Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac just diagnosed


versace114

Recommended Posts

versace114 Newbie

I am 52 yrs old and never been able to gain weight, my biopsy and blood work confirms, I am going to have to go to Carti so they can keep an eye on my blood and give me IV vitamins and nutrients as my body will no longer hold them. Any encouragement and advise is welcome as I am scared due to the fatigue and all the other symptoms. I’m suppose to go gluten free for 3 months recheck my blood work all though we don’t look for it to change as I’m not a bread person. Is there any help out there for people who can’t afford the food? Thank you all in advance .

🙏😊


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, versace114.

Carti?

You don't have to rely on processed "gluten free" food in order to avoid gluten. It is not that difficult to avoid gluten while resorting to main stream food if you are careful. Much ordinary food is naturally gluten free such that you only need to be concerned with cross contamination.

ravenwoodglass Mentor

Welcome to the board. Hopefully you will be feeling a lot better by that appointment. It can take some time to heal though so don't get discouraged if you make some mistakes with the gluten free life at first. If you go to the top of the Coping Section there is 'Newbie" post that has a lot of good info. You may feel a bit better once the infusions are over and you vitamin levels are up a bit. Do make sure they know you are celiac just to be on safe side. If you take any meds call your pharmacist and let them know you have been diagnosed so they can check any scripts you are on.

Eating gluten free doesn't have to be expensive. You an go with meats, fish, chicken, veggies and fruits etc that yuo prepare at home. I would advise avoiding restaurants or eating in others homes as these are the most common ways we can get 'glutened'. I don't have much time but we have a lot of great and very knowledgable folks here that can help. Read as much here as you can and I hope you are feeling better soon.

trents Grand Master

The main thing is to focus on buying fresh meat, fresh vegetables and fresh fruit when available. Avoid seasonings apart from salt and black pepper as some seasonings are cross contaminated with gluten in production processes. Cook your own meals. Avoid eating out like the plague. Fix simple things that don't have coatings or crusts.

Do you share a house with people who are still using gluten?

Wheatwacked Veteran
1 hour ago, versace114 said:

give me IV vitamins and nutrients

Make sure you are getting Choline. Either eggs and meat or pills. Apparently no one sells choline in parenteral feeding choices. They do in Europe. 

"choline deficiency appears to activate cellular apoptosis."   https://pubmed.ncbi.nlm.nih.gov/19874943/

Quote

Choline is an essential component of all cell membranes, and has been considered a required dietary nutrient since 1998 by the US Institute of Medicine's Food and Nutrition Board. Choline is necessary for DNA repair, mediated by its role as a methyl donor. It also serves as the precursor for the neurotransmitter acetylcholine. Evidence has accumulated that hepatic steatosis, which occurs during parenteral nutrition therapy, develops as a result of choline deficiency Buchman AL. The addition of choline to parenteral nutrition. Gastroenterology. 2009 Nov;137(5 Suppl):S119-28. doi: 10.1053/j.gastro.2009.08.010. PMID: 19874943. https://pubmed.ncbi.nlm.nih.gov/19874943/

 

Wheatwacked Veteran
2 hours ago, versace114 said:

my body will no longer hold them.

A short time gluten free and you will start getting better. Next step is to replenish your vitamins and minerals. Some are low because of malabsorption (the reason for Carti) but some could be diet. Recovery is do-able. In 2013 I could not stand long enough to watch a single cup coffee brewer do its job.

RMJ Mentor

Gluten is in a lot of processed foods besides bread. I didn't eat much bread before my diagnosis but still got enough gluten for high antibody levels.

Hopefully now that you have a diagnosis and will soon have iv nutrients you’ll start feeling better and will become less and less scared.  We’re here to support you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,540
    • Most Online (within 30 mins)
      7,748

    Melissarunkle
    Newest Member
    Melissarunkle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...