Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body and exercise not how they used to be.


dhooden

Recommended Posts

dhooden Newbie

This is my first post so bear with me. 28 year old male, diagnosed with celiac disease probably almost 12 months ago. I went full cold turkey cutting out gluten and have been strict ever since. After losing 10kgs, I’m finally back to my pre celiac weight. I wish I could say I’m feeling great but something still feels a miss. I had trained for a half marathon before my diagnosis and was a frequent visit to the gym weekly. Since being diagnosed my body just doesn’t feel like it used to and neither does exercising. I average two 30min weight sessions a week and have just started back with a 5km run a week. It’s hard to describe but whilst I feel good at the time, post workout my body just feels fatigued and sore. Back pain, sore joints - my body just doesn’t feel like that of someone who is active and fit. It feels like I’m lacking something. I have had frequent blood tests / check ups and everything is in range. Have just started on a multivitamin this week in the hope that fills some gaps. I’m interested to know if anyone has had similar experiences. Am I being too hard on myself and do I need to give my body a better chance to recover? Exercise is a big mental and physical outlet for me but it just feels like my body needs a break. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wheatwacked Veteran
(edited)

Good job on staying gluten free for a year.

Over time the multi may help but for now you need more than the minimum for recovery.  The western diet has deficiencies, gluten free copy of western diet even more.

Particularly vitamin D, B vitamins, Iodine, Choline, Potassium.

High prevalence of vitamin D insufficiency in healthy Irish adults  Overall, half of the group (51%) had vitamin D insufficiency; 

10 Signs and Symptoms of Iodine Deficiency : Fatigue and weakness are also common symptoms of an iodine deficiency.

 

 

Edited by Wheatwacked
knitty kitty Grand Master

@dhooden,

Deficiencies in the eight essential B vitamins occur in Celiac Disease.  You may have become low (subclinical deficiencies) prior to diagnosis. 

The gluten free facsimile foods aren't required to be enriched with vitamins and minerals like gluten containing processed products. Supplementing with B vitamins and minerals like magnesium and zinc help our bodies heal.  

Physically active people benefit from taking additional Thiamine in the form Benfotiamine or Allithiamine (TTFD).  These have been shown to promote intestinal healing and enhance physical work outs.  

Hope this helps!

Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

  • 4 weeks later...
CatherineWang Apprentice

Of course because of the new diet you will feel different and maybe weak, because it's an important part of any exercise routine, but you are just overthinking. Your exams show that your body and health is ok, so just start to believe in yourself again and rely on your body.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,542
    • Most Online (within 30 mins)
      7,748

    NoemiMG
    Newest Member
    NoemiMG
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...