Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amy, I Thought You Were My Friend!


penguin

Glutened by Amy's!  

35 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

penguin Community Regular

I know there've been posts about Amy's and glutening, and I remember someone calling the company about it, how did that turn out?

I've tried 3 things by Amy's, two were near the beginning, and one was today. There was one in my freezer and I was too lazy to make anything else for lunch. I was definitely glutened, and I really know that now that I know exactly what gluten does to me. The one today was the Santa Fe Enchilada Bowl.

Now I can't feel my face and I spent 10 minutes in the bathroom at work :ph34r:

And I'm stoned again :wacko:

Who needs Amsterdam?

Is there anyone that hasn't had problems? I don't have any other intolerances or allergies, except for tree nuts (and that's oral allergy syndrome anyway). What should I do, other than not eat them anymore? Does the company really care?

I hate that products labelled gluten-free really mean "not as likely to have gluten" :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Chelsea--Sorry you're feeling so bad today :( . It's really maddening to be going along just fine and then--bam! I don't have any input on the Amy's--haven't tried any of them as the stories of CC have scared me off :ph34r: Feel better!

Canadian Karen Community Regular

I tried Amy's shepherd's pie and got glutened. Didn't buy anything more from Amy's after that.

Hope you feel better soon!

Hugs.

Karen

kabowman Explorer

I gave up Amy's because I kept getting sick. Didn't bother to call the company...just not buying their products.

bluelotus Contributor

Sorry you are sick. I believe that one of their pasta sauces, labeled gluten-free/DF, made me ill. I called them and they are currently testing some sauce from that batch. I haven't heard back yet though. I'm not planning on buying any more of their products either at this point.

Carriefaith Enthusiast

I haven't had their products in a long time. I suspect that some of their products made me sick.

terps19 Contributor
I know there've been posts about Amy's and glutening, and I remember someone calling the company about it, how did that turn out?

I've tried 3 things by Amy's, two were near the beginning, and one was today. There was one in my freezer and I was too lazy to make anything else for lunch. I was definitely glutened, and I really know that now that I know exactly what gluten does to me. The one today was the Santa Fe Enchilada Bowl.

Now I can't feel my face and I spent 10 minutes in the bathroom at work :ph34r:

And I'm stoned again :wacko:

Who needs Amsterdam?

Is there anyone that hasn't had problems? I don't have any other intolerances or allergies, except for tree nuts (and that's oral allergy syndrome anyway). What should I do, other than not eat them anymore? Does the company really care?

I hate that products labelled gluten-free really mean "not as likely to have gluten" :angry:

Yeah I tried something of Amy's once and it gave me the worst bathroom time in a long time. Blech.

I think everyone needs a little Amsterdam every once in a while B)

I dont think I am ever going to try an Amy's product again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VegasCeliacBuckeye Collaborator

I ONLY eat Amy's Mac N Cheese (and do so religiously)

I have never had a problem with the Mac...

I kinda thought the other stuff looked "grody" anyway...

jenvan Collaborator

I have eaten several types many times and have no issues. Amy's is moving several of their gluten-free products to a dedicated facility or line (can't remember which!) in the future...

Guest cassidy

I got glutened by the rice mac n cheese and the santa fe bowl. I called them twice, the first call wasn't returned. I talked to someone who seemed like she held a high position with the company. She said that they don't get many complaints. So, I urge anyone who has been glutened to call. I had bought like 7 meals at once and she reimbursed me for all of them. I got a handwritten note and cash, which I thought was a little strange.

She told me that some of their products were going to be produced in a facility that didn't contain wheat. Those products should be in stores in June. I believe it is the mac n cheese, pizza and a new pasta w/tomato sauce type of thing, but please check before you try them.

Sorry you got sick, but please call them. Maybe if they know what a big problem they have they will try to be more careful about it.

zip2play Apprentice
I got a handwritten note and cash, which I thought was a little strange.
]

OH my goodness the CASH is really odd!

I have a box of the mac n cheese, but haven't tried it yet!

Monica

penguin Community Regular

I just emailed them that I felt betrayed and that I would likely not be buying any more of their products, and how sad it made me. It really does, because the food is yummy! :(:angry:<_<

jerseyangel Proficient

I remember reading a while back that someone else got cash back when they complained about getting sick.

Canadian Karen Community Regular

Cash? That's really, really strange!

I don't know of any reputable company that wouldn't send you a money order or cheque as refund your money.

Was the note on any type of letterhead?

Karen

wolfie Enthusiast

I posted a couple weeks ago about the enchilada bowl and being glutened too! I am sorry that you are feeling bad :( I won't be buying any more Amy's for now and I really like the rice mac & cheese, but not enough to feel that way again.

Hope you are feeling better soon!!!

key Contributor

Now you are freaking me out. I just bought and ate her Vegan chilli today and I swear if I get sick, I am going to scream!! I specifically bought it, because I just don't know who I can trust anymore. I have felt sick from her enchilada's before and just haven't eaten them, because I was pretty sure they made me sick, but every product. Someone posted here awhile ago saying that they had called about a specific product and that they test stuff. I am scared of all beans in a can, because they all say that they are manufactured in a facility that had wheat. What beans do you get?? I actually really liked the chili today, but if I get sick, I will no longer eat any of her stuff.

Monica

hez Enthusiast

I eat several of Amy's soups and frozen foods. I have not gotten glutened by them. I think with alot of processed food our risk for cc is high. It still sucks! Hope you feel better soon.

Hez

Guest nini

I was glutened by the rice crust cheese pizza not so long ago... very upsetting because I LOVE Amy's stuff. I used to eat it all the time when I worked full time. But now that I'm on part time, I don't need to eat lunches at work anymore. My daughter still loves their rice mac and cheese, but I'm afraid to get it for her now.

key Contributor

THis actually makes me very angry! If they aren't gluten free, then by all means don't put Gluten free right on the can or package in BOLD letters!!! It is negligent! I am trying SO hard to be healthy and I am tired of getting sick. If I get gluten I have D for a day and then C for two weeks and cramping etc. It is Miserable! It affects my whole life. This should be against the law. We have to do something about companies like this.

Does anyone else feel this way or am I just nuts!

Monica

Carriefaith Enthusiast
Does anyone else feel this way or am I just nuts!
I am also upset that companies label products gluten free when they aren't always 100% gluten free. The most common products that people seem to react to are Amy's and Bob's Red Mill.
Becky6 Enthusiast

I got glutened by their tofu scrambler. I have had a few other things and been fine. But am scared to try anything else now.

paulasimone Rookie

it looks like Amy's is paying attention to this issue.

they now have 2 separate gluten designations for their products (on their website, though apparently the products on shelves are still the old version):

1. "no gluten ingredients" (still potential for cross-contamination)

"Products that are formulated without any gluten containing ingredients but are made in a processing area that may contain gluten."

here's the list (it includes the enchiladas, shepherd's pie, indian food, etc etc.)

Open Original Shared Link

2. "gluten-free"

the only one listed so far is Rice Crust Pizza. someone else on this thread said they were told that Amy's is expanding into a gluten-free facility in June? so presumably then they would add more stuff here.

good luck,

paula

:)

penguin Community Regular

That was quick! Here's the response I got from Amy's...

Chelsea,

I am sorry to hear you became ill after eating some of our products. I

would like to talk to you about this in more detail. Did you save the

packages for these four products? If so, I would like to get the lot

numbers so I can send in our retains for testing.

Could you send me your phone number and suggest a time I could call.

Please respond to both e-mail addresses so I can get your phone number

both here at Amy's and at my home (I don't want to take a chance of

missing your e-mail).

I am looking forward to talking with you.

Kind regards,

Marsha Kopral

Technical Service

I didn't save the other 3 boxes, but I saved the one today. Let's see where this takes us...

Carriefaith Enthusiast

That was a very nice e-mail.

Becky6 Enthusiast

That was a great response!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,954
    • Most Online (within 30 mins)
      7,748

    Godfather
    Newest Member
    Godfather
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
    • Mnofsinger
      Hi @CeliacMom502, As always, consult a medical professional on any advice you receive.  I experience have experienced this exact symptoms you're referring to and will receive them, typically after being accidentally glutened. I've recently been researching this (that's how I came across this posting), because I've been trying to nail down how long I've actually had the celiac genes "activated" or if I was just born with it. Now I wasn't diagnosed until 2023 with Celiac Disease, but not all these other health issues I've had previously point to it all connecting. In 2013 I ended up with Bell's Palsy that I had facial paralysis on one side of my face, where I couldn't even get a twitch for six months, but it took almost a year for "full recovery". I have now came to the conclusion that, because of the B12 vitamin deficiency caused by celiac disease (when not following a strict gluten free diet), caused me to have prolonged recovery from this, because the nerves were healing at a much lower rate> I'm not sure if your daughter has ever had Bell's Palsy, but ever since I have, some of my symptoms when I accidentally get glutened (including right now as I type this message 😄) include a migraine that goes across my eyes, and a shooting pain as you have described that will go across my left cheek and upper jaw, in addition to pain behind my left ear, and painful to the touch. Now, I did immediately go on a gluten free diet, and almost all these symptoms vanished after 3-4 months, but that time frame depends upon the "damage" already done previously.  Hope my situation helps even now this is now almost three years later from your message!  
    • Scott Adams
      It's nice to see celiac-safe options out there for guest homes.
    • Scott Adams
      Your situation involves interpreting elevated Deamidated Gliadin Peptide (DGP) IgG levels, which can indeed be confusing without clear symptoms or additional diagnostic tools like a biopsy. Here’s a possible approach to help clarify your next steps: Understanding DGP IgG: DGP IgG is a blood test often used to help diagnose celiac disease, particularly in individuals with IgA deficiency. However, since you’ve confirmed you don’t have IgA deficiency, the focus should shift to other celiac-specific tests, such as tissue transglutaminase IgA (tTG-IgA) and endomysial antibodies (EMA-IgA), which are more specific for celiac disease. Elevated DGP IgG alone is not diagnostic of celiac disease but may indicate gluten-related immune activity. Non-Celiac Gluten Sensitivity (NCGS): You’re correct that NCGS does not typically show abnormalities in blood tests like celiac disease does. NCGS is diagnosed based on symptoms (e.g., bloating, fatigue, brain fog) that improve on a gluten-free diet, after celiac disease and wheat allergy have been ruled out. Since you don’t currently have symptoms, NCGS seems less likely in your case. Possible Next Steps: Monitor Symptoms: If you remain asymptomatic, it’s reasonable to continue eating gluten and retest after some time. This is because celiac disease can develop or become symptomatic later, and ongoing gluten consumption is necessary for accurate testing. Repeat Testing: Consider repeating the tTG-IgA test, as it is the most sensitive and specific for celiac disease. If this is also elevated, it strengthens the case for further investigation. Genetic Testing: If available, HLA-DQ2 and HLA-DQ8 genetic testing can help rule out celiac disease if negative, as nearly all celiac patients carry one or both of these genes. However, a positive result doesn’t confirm celiac disease, as these genes are common in the general population. Dietary Trial: If testing remains inconclusive and you develop symptoms, a supervised gluten-free diet trial might provide clarity. However, this should only be done after thorough testing, as going gluten-free prematurely can interfere with accurate diagnosis. Biopsy Limitation: Since a biopsy is not available in your town, you’ll need to rely on blood tests and clinical judgment. If your tests remain inconclusive but you develop symptoms, you may need to travel to a facility that can perform a biopsy for definitive diagnosis. In summary, if I were in your position, I would continue consuming gluten, monitor for symptoms, and retest with more specific celiac markers (tTG-IgA and EMA-IgA) in a few months. If symptoms develop or tests remain ambiguous, consulting a gastroenterologist for further guidance would be advisable. Always work with a healthcare provider to interpret results and tailor next steps to your specific situation.
×
×
  • Create New...