Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 7 year old was just diagnosed


Summer M

Recommended Posts

Summer M Newbie

Help! My 7 year old son has had constipation issues since he was a toddler and we have been taking him to a GI for years and everytime he was insistent that it was just constipation. Well I had had ENOUGH and demanded a blood test and my gut was right. Celiac Disease. Off subject i have left that GI who refused to listen to me for so long and have a new appointment set up to say the least. But my son has done AMAZING altering diet and even asks if what i give him is gluten free now. The BIG issue we have been battling since he was 3 is potty training. He has never had a problem peeing in the potty and we could never understand why we couldn't get over to poop part and to this day I have tried EVERYTHING UNDER THE SUN MULTIPLE TIMES. Im at a hopeless loss and I have no idea how to help him!! Does anyone have any suggestions for a behavioral therapist that can help? We live in North Georgia. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Let me seek some clarity here. Is his constipation resolved now that he is eating gluten free? I take it you are saying he stills poops his in his pants rather than using the toilet. Correct?

Link to comment
Share on other sites
Scott Adams Grand Master

Is there any chance that trace amounts of gluten could be creeping into his diet? For example, do you eat at restaurants? If so, there is a high likelihood that he could be getting contamination. Do you feed him gluten-free oats? If so, you might want to exclude this for a few months, as around 9% of celiacs react to the protein in oats. In my mind the first step here is ensuring that the accidents are not being caused by something outside his control.

Link to comment
Share on other sites
Wheatwacked Veteran

 

@Summer M  GOOD JOB!

After 7 years it will take some time for him to realize that he now has control. I venture to guess he also has ADD. By the time he realizes he has to go...opps! too late.  When my son was diagnosed as an infant at weaning (1976), his doctor told us that when he went to kindergarden it would not take long for the teachers to ask us to put him on Ritalin. Sure enough, first teacher conference the issue was broached. Have faith your son does not want accidents any more than you. I still remember accidents I had in kindergarden 65 years ago. Let him take responsibility for his schedule and no stress. He is a smart kid, If it is his job, he'll get it done.

Quote

 ADD is a now-outdated term that is typically used to describe inattentive-type ADHD, which has symptoms including disorganization, lack of focus, and forgetfulness. People with inattentive ADHD are not hyper or impulsive.  ADD vs. ADHD: What’s the Difference in Symptoms

Be sure he is getting plenty of sunshine in the summer to store up vitamin D for the school year, or get his D tested at least once a year. Your GI that said he was just constipated (and that did not concern him even just a bit?) came from the same school that says vitamin D only needs to be above 30 ng/ml to avoid rickets. 

Quote

 Vitamin D (40-70 ng) in Children’s Health     Knowledge of vitamin D in the health of children has grown greatly over the years, extending past the importance for calcium homeostasis and bone growth. There is growing recognition of the role vitamin D plays in health impacting the innate immune system to prevent infections and the adaptive immune system to modulate autoimmunity. Other studies are starting to reveal the neurohormonal effects of vitamin D on brain development and behavior, with a link to mental health disorders.... It is recommended that targeting a 25(OH)D level of 40–70 ng/mL for each individual would provide optimal health benefits and reduce health care costs. Current recommended doses of vitamin D supplementation fall short of what is needed to obtain ideal serum levels. 

 

Link to comment
Share on other sites
Summer M Newbie
10 hours ago, trents said:

Let me seek some clarity here. Is his constipation resolved now that he is eating gluten free? I take it you are saying he stills poops his in his pants rather than using the toilet. Correct?

Yes, he now can poop but now has such a mental block it’s a constant fight

Link to comment
Share on other sites
trents Grand Master

Like Wheatwacked, I also wondered if he has ADD.

Can you elaborate on the "mental block"? Is his experience historically that he sits there on the toilet and nothing happens or his stool is hard and it all hurts? What is it he is avoiding?

Have you  tried some sort of reward system for him pottying successfully?

Link to comment
Share on other sites
Wheatwacked Veteran
27 minutes ago, trents said:

Is his experience historically that he sits there on the toilet and nothing happens or his stool is hard and it all hurts? What is it he is avoiding?

I'll jump in and answer that. All of the above. And there is the boredom of waiting on the seat for something to happen, while there is so much going on elsewhere. On the GFD he will learn to recognize when it is time to go now that the opiod effect is removed. 😊

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      1

      Sarah Grace

    2. - Sarah Grace posted a topic in Related Issues & Disorders
      1

      Sarah Grace

    3. - trents replied to J1707's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      False reading as of right now

    4. - Jammer replied to Kate1990's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      gluten-free supplements in Canada

    5. - J1707 replied to J1707's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      False reading as of right now


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,036
    • Most Online (within 30 mins)
      7,748

    Brett D.
    Newest Member
    Brett D.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Have you tried a diet with a lower carb, higher fat content, something similar to the Keto diet? Are you familiar with the ketogenic diet? Fat satisfies and so curbs hunger and levels out blood sugar.
    • Sarah Grace
      I've was diagnosed celiac over 10 years ago when in mid 50s.  For a long time I have been getting headaches at night and in the morning and I suffer a lot of insomnia.  The headaches can be very severe and sometimes develop into a full migraine but other times they wear off within an hour of getting up and eating breakfast.  I have self diagnosed this a hypoglycaemia.  The medical profession in UK, where I live, does not seem to know anything of this and simply tests me for diabetes, which I do not have.  I know this condition is diet related and caused by carbohydrates, I avoid eating in the evenings.  Whatever I do, this condition seems to be getting worse and is very difficult to control.  Any advice would be much appreciated.
    • trents
      But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
    • Jammer
      Hi Kate,   I am unsure if this is helpful or not. I have Webber calcium citrate everyday. I also react to less than 20 ppm of gluten. I have not reacted to Webber ever. (Fingers crossed it stays that way). Also, I get my blood tested every 6 months to ensure I have zero gluten exposure. It consistently comes back negative(0) to gluten.  A few years ago, my stomach would feel nauseous after taking Ca+  but thankfully that doesn’t happen anymore. Good luck and I hope you find something that works for you.    all the best,    J 
    • J1707
      Honestly that's a good question, but I would like an official answer since I'm not a professional and my doctor's in my opinion no offense to them I'd say gone about it in a unprofessional way unless other's have been told to go gluten free, get a biopsy, just to go back gluten due to a possible false reading and then gotta go back for another biopsy But if it really was up to me per say then I'd definitely stay gluten free like this diet change has really helped me a lot in a lot of ways, not just for health reasons, but discipline toward not indulging to much on things i used too, not to mention being more aware of what I'm intaking by reading labels more and calling the manufacturers to find more answers if needed.
×
×
  • Create New...