Supplements for those Diagnosed with Celiac Disease

[Wheatwacked]

On 2/3/2026 at 9:43 PM, asaT said:

very low vitamin d, 10

Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone.

I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue.

To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board.

The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night.

Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source.

Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back. 

I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress.

Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.

 

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Iodine is crucial during menopause as deficiency symptoms (fatigue, mood swings, brain fog, weight changes, bone loss, hot flashes) overlap with menopause symptoms, and adequate intake supports thyroid and bone health, which decline with age; studies show lower iodine levels in postmenopausal women with osteoporosis, linking iodine to bone mineralization, while thyroid issues (requiring iodine) also affect menopausal symptoms like libido and dryness. Ensuring sufficient iodine from food or supplements (like iodized salt, seafood) helps manage these common issues, though consult a doctor before supplementing. - Google

 

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The amount of choline that individuals need is influenced by the amount of methionine, betaine, and folate in the diet... Most people in the United States consume less than the AI for choline. 

Choline deficiency can cause muscle damage, liver damage, and nonalcoholic fatty liver disease (NAFLD or hepatosteatosis)   Choline Fact Sheet for Health Professionals

Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men

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Research by vitamin D pioneer Dr. Michael Holick, Professor of Medicine, Physiology, and Dermatology at Boston University School of Medicine, recommends intakes of up to 2,000 IU a day — or enough to keep blood levels of 25(OH)D between 50 to 125 ng/ml."   Are You Getting Enough Vitamin D?

 

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Vitamin D Is Not as Toxic as Was Once Thought

Vitamin D intoxication associated with
hypercalcemia, hyperphosphatemia, and sup
pressed parathyroid hormone level is typically
seen in patients who are receiving massive doses
of vitamin D in the range of 50,000 to 1 million
IU/d for several months to years. Ekwaru et al16
recently reported on more than 17,000 healthy
adult volunteers participating in a preventative
health program and taking varying doses of
vitamin D up to 20,000 IU/d. These patients did
not demonstrate any toxicity, and the blood level
of 25(OH)D in those taking even 20,000
IU/d was less than 100 ng/mL. For point of
reference, a 25(OH)D level of 100 ng/mL

Quote

A recent national study found that cows fed a diet of totally organic grass and legumes produced milk with elevated levels of omega-3 and CLA, which provides a markedly healthier balance of fatty acids. The improved fatty acid profile in grass-fed organic milk and dairy products brings the omega-6/omega-3 ratio to nearly 1 to 1, compared to 5.7 to 1 in conventional whole milk.  Grass-fed cows produce healthier milk

 

[Florence Lillian]

Hi all:

Scott, I am glad you listed all your supplements, etc, many new to Celiac will be floundering as I was when diagnosed in 1979.  After much trial and error, the following supplements are now a daily MUST HAVE for me.  We have to keep in mind, too much can be just as damaging as too little. Further, I have found that 'brands' of supplements vary hugely! I tend to go with the newer ones as I find they 'digest' better, and digestion is HUGE with many of us. In hopes my input may help someone through the jungle of supplements:  I buy from Amazon. I take Naka Cal/Mag Marine Algae with Vit D.  Explanation here re/ Algae: I do not take anything with fish oil. I can't swallow large capsules so I chew them...a bit 'fishy' tasting but not bad. I was using a top brand but one day it tasted like...rotten, strong, yucky fish taste. I switched to Algae, I also have a 'thing' about farmed fish full of anti-biotics but don't get me started on that...I digress. I take extra D3, Celiacs need this.. I get the one from Sports Research, great company in U.S.A.  I also take B complex from 'Thorne' as well as extra B12 subliminal, another one Celiacs need. I agree with Scott the need for extra B12 for a clear brain. I also take a Multi vitamin with Zinc- Naka brand.  Also, K2 MK7 is a must for Celiac... and finally, I take Omega-3 Algae.  I truly hope this helps someone -  I know the struggle well. 

Florence.  

[Margaret - W]

I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful. 

Regards Margaret. 

[Wheatwacked]

@Margaret Wheatley

Thank you and welcome to the forum.

[xxnonamexx]

On 2/11/2026 at 1:02 PM, Florence Lillian said:

Hi all:

Scott, I am glad you listed all your supplements, etc, many new to Celiac will be floundering as I was when diagnosed in 1979.  After much trial and error, the following supplements are now a daily MUST HAVE for me.  We have to keep in mind, too much can be just as damaging as too little. Further, I have found that 'brands' of supplements vary hugely! I tend to go with the newer ones as I find they 'digest' better, and digestion is HUGE with many of us. In hopes my input may help someone through the jungle of supplements:  I buy from Amazon. I take Naka Cal/Mag Marine Algae with Vit D.  Explanation here re/ Algae: I do not take anything with fish oil. I can't swallow large capsules so I chew them...a bit 'fishy' tasting but not bad. I was using a top brand but one day it tasted like...rotten, strong, yucky fish taste. I switched to Algae, I also have a 'thing' about farmed fish full of anti-biotics but don't get me started on that...I digress. I take extra D3, Celiacs need this.. I get the one from Sports Research, great company in U.S.A.  I also take B complex from 'Thorne' as well as extra B12 subliminal, another one Celiacs need. I agree with Scott the need for extra B12 for a clear brain. I also take a Multi vitamin with Zinc- Naka brand.  Also, K2 MK7 is a must for Celiac... and finally, I take Omega-3 Algae.  I truly hope this helps someone -  I know the struggle well. 

Florence.  

Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin for Men and woman 50+ Natures made multivitamin for her as it gives the right amount needed for both men and women as the mens has too much. For Probiotics ALign came out on top the 5x and the one for bloating. Knitty Kitty provided me good supplement brands as well.

[Scott Adams]

15 hours ago, Margaret Wheatley said:

I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful. 

Regards Margaret. 

A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.