Symptoms on gluten-free diet

[Moogle39]

Trying again on a strict gluten-free diet after giving up. Is it common to still have diarrhea, gas, bloating on gluten-free diet for a while? Last time I gave up because I still needed Imodium while eating gluten-free and felt frustrated. Can It take a few months? I was testing negative for celiac but I have all the symptoms of ncgi. 

Should I get a new toaster while doing this diet lol. I probably was getting glutened putting my gluten-free waffles in that toaster.

[captaincrab55]

FYI, It took me over 7 years to pinpoint other foods that contributed to similar issues.   IMO, if you need to ask about buying a new toaster to start a second gluten free diet you really need to read more.   

[Moogle39]

51 minutes ago, captaincrab55 said:

FYI, It took me over 7 years to pinpoint other foods that contributed to similar issues.   IMO, if you need to ask about buying a new toaster to start a second gluten free diet you really need to read more.   

I came here for some advice/support. That last comment was fairly rude. 

[Moogle39]

I tried really hard to eat gluten free for a while and used my original toaster for my gluten free waffles and bread. I didn't have anyone to tell me to GET A NEW TOASTER. I had 0 guidance from my doctor or anyone I know and honestly I've been confused to death about not just how to do this 100% but what to expect, how long to do it before seeing results. 

I'm probably not going to post here again if people are going to be rude saying I should have read more. 

[Moogle39]

Yeah, you could have said something like. "it would probably help to get a new toaster if you want to be totally gluten free and know for sure" or something. It did come off rude to just be like "read more". 

Btw I'm honestly really down and frustrated, I'm looking for a place for support/people I can relate with. I feel like I could break down and start crying because I've been miserable all week. 

[ravenwoodglass]

You should take a look at the Newbie 101 thread at the top if the Coping Section that has a lot of good info. Have you dropped dairy? That can be an issue for some of us. It may just be that using your old toaster was enough to keep the antibodies going but it isn't uncommon for us to have other intolerances until we heal. I was able to add back dairy after about 6 months but my soy intolerance has remained, as an example. Do ask any other questions you need to ask we do have a lot of helpful people here.

[Moogle39]

5 minutes ago, ravenwoodglass said:

You should take a look at the Newbie 101 thread at the top if the Coping Section that has a lot of good info. Have you dropped dairy? That can be an issue for some of us. It may just be that using your old toaster was enough to keep the antibodies going but it isn't uncommon for us to have other intolerances until we heal. I was able to add back dairy after about 6 months but my soy intolerance has remained, as an example. Do ask any other questions you need to ask we do have a lot of helpful people here.

Thank you. I'll check out that newbie section. I'm going to try to just focus on gluten and wheat for now. I try not to have much or any lactose though. I had my gluten-free breakfast sandwich today without toasting the bread lol. It wasn't horrible

[Scott Adams]

This article may be helpful:

 

[Wheatwacked]

19 hours ago, Moogle39 said:

Should I get a new toaster while doing this diet lol. I probably was getting glutened putting my gluten-free waffles in that toaster.

If nothing else a new toaster will be a daily reminder.

As important as GFD is the second step to living with Celiac, is adopting a diet rich in vitamins and mineral because Celiac Disease causes malabsorption. Some 20 vitamins and minerals are absorbed in the small intestine. Seven have been researched in relation to Celiac, the rest simply ignored. The Standard American Diet has deficiencies or low levels built right in (vitamin D, choline, potassium and iodine) and you lose the fortifications added to wheat products. Beans and leafy greens.

Choose foods that don't come in boxes or bags. It will reduce plastic, save a tree and your gut will thank you.

Before gliadin was discovered as the agent of Celiac, the Celiac Banana Diet was the most effective reversing decline in infants with Celiac. It was the combination of high nutrition low carbs and accidentally being gluten free. The negative was that back then once the child was doing well it was put back on a "normal diet". Now we know better! In the case studies published in 1924, 10 infants were presented to Dr Hass. 8 were treated and thrived (at least until they returned to "normal" diet). Two were not treated and subsequently died.

What they ate: Farmer Cheese, Cottage Cheese, Ripe Bananas, Oranges, Gelatin, Vegetables and Meat. THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE SIDNEY V. HAAS, M.D

Edited May 23, 2022 by Wheatwacked

[Beverley Ann Johnson]

I would be careful with the gluten.  I too am following the gluten-free because of some really bad reactions lately.  I did a lot of research in the past years as I have been firstly diagnosed with FM then IBS and now I am challenging the gluten.  I always had pain everywhere especially in the lower left intestine and lower back, when I went gluten free the pain subsided!  I thought of it as a miracle but it does not stop there.  Certain foods can still trigger IBS or FM and gluten is by far on the top of the list along with FODMAPS, it is quiet a challenge.  Even if I eat gluten free bread or flour I still get reactions, because some of these flours are made with beans (chick peas or fava beans).  I would steer clear of all breads, try quinoa and brown rice instead.  If your sharing a toaster, it would be a good idea to have your own, always better to be safe.  Hope this helps.

 

[C4Celiac]

why are you eating gluten free if you don't have celiac

go take a food allergy test.   Everlywell

This at-home test measures your body’s immune response to 96 foods to help guide you on what types of food may be the best to choose for an elimination diet.

[Scott Adams]

I believe the original poster was diagnosed at some point with celiac disease and are having a hard time with the gluten-free diet, but that isn't 100% clear.

Unfortunately these food allergy tests won't help with celiac disease, but may be helpful in discovering food allergies. 

[Beverley Ann Johnson]

On 5/24/2022 at 4:34 AM, C4Celiac said:

why are you eating gluten free if you don't have celiac

go take a food allergy test.   Everlywell

This at-home test measures your body’s immune response to 96 foods to help guide you on what types of food may be the best to choose for an elimination diet.

I asked for allergy test with my GP, they won't give it, it is always a dead end here, sad but true.  They just told me to do the elimination diet and that is hard.  I know it is the gluten or the wheat.  How accurate is the Everlywell test and does it mesure up to Dr's standards or do they just deny it?

 

[Beverley Ann Johnson]

On 5/24/2022 at 4:38 PM, Scott Adams said:

I believe the original poster was diagnosed at some point with celiac disease and are having a hard time with the gluten-free diet, but that isn't 100% clear.

Unfortunately these food allergy tests won't help with celiac disease, but may be helpful in discovering food allergies. 

No Scott, I did the celiac test last spring but was not eating much gluten at the time, it showed negative.  I know you have to eat gluten for the test to be  accurate but I am so sick when I consume food with wheat or gluten, I just decided to go gluten free.  I am feeling more tired since starting B 12 at 1200 mcg's a day and have a sore tongue, hope it passes.

[LCAnacortes]

I found that Canyon Bakehouse Gluten Free bread is good and not so dense so it doesn't need to be toasted. I'm new to this whole deal too - and didn't even think about the toaster so thanks for asking that question!  It is taking time for my symptoms to go away.  There are others in that boat with you. I had severe diarrhea which has subsided but it still comes back from time to time. I have heard that the water retention takes time to go away too. Good luck on your journey!

[Moogle39]

Thank you for the response. To be honest, my primary doctor believed I had celiac because I have all the symptoms. I was tested a few times as well as biopsy but I only had one marker flagged on the blood test, negative biopsy. 

At times I have been very strict with the gluten-free diet, but I got discouraged because I was still having diarrhea and not feeling well. My problem is there can be other things going on causing my symptoms and my doctors have not been able to give me answers. So the only thing I feel I can do right now is try to do gluten-free 100% and give it enough time to know if it's helping. Maybe enough time may be months, and just accept I may have diarrhea or upset stomach while I stay on the diet.  It probably won't be a quick thing someone will know in a few weeks. 🤷‍♂️

[Lynda Meadows]

On 5/23/2022 at 7:07 AM, Moogle39 said:

I tried really hard to eat gluten free for a while and used my original toaster for my gluten free waffles and bread. I didn't have anyone to tell me to GET A NEW TOASTER. I had 0 guidance from my doctor or anyone I know and honestly I've been confused to death about not just how to do this 100% but what to expect, how long to do it before seeing results. 

I'm probably not going to post here again if people are going to be rude saying I should have read more. 

It took me a while to figure out the toaster thing too, I just overlooked it.  I was super lucky with my doctor and also continued to have a lot of symptoms.  He eventually directed me to a FODMAP elimination diet, which ultimately highlighted other foods that were causing issues for me.  The combination of completely eliminating gluten and eating a low FODMAP diet has changed my life.  

[Sabaarya]

On 5/23/2022 at 7:07 AM, Moogle39 said:

I tried really hard to eat gluten free for a while and used my original toaster for my gluten free waffles and bread. I didn't have anyone to tell me to GET A NEW TOASTER. I had 0 guidance from my doctor or anyone I know and honestly I've been confused to death about not just how to do this 100% but what to expect, how long to do it before seeing results. 

I'm probably not going to post here again if people are going to be rude saying I should have read more. 

I didn’t know anything about getting new toaster as well. I was diagnosed 9 months ago.My doctor just told me eat everything gluten free. He didn’t mention anything about toaster,pots and pans or even eating outside or that even processed gluten free products can cause problems. I’m still struggling with a lot of stuff. It takes time to learn and adjust to gluten free diet.

[Sabaarya]

1 minute ago, Sabaarya said:

I didn’t know anything about getting new toaster as well. I was diagnosed 9 months ago.My doctor just told me eat everything gluten free. He didn’t mention anything about toaster,pots and pans or even eating outside or that even processed gluten free products can cause problems. I’m still struggling with a lot of stuff. It takes time to learn and adjust to gluten free diet.

And also after I started gluten-free diet I was having frequent bowel movements. It also took time for me to figure it out that gluten-free diet can cause frequent and weird stool,cause it’s either high fiber food  like veggies and fruits or the additives of gluten-free breads and other gluten-free products that we are not used to. 

[cristiana]

53 minutes ago, jereh52 said:

Everyone is very worried about gluten, I don't think it's that harmful.

Hello Jereh and welcome to the forum

A lot of people become gluten free without needing to be so.  For them, gluten isn't harmful.

But if you do have coeliac disease, Non-coeliac gluten sensitivity, or an actual allergy to it, gluten is harmful and needs to be cut out of the diet completely.   I ate it for years without realising I had coeliac disease, but because it damages the gut and therefore absorption, eventually I ended up with anemia and other deficiencies, as well as neurological problems, all of which are resolving on a gluten free diet. 

I thought I'd better just clarify this, because there is some misunderstanding on the issue of being gluten free.  For some it is a lifestyle choice, others an absolute necessity.

Cristiana

 

 

 

 

 

[C4Celiac]

Gluten isn't harmful. The antibodies your immune system makes are

[Scott Adams]

23 hours ago, C4Celiac said:

Gluten isn't harmful. The antibodies your immune system makes are

Gluten is harmful to anyone with celiac disease or gluten sensitivity. It triggers an immune response in some people where the antibodies can cause gut, nerve, and other damage, but to say gluten isn't harmful isn't correct. 

[Beverley Ann Johnson]

4 minutes ago, Scott Adams said:

Gluten is harmful to anyone with celiac disease of gluten sensitivity. It triggers an immune response in some people where the antibodies can cause gut, nerve, and other damage, but to say gluten isn't harmful isn't correct. 

I agree with you Scott, from experience the gluten can cause triggers and an immune response which is my case by experience.  Gluten free since April and my gut is thanking me, so is my intestines and no more vomiting, no immediate headaches and skin rash, I am not going back!  Gluten is harmful if you have celiac or NCGS!  You have to experience the pain to know it and believe me it is worth going without it.