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THOSE SNEAKY CELIAC INVADERS


Yvonne (Vonnie) Mostat, RN

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Yvonne (Vonnie) Mostat, RN Collaborator

Let's start with Oats. "The challenge has been extensively investigated by Health Canada and has reviewed the clinical evidence from numerous international studies. It has concluded that the consumption of oats uncontaminated with gluten from wheat, rye, or barley is safe for the vast majority of patients with celiac disease. The challenge with oats in gluten-free eating is the contamination and many commercial facilities is oats that are processed, and the nature of gluten intolerance is that even a trace amount of gluten can cause severe discomfort. According to the National Institute of health 88% of commercial oats in Canada are contaminated with gluten containing grains, With cross contamination in the field, in the transport of the grain, in the storage of the grain and in the milling and packaging facilities can often leave oats at more than the 22ppm advised by Health Canada. In Canada (and I am sure in the U.S.A.) specially produced pure uncontaminated oats have been available in the market place for several years.  They say they are accurately tested for their gluten content to be under the 20 ppm. However, some individuals with a gluten intolerance may still find themselves sensitive to even pure oats. Also, again , according to the Canadian Celiac Association Professional Advisory Council, "the fibre content of an oat gluten free diet is often higher than the typical gluten free diet. When adding oats to the diet, the individual should be stabilized on the gluten free diet, and their celiac antibody levels should have normalized. This process may take 6 - 18 months, although there is considerable variation among individuals. 

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Scott Adams Grand Master

Thank you for the update on oats, and we've got lots of articles on oats here for anyone who wants to dive into this further:

https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/

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    • RMJ
      Based on the normal range and units, that looks like a test for total IgA, not a celiac specific test.  Were any other tests run?
    • cristiana
      Hi @matts Yes.... it's a mystery to me why we are holding onto that 'o'.   I expect it won't be there in 100 years! I think you are very wise to go back to your GP to chat through your options.   If you would like to know one way or another, he or she may be happy for you to see a gastroenterologist through the NHS.   If not, and you would still like to know and can afford it, you could do what my friend did,  She went direct to a consultant at our local private hospital to have an endoscopy.  Her situation was different from yours in that she did not test positive, but she did have gastric symptoms.  Her Dad was a coeliac and she wanted to be sure she wasn't one of a small number of coeliacs that don't ever test positive in the blood test, but do have villous damage in their gut. I do hope things work out well for you - perhaps drop by and give us an update sometime! Cristiana 
    • matts
      Hi Cristiana, You’re spot on, I am from the UK!  In terms of eating gluten prior to the blood test, I only had a week in between requesting and having it done but I think it would be accurate in terms of how much I’d eaten, I have two slices of toast most mornings and gluten included in most other meals throughout the day. Thank you for the article, as you said with the family history it is probably correct that it should be investigated further. I’ll contact my GP on Monday and ask for further investigation, as you said I know they aren’t massively over the normal limit but must be a ‘normal’ range for a reason and if it’s come back above it then it needs looking at!  I’ll continue my diet as is for now so then if I do have further tests then they should be accurate results. Thanks again, Matt  
    • cristiana
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