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I'm Kinda New But Never Saw This Kinda Survey--

Judyin Philly

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Judyin Philly Enthusiast
Judyin Philly
Posted

It's the first time I've done one of these and celiac came up.

think the smelly stools gave it away.

ck out the web site.

Open Original Shared Link

Judy in Philly

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Rusla Enthusiast
Rusla
Posted

The top two that come up for me are Lactose Intolerant and Celiac Disease, which I have both.

Guest Viola
Guest Viola
Posted

This is very interesting. Thank you for posting that ... Celiac popped right up of course ... now why can't the doctors be as efficient in the diagnosis? :o

mouse Enthusiast
mouse
Posted

I wish this had been around 2+ years ago, when I was googling everywhere, trying to find out why I was almost dead. At the end I could not google as I was bedridden. What a great help this might be for people who are trying to find some answers.

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

Yes--agree--

Isn't this amazing. When i was looking for over 19 years all that came up were IBS.

I think that the publicity that's going on is making the difference.

Now agree with above post--if the Dr's would only get on board.

My personal beef is ---'underweight'

There have been so many threads for us who have battled weight issues all our lives but they never thought of celiac disease because we were overweight or in my case obese...I remember when i couldn't say that word or 'god forbid' apply it to myself.

Judy

Rusla Enthusiast
Rusla
Posted

Judy,

Count me in on this especially with the last 8 years and more like for the last 30 or more. Maybe we should get doctors to use this as so many seem to be devoid of common sense.

Guest Viola
Guest Viola
Posted
Judy,

Count me in on this especially with the last 8 years and more like for the last 30 or more. Maybe we should get doctors to use this as so many seem to be devoid of common sense.

:lol: You're right Rusla, they wouldn't even need medical school, of course learning to read is a must. :lol:

Oh, I am not nice :o:rolleyes:

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Ursa Major Collaborator
Ursa Major
Posted

When I put in the symptoms accompanying abdominal pain, the top one that came up was celiac disease. I thought that was pretty good.

But when I put in the symptoms that come with diarrhea, crohn's disease came first, don't remember what was second, and celiac disease was third, because I didn't have 'weight loss'!

So, that again was wrong on their part, they don't know yet that unexplained weight gain is a common symptom of celiac disease. Somebody should tell them (maybe I will).

penguin Community Regular
penguin
Posted

Mine came up from diarrhea:

1. Celiac

2. Chron's

3. Bowel obstruction

weight loss was definitely NOT one of my symptoms...but still came up celiac! Where the hell was this three years ago!?!?! <_<

WGibs Apprentice
WGibs
Posted

I didn't have weight loss either, but the few different symptom combos I tried (starting with abdominal pain/starting with D) both came up with Celiac as the top diagnosis. Wow!

VydorScope Proficient
VydorScope
Posted

I might cry... Lactose intorelnt followed by celiac disease. I never heard of celiac disease till some one mentioned it on another forum... had I tired this years ago.... ah well... :(

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

Ursula, I KNOW IT REALLY UPSETS ME TOO.

I posted earlier about the weight gain...

you go girl get um girl,,, :lol: not sure how to do that let me know if you figure it out.

Fat, and you don't fit in ...even in the celiac disease world.. :ph34r:

Judy

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

PLEASE DON'T CRY, VINCENT :(:ph34r:

When ever your sad just look at that precious little one of yours :lol:

Love the new picture. You made ME simile :)

Judy in Philly

Guest BERNESES
Guest BERNESES
Posted

thanks for posting that- I tried to enter my symptoms as they first presented- I didn't have diarrhea- just foul black stools. I had weight loss but I also had nausea and vomiting. It didn't know what to do with me! It really wanted me to have Crohn's. and gallstones (which I do). Celiac came up 3rd tops. So, it just goes to show ya that it presents so differently in different people. Grrr!

Guest Viola
Guest Viola
Posted

BUT ... even if Celiac Disease comes up third, you would think the doctors would test for it, if for no other reason, but to illiminate the possibility. If it's coming up first, second, third, or even forth .. it's a huge possibility with those symptoms. <_<

Judyin Philly Enthusiast
Judyin Philly
Posted
  • Author

It didn't know what to do with me!

:ph34r: If this wasn't so sad--- it would be funny. :lol: Even the survey's don't know what to do with us who

fall' through the cracks' of pounding that round peg into the square hole... :huh:

So, it just goes to show ya that it presents so differently in different people. Grrr!

You got that right girlfriend. I was just amazed the word showed up under the possibilities as i honest to goodness never saw it come up when doing research for years. know it was because of my weight issure.

Judy in Philly

ravenwoodglass Mentor
ravenwoodglass
Posted

When I did my symptoms even with the rash I got Celiac as the 4th possibility. I wonder why rashes and excess gas were not considered symptoms of celiac? At least it is coming up as a possibility.

jerseyangel Proficient
jerseyangel
Posted

WOW--I just did it and Celiac came up #1! Let's see, it took doctors (and me) 20 years--this survey took about 30 seconds--something is so wrong with that <_<

VydorScope Proficient
VydorScope
Posted

To be fair, is everyone sure your not unintentionaly skweing your answers to fit celiac disease?

penguin Community Regular
penguin
Posted
To be fair, is everyone sure your not unintentionaly skweing your answers to fit celiac disease?

I can honestly say that I didn't skew mine, I listed my symptoms as abdominal pain, D, foul stools, and cramping. I didn't expect it to come up, actually. After all, if no dr's suspected it, why would it obviously show up on a symptom checker on the internet?

DH said after I told him about it, "now why don't doctors have something like that?"

Why not, indeed <_<

VydorScope Proficient
VydorScope
Posted
DH said after I told him about it, "now why don't doctors have something like that?"

Why not, indeed <_<

They are working on somthing like that using nueral nets. Last I heard it was still in the devolpment stage, one of my proffessors back in college was helping on the project.

jerseyangel Proficient
jerseyangel
Posted

I didn't skew mine, either. I purposely listed exactly the same symptoms I presented my GP with a few months pre-dx, when my symptoms had gotten really scary. They were pretty easy to remember!

Rusla Enthusiast
Rusla
Posted

Mine were not skewed. You would think that doctors would think; well we have these symptons and these diseases or problems go with these symptoms, why not test for all to be sure.

I am sorry, I was thinking logically again and we know that more than 80

% of the doctors are NOT logical.

Guest BERNESES
Guest BERNESES
Posted
I am sorry, I was thinking logically again and we know that more than 80% of the doctors are NOT logical.

like Judy in Philly said about me, if this wasn't so sad, it would be funny! :unsure:

I was really lucky because my primary doctor listened to all my symptoms which were extremely random and really could have been anything from cancer to HIV. The minute I said, "Smelly farts that could kill someone" she said could be Celiac's. She was smart- she tested me and even though the test results didn't fit the "clinical profile" I did the research, went gluten-free anyway despite my GI's protests that it was a condemnation.

This really is a great tool. It would have been so much easier to just do the endoscopy first rather than scare the living daylights out of me by testing me for rare and exotic diseases but NOOOOO.....

And you know, not once during the whole year has anyone offered me a colonoscopy :lol: Not that I wanted one but it would have made sense. Oh well, Ii guess I should be relieved :ph34r:

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