Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Busy Mom of 3 - Tired of This Disease


Rachel Docksteader
Go to solution Solved by trents,

Recommended Posts

Rachel Docksteader Newbie

Anyone else just about fed up with Celiac Disease? The amount of time I spend preventing cross contamination with every single meal and every single snack is… enough to drive someone mad. 
 

Making the rest of the family food while also preparing my gluten-free food - hey, I want spaghetti too! Trying to do it simultaneously on different sides of the kitchen. Wash hands every time I touch something. Did  I use that spoon for the gluten pasta by accident? I better just grab a new one. Wash hands again.

About to sit to eat my gluten-free sandwich - have to help one of the kids with their gluten sandwich. Wash hands. Again.


Every day.
 

All this work and then I accidentally gluten myself because I’m such a mombie (#exhaustedmom) that I slip up in the busyness of it all and gluten myself by an eating a piece of their pan pizza to test if it was ready. Thinking I made it with the gluten-free tortillas. Wrong. These were the full on gluten ones. >face palm< 

Well, there goes my next few days. Send help. 😫 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wheatwacked Veteran
(edited)
22 minutes ago, Rachel Docksteader said:

I want spaghetti too!

Try the Ronzoni Gluten Free Thin spaghetti. They won't notice the difference. 

I use Against the Grain 3 cheese pizza. brush the bottom with Grapeseed oil, add my own pizza sauce olive oil and sliced mushrooms and mix it in to the cheese. I panfry it in a cast iron frypan covered, but then I only cook one quarter at a time. It would probably do as well in a very hot oven on a tray. The grapeseed oil makes it crisper.

Yeah, the thrill of Celiac disease is over for me too.  Time to wake up. LOL

Edited by Wheatwacked
knitty kitty Grand Master
(edited)

@Rachel Docksteader,

Have your kids been tested for Celiac Disease?  Even if they don't have symptoms yet, they could have inherited Celiac genes from you.  Cutting the kids' exposure to gluten now may help prevent them from developing Celiac later.  

There are many members who have a strict gluten free home, but allow gluten eating outside of the home.  Save your sanity!   

Edited by knitty kitty
Typo correction
Rachel Docksteader Newbie
2 hours ago, Wheatwacked said:

Try the Ronzoni Gluten Free Thin spaghetti. They won't notice the difference. 

I use Against the Grain 3 cheese pizza. brush the bottom with Grapeseed oil, add my own pizza sauce olive oil and sliced mushrooms and mix it in to the cheese. I panfry it in a cast iron frypan covered, but then I only cook one quarter at a time. It would probably do as well in a very hot oven on a tray. The grapeseed oil makes it crisper.

Yeah, the thrill of Celiac disease is over for me too.  Time to wake up. LOL

Okay! I’ll have to see if we sell either of those in our stores here. The options are definitely getting better than what used to be available, thankfully, but we still don’t have as many of the brands/options I’ve seen people talk about! 

Rachel Docksteader Newbie
2 hours ago, knitty kitty said:

@Rachel Docksteader,

Have your kids been tested for Celiac Disease?  Even if they don't have symptoms yet, they could have inherited Celiac genes from you.  Cutting the kids' exposure to gluten now may help prevent them from developing Celiac later.  

There are many members who have a strict gluten free home, but allow gluten eating outside of the home.  Save your sanity!   

My two oldest have my 5& 3 year olds have been tested and are negative - my (newly) 2  year old still needs to her his. My doctor has been great to screen them young for my peace of mind. I pray they don’t end up with this but will test again if they start to develop symptoms or I’m worried.

I’ve thought about going completely gluten-free in the house. We don’t do any gluten free baking in the house - so I guess that’s a step towards it. Absolutely no gluten flours floating in my air haha!
 

 

  • Solution
trents Grand Master

Yes, it sounds like you may need to declare your house a gluten free zone. Let the other nonceliac members of the family get their gluten elsewhere.

Scott Adams Grand Master

I am in a mixed gluten-free vs. eat gluten house, and it does take everyone following some basic protocols to keep things safe. It's more expensive to take the whole house gluten-free, and some of your family members may revolt against the idea, but hopefully they will understand.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel Docksteader Newbie
9 minutes ago, Scott Adams said:

I am in a mixed gluten-free vs. eat gluten house, and it does take everyone following some basic protocols to keep things safe. It's more expensive to take the whole house gluten-free, and some of your family members may revolt against the idea, but hopefully they will understand.

Yes, at this point I don't see our house going completely gluten free...the prices where I am are insanely high for gluten free foods. I think it's like that most places from what I've heard. I want my kids and husband to be able to eat as normally as possible. As much as it would be nice to not have the extra worry when I'm preparing food, it simply doesn't make since for our family.

Thanks for your message - it helps to have this community. Have been celiac for years but just found this forum yesterday!

Hypo Rookie
10 hours ago, Rachel Docksteader said:

Yes, at this point I don't see our house going completely gluten free...the prices where I am are insanely high for gluten free foods. I think it's like that most places from what I've heard. I want my kids and husband to be able to eat as normally as possible. As much as it would be nice to not have the extra worry when I'm preparing food, it simply doesn't make since for our family.

Thanks for your message - it helps to have this community. Have been celiac for years but just found this forum yesterday!

I am sorry but I can't understand this. We have a person WITH a disease, who already has a hard time because of it, who has to accomodate people WITHOUT the disease. Instead of the other way around. On top of it all, the person with the disease is the one doing all the work, food wise (if I understood correctly), making multiple meals, etc..

I suspect it has to do with women and mothers always willing to sacrifice more than they should.

This is your health we are talking about, that can be endangered with cross contamination, and your mental peace that is affected by constant worry and fear of CC. Gluten free is not neccessarily more expensive. You can still get 95 percent of the same food (meat, fish, veggies, fruit, rice, eggs, dairy, nuts, you name it)! The only investment I made was a bread maker to make gluten free bread. gluten-free flour is more expensive, that is true, but a) bread is not that healthy to eat so much of anyway, b) it is not that much more expensive if we consider all the junk we buy and eat all the time that is really not necessary.

And if your family needs a gluten fix, they can go into any cheap fast food chain and get a burger, eat a bag of cookies somewhere or even bring that home and eat it and clean after themselves. But there is ABSOLUTELY no need for you to prepare gluten meals at home and constantly contaminate your kitchen, and give yourself more work and worry (and with 3 kids you already have plenty of that).

My whole houeshold is gluten free, because of me. And I will not make any accommodations regarding this. My health and well being is more important than my family's petty wish to have a "real" pasta or bread instead of its gluten free version (and which they can get outside anyway - they are not permanently barred from it.) Period. Anything else would just be really selfish, inconsiderate and disrespectful from their side. I value myself more than that and so should you.

trents Grand Master
14 hours ago, Rachel Docksteader said:

Yes, at this point I don't see our house going completely gluten free...the prices where I am are insanely high for gluten free foods. I think it's like that most places from what I've heard. I want my kids and husband to be able to eat as normally as possible. As much as it would be nice to not have the extra worry when I'm preparing food, it simply doesn't make since for our family.

Thanks for your message - it helps to have this community. Have been celiac for years but just found this forum yesterday!

I largely agree with what Hypo said and would like to emphasize that eating gluten-free need not be expensive if you focus on eating fresh foods like meat, veggies and fruit. It's the processed, ready made gluten-free stuff that is costly.  Actually, converting to a gluten-free household can be healthier in that sense for everyone because it eliminates a lot of junk carbs that most household eat too much of.

KHL Rookie
On 3/10/2023 at 7:42 PM, Rachel Docksteader said:

Okay! I’ll have to see if we sell either of those in our stores here. The options are definitely getting better than what used to be available, thankfully, but we still don’t have as many of the brands/options I’ve seen people talk about! 

If you live in a smaller town, you can look to online shops that deliver better quality gluten free items. A few options (for Canadians): 

https://naturamarket.ca/values/gluten-free.html

https://www.healthyplanetcanada.com/grocery/gluten-free.html

https://well.ca/categories/gluten-free_967.html

GlutenbusterMama Rookie

My oldest son and my husband are celiac and me and my youngest son are not. I find that making one gluten free meal for all of us makes life easier. There are so many gluten-free dinner options that taste as good as the regular version, we hardly notice the difference. gluten-free pasta, gluten-free tortillas, gluten-free nuggets are all staples in my house and they make easy dinners. It makes life easier and it's so much safer for the celiac's in the house. It was overwhelming at first to switch everything but now that we have been doing it awhile, no one notices or complains.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,480
    • Most Online (within 30 mins)
      7,748

    GinnyA
    Newest Member
    GinnyA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • aperlo34
      Title says it all. I’m at 4 months since Dx/starting gluten-free diet but the last month and a half I’ve had pretty irritated eyes. Originally they started really dry and sensitive to light, especially in the morning. Saw the eye doc and he said eye strain/dry eyes due to season change/radiators turning on in my apartment. I’ve been using a heat mask and eye drops and that helped a lot. However my eyes still feel tired and red and gunky, but not really dry anymore. Just a bit irritated.    any thoughts?   THANKS!
    • Mmar
      Hello! I have been on a strict gluten-free diet for 20 years after my initial diagnosis, but in July had an endoscopy that showed villous atrophy (but multiple ttgs have all been normal). I have gone through everything in my house to eliminate any gluten and have been eating almost no processed foods, and will be getting a second endoscopy in a month because my GI doctor thinks it could be refractory celiac. She told me that if it’s refractory, I would need to see a “specialist” because she doesn’t know enough.  I live in Philadelphia and the Celiac Center at Jefferson has 0 appointments with any doctors, I keep trying. Does anyone know of either a doctor in Philadelphia that treats refractory celiac or a doctor elsewhere that does virtual appointments to treat refractory? Thank you!
    • knitty kitty
      @GardeningForHealth, On my journey, I found following the Autoimmune Paleo Diet most helpful in reducing reactions to various foods.  It's very restrictive, but it really helps improve gut health.  It's worth the effort for a few weeks or months. Tea from any grocery store; Tea, organic; Tea, grown in USA, never-sprayed, loose leaf Tea contains TANNINS which can inactivate Thiamin resulting in Thiamin deficiency.  Tannins inhibit the absorption of other vitamins and minerals, especially iron. Tannins can inactivate digestive enzymes.  So drink tea between meals.  Choose a tea with lower levels of tannin, like green tea or Oolong tea.  Oolong tea contains amino acid Theanine which reduces inflammation in the digestive tract. Dairy; Rice, any brand, even after washing 3 times Many people develop Lactose intolerance because damaged villi in the intestinal lining of the digestive tract cannot produce the enzyme Lactase needed to digest the sugar in dairy, Lactose.   Many people with Celiac Disease react to the protein Casein the same as they react to the protein Gluten.  This is because both Casein and Gluten, as well as the protein in rice, carry a similar segment of a protein building block chain (33 mer peptide) that triggers the autoimmune response in Celiac Disease.  Basmati rice is less likely to carry this protein chain and may be better tolerated.  Don't wash rice before cooking.  The added vitamins get washed away.  Some of those grains of rice are extruded vitamins.  They dissolved into the cooking water and are reabsorbed into the grains as the rice cooks. Organic catchup, Potatoes; Tomatoes are a member of the Nightshade vegetables which have been shown to increase gastrointestinal permeability and "leaky gut syndrome."  Potatoes, Peppers and Eggplant also belong to the Nightshades, and should be avoided until healed.  Catsup usually is acidic which can be irritating to the digestive system. Any and all brands of gluten-free breads and dessert items; Cassava flour; Gluten-free flour Often these contain cross contamination with gluten.  @Scott Adams recently posted a new article about this.  Gluten free products are not enriched with vitamins and minerals needed to digest and process them.  They are high in insoluble fiber and saturated fats.  These may also contain microbial transglutaminase, see below. Sausage, Any processed meat These foods contain microbial transglutaminase, a flavor and texture enhancer, called "meat glue" in the food processing industry, which triggers and provokes anti-gluten antibodies to attack the microbial transglutaminase as well as the tissue transglutaminase produced by our own bodies as with Celiac Disease.  We have articles about microbial transglutaminase, too.  Cassava also contains Thiaminase, an enzyme which destroys Thiamin. Cucumbers from a grocery store, but not from my garden, Most apples, Zucchini, Plums Cucumbers, like these other fruits and veggies, contain lots of soluble fiber, pectin, which intestinal bacteria can ferment and then make short chain fatty acids, which are beneficial.  So that's a good thing.  However, commercially produced breeds of veggies and fruits may contain higher levels of pectins than historically home grown varieties.  Excess consumption of pectins can result in gas, bloating and diarrhea.   Bottled spices  There's an article (perhaps @Scott Adams can help us find, please) about how some spices can cause gastrointestinal symptoms. Gluten-free dairy-free ice cream These can cause reactions if one reacts to oats.  Products made from nuts or nut milks may contain high levels of lectins which are hard to digest and can cause all the usual symptoms.   Smoke from a fire; Strong cleaning chemical fumes These contain Sulfites.  Developing a hyperensitivity to Sulfites is possible in Celiac Disease.  We can be low in vitamins and minerals needed to process Sulfites.  I have Hypersensitivity Type Four where the immune system identifies Sulfites as something to be attacked.  Celiac Disease is another Hypersensitivity Type Four disorder. Packaged sweet potato chips; Packaged plantain chips;  Rice; Any and all brands of gluten-free breads and dessert items; Cassava flour; Gluten-free flour; Gluten-free dairy-free ice cream A High Carbohydrate diet can lead to Small Intestinal Bacterial Overgrowth (SIBO).  Adopting a Paleo diet like the AIP diet is a great way to change your gut biome without using antibiotics which kill off the bad with the good bacteria.  Taking probiotics may not be very effective as long as SIBO bacteria are entrenched in the digestive tract.  You change what you eat and you change what grows inside you.  You starve out the bad SIBO bacteria, repopulate and feed the good ones.  Supplementing with Benfotiamin helps because thiamine has antibacterial properties that keeps the bad bacteria in check and benefits the good bacteria.  Benfotiamin is needed to process all those carbs turning them into energy instead of them turning to fat.   I hope this has been helpful.
    • trents
      Welcome to the forum @Newhere19! Yes, we have had many forum members that for one reason or another cannot go forward with the confirmation step of the endoscopy with biopsy. Usually it is because they have already been gluten free for a significant period and react so severely to gluten ingestion that they cannot undertake the gluten challenge without endangering their health. But we also have had more than a few who have severe anxiety surrounding the endoscopy itself and cannot bring themselves to go forward with it. May I ask, what was your antibody score or scores, what was the name of the test or tests done and what were the ranges given for normal/negative vs. positive?  What symptoms do you have? What caused you to seek out celiac testing? And to answer your question, many on this forum have had to go forward with the gluten free diet without an official diagnosis for the reasons already stated. You should start seeing symptom improvement within weeks. But realize that achieving a truly free gluten lifestyle is more challenging than most of us realize at the outset. There is a real learning curve involved in order to achieve consistency. That is partly due to the many unexpected places gluten is tucked away in the food supply/supplements/medications and partly because of CC (Cross Contamination) issues. I will offer this primer to get you off to a good start:  
    • Newhere19
      I recently had bloodwork done with a GI specialist and was told that I have celiac.. .but they will not confirm the diagnosis without an endoscopy and biopsy. Due to severe trauma I cannot endure the endoscopy and they made it quite clear full sedation is not an option. So now I have to venture forward assuming this is in fact what is causing all of my symptoms. Has anyone else here had the same experience and started the gluten free diet to see if you're really suffering from celiac? If so, how long did you commit before safely saying the results are accurate? My thought was at least three months would be necessary. Much love to everyone ❤️ 
×
×
  • Create New...