you trying to imply that casein intolerance could be the underlying cause of celiac disease...or gluten sensitivity, and that quitting milk might allow either to eat gluten again? I hope not, because that is just incorrect. Actually there is far more evidence that the opposite is true, that celiac disease can cause, sometimes temporarily, casein intolerance. I've not seen specific research on non-celiac gluten sensitivity and casein intolerance, but suspect that this may also be the case for some. Please clarify what you mean here, because your statement goes against most of the science we've published on the topic.

[Jackie Garrett]

30 minutes ago, notme! said:

the enzyme your body uses to digest milk/lactose is made on the tips of your villi.  if your villi are damaged, you won't be producing enough to digest it until your villi are healed.  many celiacs (me included) have to skip dairy/milk for some time when they are first diagnosed.  after about 6 months, i was able to add dairy/milk back into my diet (cheese is life lolz) because my body was making the enzyme again.   my brother was 'lactose intolerant' until i was dx'd with celiac, then (since we have the same mom & dad) he researched celiac and quit gluten.   after years of thinking he would never be able to eat real dairy products, he can now eat all that he wishes to eat/drink.

jackie garrett - do you have celiac disease?

No, thankfully I don’t. Well I’m hoping one day I can return to eating Dairy again, at the moment I feel well and I don’t want to jeopardise that, I’m hoping that my Dao enzyme will fire up again, and when it does I will be mindful of how much histamine from food/ drinks I ingest, as it seems I think that is becoming clearer, with today’s health problems. I know how I have got well by avoiding Dairy, i fully believe it’s the accumulation of the Histamine/Lactose from Dairy with    Our allergies.

[Kate333]

21 minutes ago, notme! said:

the enzyme your body uses to digest milk/lactose is made on the tips of your villi.  if your villi are damaged, you won't be producing enough to digest it until your villi are healed.  many celiacs (me included) have to skip dairy/milk for some time when they are first diagnosed.  after about 6 months, i was able to add dairy/milk back into my diet (cheese is life lolz) because my body was making the enzyme again.   my brother was 'lactose intolerant' until i was dx'd with celiac, then (since we have the same mom & dad) he researched celiac and quit gluten.   after years of thinking he would never be able to eat real dairy products, he can now eat all that he wishes to eat/drink.

jackie garrett - do you have celiac disease?

OMG!  I REALLY MISS goat cheese!!!🐐  I seem to be able to tolerate very small bites of hard cheese, like Kraft's 0% lactose grated parmesan, but I only ate it after first taking a Lactaid digestive enzyme tablet.  But I noticed if I ate too much at one time, my gut would throw a  💩 fit the next morning.🤣

Unfortunately, over the past year, I gave in to post-Covid emotional "comfort eating" (LOTS of ice cream & cheese), so my gut likely never got a chance to properly heal on the gluten-free diet.  Not only that, but it also added 10 unwanted lbs to my belly...   😱😣

I didn't realize until recently that eating dairy could actually harm the gut and/or hamper proper gluten-free healing.  So I feel like I have essentially, inadvertently🧨 torpedoed my year+ long hopes to quickly heal on a strict gluten-free diet.  Alas, now, I have FINALLY gone cold-🦃 and given up my 2 beloved reasons for existence:  dairy & sugar.😢   

[Jackie Garrett]

21 minutes ago, Scott Adams said:

Are you trying to imply that casein intolerance could be the underlying cause of celiac disease...or gluten sensitivity, and that quitting milk might allow either to eat gluten again? I hope not, because that is just incorrect. Actually there is far more evidence that the opposite is true, that celiac disease can cause, sometimes temporarily, casein intolerance. I've not seen specific research on non-celiac gluten sensitivity and casein intolerance, but suspect that this may also be the case for some. Please clarify what you mean here, because your statement goes against most of the science we've published on the topic.

Because I was tolerating milk I didn’t know that it was causing my problems it was only when I came off of it I started to feel well, I didn’t know it was a problem until I came off it, and that’s when I realised it was, my body started to heal, so there be a may be a connection with some Celiacs.

[Wheatwacked]

Try 100% Pasture Fed milk. The feed and the additives others , including organic farmers, give the cows to increase milk fat and quantity, completely changes the lipid and protein profile. Pasture fed has more omega 3. Plus it tastes better, like the milk I drank as a kid. Home Fermented foods will increase your lactase levels if you have lactose intolerance. We need the lactase produced by good bacteria to supplement our denovo lactase production.

[Jackie Garrett]

1 hour ago, Wheatwacked said:

Try 100% Pasture Fed milk. The feed and the additives others , including organic farmers, give the cows to increase milk fat and quantity, completely changes the lipid and protein profile. Pasture fed has more omega 3. Plus it tastes better, like the milk I drank as a kid. Home Fermented foods will increase your lactase levels if you have lactose intolerance. We need the lactase produced by good bacteria to supplement our denovo lactase production.

I wonder if there is less Histamine in that milk ?  With me i react not just to milk but Lactic acid that’s used in preservatives in food/ drinks and medication, it’s in so much no wonder the body is reacting to it, and on some of the labelling it can be written as natural flavouring, and it’s not natural, if it was human milk it would be natural. Maybe that’s why our bodies are being thrown into chaos. Maybe our immune is going on overdrive  when this foreign histamine is consumed it doesn’t feel safe, our own Histamine protects us, so when we have too much does it sense danger and hence gives us all these different problems, not just allergies but other illness too. I really think this is what happens, my opinion of course. I just think it makes common sense. Thank you Wheatwacked for your comment.

[Jackie Garrett]

9 hours ago, Kate333 said:

OMG!  I REALLY MISS goat cheese!!!🐐  I seem to be able to tolerate very small bites of hard cheese, like Kraft's 0% lactose grated parmesan, but I only ate it after first taking a Lactaid digestive enzyme tablet.  But I noticed if I ate too much at one time, my gut would throw a  💩 fit the next morning.🤣

Unfortunately, over the past year, I gave in to post-Covid emotional "comfort eating" (LOTS of ice cream & cheese), so my gut likely never got a chance to properly heal on the gluten-free diet.  Not only that, but it also added 10 unwanted lbs to my belly...   😱😣

I didn't realize until recently that eating dairy could actually harm the gut and/or hamper proper gluten-free healing.  So I feel like I have essentially, inadvertently🧨 torpedoed my year+ long hopes to quickly heal on a strict gluten-free diet.  Alas, now, I have FINALLY gone cold-🦃 and given up my 2 beloved reasons for existence:  dairy & sugar.😢   

If your still getting problems, watch out for Lactic acid it’s used in so much and if only a minimal amount is used they don’t have to write on the ingredients, it’s used as a preservative very often, if I have it it makes me have symptoms. I want to see it written on everything, better still don’t use it at all, find another option. I hope you get well Kate.

[Jackie Garrett]

9 hours ago, Jackie Garrett said:

Because I was tolerating milk I didn’t know that it was causing my problems it was only when I came off of it I started to feel well, I didn’t know it was a problem until I came off it, and that’s when I realised it was, my body started to heal, so there be a may be a connection with some Celiacs.

Sorry Scott, I didn’t finish answering your question yes if that’s what the science says, I am going against it, have they looked into the effects of a foreign histamine from an animal going into our body and what implications that has on our immune system. (That makes me sound like a Vegan and I am not, I eat meat) it is a different species though, so hence the histamine not natural to our system. What I do know is how I got myself well and wondered if this could be the reason why so many of us are getting ill today, why can’t a lot of the population tolerate it, do some of us not know what could be causing their symptom, like I didn’t realise up until this last year. I don’t know what research is being done on this subject, it’s working for me. I loved Dairy I miss it terribly,  maybe if they can remove the histamine/ Lactose in it it will all be ok for me to consume again. 

[trents]

9 minutes ago, Jackie Garrett said:

Sorry Scott, I didn’t finish answering your question yes if that’s what the science says, I am going against it, have they looked into the effects of a foreign histamine from an animal going into our body and what implications that has on our immune system. (That makes me sound like a Vegan and I am not, I eat meat) it is a different species though, so hence the histamine not natural to our system. What I do know is how I got myself well and wondered if this could be the reason why so many of us are getting ill today, why can’t a lot of the population tolerate it, do some of us not know what could be causing their symptom, like I didn’t realise up until this last year. I don’t know what research is being done on this subject, it’s working for me. I loved Dairy I miss it terribly,  maybe if they can remove the histamine/ Lactose in it it will all be ok for me to consume again. 

Jackie, is your problem with dairy due to histamines or lactose or both? Many foods can trigger high histamine levels. Have you tried cutting those out too?

Edited September 9, 2021 by trents