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  1. Scott Adams

    Scott Adams


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    • Scott Adams
      Welcome to the forum! I’m sorry to hear about everything you’ve been going through—your symptoms sound so intense and scary. That reaction must have been very hard to endure, and it’s incredible that you’ve taken the steps to manage your health by going gluten-free. It’s not uncommon for some people’s gluten sensitivities to escalate into celiac disease, especially after major physical stressors like medications or other health conditions. Your symptoms after accidental gluten exposure—abdominal pain, bloating, diarrhea, and vomiting—are shared by many here, and you’re not alone in avoiding the six-week gluten challenge before testing. Many people decide against it due to how unwell it makes them feel. I completely understand your caution around eating out; dining can sometimes feel like a gamble, even with "gluten-free" items on the menu. For situations like the sourdough mix-up, some people find it helpful to chat directly with the chef or request packaging info if available. It doesn’t guarantee safety, but it sometimes helps. Have you tried keeping a food diary? Also, if your symptoms get intense again, don’t hesitate to consult with a doctor just to keep an eye on your overall health, especially with the fainting spells you experienced. This article regarding accidental gluten exposure, and the comments below it, may be helpful:   This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Welcome to the forum! It took me 1-2 years to figure out the diet, but there is a lot more info now that is available so you should be able to do this faster.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Patricia cote
      I am so grateful to see this thread!! I found your thread three days after eating Daiya cheese. I had been suffering with severe indigestion with spasms and cramping under my ribs starting a half hour after eating it. I had contacted my doctor about my symptoms because I have kidney stones and thought they might be the cause. He advised me to go to the emergency room. I did. I had blood, urine, echo, and CT scans. They all showed normal. The doctor actually told me to use heating pads and Tylenol.    After I saw this thread, I was convinced it was the cheese. I had an idea to take syrup of ipecac to clear my stomach. Online, I found advice that, before using it, you should call the poison control center. I’m so glad I did!  The fellow in the poison control center told me first of all that syrup of ipecac only works if you use it up to two hours after you have ingested the thing. He said that the Daiya cheese has extremely high level of coconut oil, which can cause bloating and obstruction. He advised me to take over the counter simethicone regularly. I am on day four of his protocol and the pains have moved down to my intestines and are now at a tolerable level. 
    • Louise Broughton
      Hi I’m Louise and live in the uk. I’m 70. I had a very rare reaction to a drug called pegylated interferon ( Pegasys) which turned a gluten sensitivity into full blown celiac.  I studied nutrition and dietetics about 50 years ago. I put myself onto a totally gluten free diet about 3 months ago after what I believed to be a massive gluten flare: symptoms: profuse sweating - dripping off my chin shaking dizziness brain fog severe abdominal pain bloating and diarrhoea vomiting and finally - passing out and crashing my head on the bath All that lasted two days, followed by a week of nausea and bloating  since then I have ingested small amounts of gluten ( unknowingly) and suffered abdominal pain, bloating, diarrhoea and vomiting. No fainting thank heavens.  I haven’t been tested - in the uk we have to eat gluten for SIX weeks prior to an endoscopy - something I m not prepared to do!    It isn’t difficult to eat gluten-free in the uk - but hospitality outlets tend to vary and it’s like playing Russian roulette. I was served gluten-free soup with sourdough bread last week…. anyway thank you for reading this, all tips appreciated and I would really appreciate knowing if anyone else’s symptoms are as serious as mine. Thanks Louise 😊
    • Juliaaub15
      Hi everyone! My name is Julia, and I was diagnosed with celiacs disease a little over a year ago. Let me say this, this year has been one hell of a ride. I feel like I keep making the same mistakes. My doctor said, "It'll get better, you just have to eat 100% gluten free". Now, I have discovered I am the symptomatic kind. Cross contamination is a bigggg no-no for me. I can't go out to eat, more like I am terrified to eat out because it seems like no one knows what gluten is. Or the severity of it. How long did it take for some to finally get the routine down? I just feel like I keep making the same mistakes over and over again. I want to feel good in my body like I once did. I don't want to feel bloated, and have a rollercoaster ride for bowel movements. It was halloween yesterday and I was working, so of course I had a couple of candies my coworkers brought it. I though reese's were gluten free, and they are, but I just learned that the holiday shaped ones are not (go figure). I guess they put flour in the molds so the candies can pop out? I don't know. Can we literally only put things in our body if it says it's gluten free on the package? Or homemade? I am a 22 year old, who likes to have a social life. And I feel like everyone my age likes to go out, eat, drink, have a good time. But I can't. It seems like such a struggle to find places I can actually trust won't make me sick. How long did this journey of finally being healthy again kick in for you guys? Do you only eat things that say are gluten free? I don't know what I'm doing wrong anymore. 
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