Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Post endoscopy pathology results?

berrychuuu
 Share

Recommended Posts

berrychuuu Newbie
berrychuuu
Posted

Hello!

I’m sorry if this is not posted in the correct location. I have been diagnosed with celiacs and had an endoscopy and colonoscopy done. My immediate results showed a healthy stomach and colon, while my duodenum showed positive celiac traits, and it was biopsied along with my colon.

A week later I got my final pathology results and my colon is still normal, but I have a result labeled “stomach” and that I have chronic gastritis and extensive intestinal metaplasia, but nothing like that was listed in my immediate report, nor was it reported that stomach biopsies were taken.

I’m very confused, do you think I got possibly misdiagnosed or someone else’s sample reports got mixed with mine? I have an appointment with the GI this Friday to discuss it. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Just ask those same questions to the GI doc on Friday. Gastritis would not require a biopsy. It can be visible during the scoping. Also, the metaplasia of the intestines is not specified as to which part of the 30' long intestinal track so it's anyone's guess as to what that is saying. It could be referring to mucosal damage in the small bowel which is the hallmark of celiac disease.

berrychuuu Newbie
berrychuuu
Posted
  • Author
23 minutes ago, trents said:

Just ask those same questions to the GI doc on Friday. Gastritis would not require a biopsy. It can be visible during the scoping. Also, the metaplasia of the intestines is not specified as to which part of the 30' long intestinal track so it's anyone's guess as to what that is saying. It could be referring to mucosal damage in the small bowel which is the hallmark of celiac disease.

Thank you for the reassurance! I thought it was a bit strange since the same-day results of the EGD said no visibility of irritation, polyps, ulcers, etc in my stomach. Then the pathology biopsy results are saying chronic gastritis, so I wondered what was going on since gastritis is visually observed. Thank you for providing reassurance on the metaplasia as well, it said it was tested under the category of “stomach” so when I searched it and saw the results and “pre-cancer” everywhere I felt so sick to my stomach and confused.

I’ll make sure to report back Friday in case any one else needs this in the future!

Scott Adams Grand Master
Scott Adams
Posted

If they told you that you had mucosal damage consistent with celiac disease, it would be important to ask for a celiac disease blood panel. Just be sure to keep eating gluten until all tests are completed. Let us know how it turns out!

berrychuuu Newbie
berrychuuu
Posted
  • Author
43 minutes ago, Scott Adams said:

If they told you that you had mucosal damage consistent with celiac disease, it would be important to ask for a celiac disease blood panel. Just be sure to keep eating gluten until all tests are completed. Let us know how it turns out!

I’ve had my blood taken already with a positive celiac result which is what lead me to the EGD/colonoscopy, I think I’m more confused on their analyzed results of the biopsies they’ve taken unfortunately 😞. However I’ll still report back with their clarifications to see what happened with how they worded my results!

Scott Adams Grand Master
Scott Adams
Posted

With the celiac disease biopsies, ask them if they did a "Marsh" score on them. This is the standard method of rating the damage to the villi in those with celiac disease.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. PixieSticks
      - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply.
    2. BoiseNic
      - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It...
    3. knitty kitty
      - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches. Really works well without hurting the digestive tract. Riboflavin B2 also helps with migraines. Most newly diagnosed people have vitamin and mineral deficiencies. Check with your doctor and nutritionist. If you follow the updated...
    4. Scott Adams
      - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    5. Scott Adams
      - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,531
    • Most Online (within 30 mins)
      7,748
    FriendOfCeliac
    Newest Member
    FriendOfCeliac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • PixieSticks
      Working in a kitchen with gluten?

      By PixieSticks · Posted

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Skinesa

      By BoiseNic · Posted

      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      Feeling ill

      By knitty kitty · Posted

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By Scott Adams · Posted

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      Feeling ill

      By Scott Adams · Posted

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...