Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing advice


Ddowda74

Recommended Posts

Ddowda74 Rookie

Hi! I am new to this website. I have had many years of issues with stomach issues and intolerance to a lot of things. This past year  I have developed a rash on my cheeks (thought to be roseacea) and sometimes my chest and was told by my doctor that she absolutely believes that I am gluten intolerant. I also have developed bad anxiety/panic attacks. I was scoped 10 years ago and they did not find celiac. I am wanting to know  what I should be ask to be tested for. My endocrinologist highly suggests going gluten free because she said I am text book case for symptoms of gluten intolerance. Should I be tested for other food allergies. Did you notice that skin rash/rosacea and anxiety fade after being gluten free? My thyroid also goes hyperactive..which my endocrinologist said the thyroid battles with gluten. Any suggestions would be appreciated. I don’t know how far to go with being gluten free..but I am willing to try anything as my symptoms continue to get worse. Thanks in advance for any suggestions. 
 

Dana

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

All the symptoms you mention could be linked to celiac disease or non-celiac gluten sensitivity, so I can understand why your doctor thinks that you may want to try going gluten-free. If you are gluten sensitive, then a gluten-free diet would likely relieve many, if not all of your symptoms. 

You mentioned having an endoscopy done that was negative, but the normal first step would have been a celiac disease blood panel before that. Do you recall having this done? If so, could you get the test results and share them here? 

In order to get a blood test you would need to eat ~2 slices of wheat bread daily for 6-8 weeks beforehand.

Link to comment
Share on other sites
Posterboy Mentor
On 8/7/2022 at 10:40 PM, Ddowda74 said:

Hi! I am new to this website. I have had many years of issues with stomach issues and intolerance to a lot of things. This past year  I have developed a rash on my cheeks (thought to be roseacea) and sometimes my chest and was told by my doctor that she absolutely believes that I am gluten intolerant. I also have developed bad anxiety/panic attacks. I was scoped 10 years ago and they did not find celiac. I am wanting to know  what I should be ask to be tested for. My endocrinologist highly suggests going gluten free because she said I am text book case for symptoms of gluten intolerance. Should I be tested for other food allergies. Did you notice that skin rash/rosacea and anxiety fade after being gluten free? My thyroid also goes hyperactive..which my endocrinologist said the thyroid battles with gluten. Any suggestions would be appreciated. I don’t know how far to go with being gluten free..but I am willing to try anything as my symptoms continue to get worse. Thanks in advance for any suggestions. 
 

 

On 8/7/2022 at 10:40 PM, Ddowda74 said:

My thyroid also goes hyperactive..which my endocrinologist said the thyroid battles with gluten. Any suggestions would be appreciated. I don’t know how far to go with being gluten free..but I am willing to try anything as my symptoms continue to get worse. Thanks in advance for any suggestions. 

Ddowda,

Taking some Magnesium and Selenium (eating Brazil nuts) and taking a Zinc/Copper supplement might help your Thyroid issues.  I had the beginnings of a thyroid problem once......and focusing on my metals like Zinc, Selenium and Magnesium helped my thyroid problems!

Most doctor's don't know about the link between a Thyroid problem (especially hyperactive Thyroid issues (commonly known as Grave's disease) and I only recently found out about it myself....

But after taking the above Minerals (especially the Zinc, Magnesium and Selenium) my thyroid problems got better....

See this research entitled "Magnesium metabolism in hyperthyroidism"

https://pubmed.ncbi.nlm.nih.gov/8930527/

Where they note quoting

"These observations clearly indicate that in Graves' disease, the magnitude of magnesium metabolism alteration is closely related to the extent of the increase in thyroid hormones in plasma."

And Magnesium is an important nutrient for a healthy immune system.

I also recommend trying some thiamine......as it also has been shown to be important for a healthy thyroid.

See this research about it entitled "Thiamine and Hashimoto's thyroiditis: a report of three cases"

https://pubmed.ncbi.nlm.nih.gov/24351023/

I hope this is helpful but it is not medical advice.

Posterboy,

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Potential diagnosis

    2. - cristiana replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Potential diagnosis

    3. - matts replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Potential diagnosis

    4. - cristiana replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Potential diagnosis

    5. - knitty kitty replied to Neat1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Maybe celiac, maybe just ncgs?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,154
    • Most Online (within 30 mins)
      7,748

    HannahF
    Newest Member
    HannahF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      Based on the normal range and units, that looks like a test for total IgA, not a celiac specific test.  Were any other tests run?
    • cristiana
      Hi @matts Yes.... it's a mystery to me why we are holding onto that 'o'.   I expect it won't be there in 100 years! I think you are very wise to go back to your GP to chat through your options.   If you would like to know one way or another, he or she may be happy for you to see a gastroenterologist through the NHS.   If not, and you would still like to know and can afford it, you could do what my friend did,  She went direct to a consultant at our local private hospital to have an endoscopy.  Her situation was different from yours in that she did not test positive, but she did have gastric symptoms.  Her Dad was a coeliac and she wanted to be sure she wasn't one of a small number of coeliacs that don't ever test positive in the blood test, but do have villous damage in their gut. I do hope things work out well for you - perhaps drop by and give us an update sometime! Cristiana 
    • matts
      Hi Cristiana, You’re spot on, I am from the UK!  In terms of eating gluten prior to the blood test, I only had a week in between requesting and having it done but I think it would be accurate in terms of how much I’d eaten, I have two slices of toast most mornings and gluten included in most other meals throughout the day. Thank you for the article, as you said with the family history it is probably correct that it should be investigated further. I’ll contact my GP on Monday and ask for further investigation, as you said I know they aren’t massively over the normal limit but must be a ‘normal’ range for a reason and if it’s come back above it then it needs looking at!  I’ll continue my diet as is for now so then if I do have further tests then they should be accurate results. Thanks again, Matt  
    • cristiana
      Hi @matts Welcome to the forum. I'm a coeliac living in the UK.  I have a hunch you may be posting from the UK because of the way you spell 'coeliac.'  Our American friends, quite sensibly in my opinion, drop the 'o'! Anyway, if so the UK, 'satisfactory' blood tests mean as follow: 'Satisfactory. Take no action - This means that the doctor has looked at the results and deemed it to be very close to the normal range for the test and the result is not concerning. Some patients have consistently abnormal results that are 'normal' to them.'  Source: https://www.nrmc.nhs.uk/test-results#:~:text=Satisfactory.,are 'normal' to them. Now,  I have annual/biannual blood tests and get a few blood tests that consistently hover just above normal limits, and they come back with that typed next to them.  The doctors can look back at my records and see that the readings are normal for me. However, under your particular circumstances I would definitely request to be sent to a gastroenterologist.  Because although your GP considers your blood tests are satisfactory, i.e. just outside normal limits, they ARE nevertheless outside normal limits and you do have a first degree relative with Coeliac Disease.  I am no doctor but I would say this gives sufficient grounds for investigation, especially if you have been experiencing any gastric symptoms,  or seemingly unrelated things like headaches, tingling extremities, or tiredness - the symptoms of coeliac disease vary enormously from individual to individual. Also, may I ask you, have you been consuming gluten with most meals in the past few weeks prior to your blood test?  For a positive blood test,  coeliacs need to consume the equivalent of about 2-3 slices of gluten containing bread a day over a six to eight week period.  Because if you don't eat much gluten, you may not be reacting much.  Bear in mind that if you do go forward for further blood tests or an endoscopy, you will need to keep eating gluten. If it turns out you are a coeliac, in the UK a coeliac diagnosis will entitle you to all sorts of important NHS health monitoring and support, which in the long-term even if you are feeling well now, could be very beneficial to your health.   One other reason it would be good to know one way or another, is because if you turn out to be a coeliac, you will need to take the diet extremely seriously.  It can at times be a bit restricting, as you mother I am sure will tell you.  And gluten free substitutes can be expensive - my gluten-free pasta, my gluten-free chocolate biscuits, my gluten-free bread adds pounds to my weekly shop!! Cristiana      
    • knitty kitty
      @Neat1, I so glad you're going to try Thiamine!   Do let us know how it goes.   Benfotiamine is the form of Thiamine that may be very helpful to you.  Benfotiamine has been shown to promote healing in the intestines.  Be sure to take a B Complex because all eight B's work together.  Try to get a minimum of 300 mg a day of Benfotiamine.  Higher doses are needed to correct low thiamine.  Add a magnesium supplement.  Ask your doctor to check your Vitamin D level, which is frequently low in celiac disease.   Diamine Oxidase (DAO) supplements are digestive enzymes that may help until you start making sufficient amounts yourself with supplemented B vitamins. Chronic sinus infections are common in Celiac Disease.  
×
×
  • Create New...