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  • Recent Activity

    1. - Barcino posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      Antibodies went up

    2. - jjiillee replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Daughter waiting for appointment

    3. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
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      Skinesa

    4. - knitty kitty replied to BoiseNic's topic in Dermatitis Herpetiformis
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      Skinesa

    5. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
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      Skinesa


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  • Posts

    • Barcino
      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.6 July 2024 to now back up to 35.7.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.  Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free.    Thank you for any input you may have.
    • jjiillee
      She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy.  They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 
    • BoiseNic
      Agreed. Dairy is just as bad as gluten for me.
    • knitty kitty
      Many probiotics start with growing the bacteria on a dairy substrate leaving traces of dairy in the probiotics.   Many Celiacs react to dairy in the same way as they react to gluten because certain protein chains in dairy resemble gluten protein chains.   @Wheatwacked ferments his own pickles.  Perhaps he can chime in.
    • BoiseNic
      Yes it happens if I eat yogurt to.
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