Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

8 year with Coeliac


Dan Maggs

Recommended Posts

Dan Maggs Newbie

Hello

My daughter who is 8 was diagnosed with Coeliac at 4 years old. Her symptoms were tummy pains and very bizarre stool colour, extremely pale.

She is strictly gluten free and we now know if she has accidentally had gluten as she immediately is very sick and just sleeps after.

Since her diagnosis she still complains of tummy ache, is quite gassy and her stools can still be, sometimes, pale and float. This makes me think that there is still a malabsorbtion issue.

We have been back to the Dr but find them quite 'wishy washy', in other words, not much help.

My husband and I have started a food diary and have cut milk out of her diet to begin with to see if this is causing an issue..

Has anyone else experienced something similar or know what could be causing the problem...

 

Thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, @Dan Maggs! It is a good idea to try cutting out dairy because celiacs are often lactose intolerant or cross react to the protein casein in dairy. Oats is another common cross reaction offender because the protein avenin in oats is similar to gluten.

Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

Is there any chance that your daughter could be getting gluten at school, perhaps from her friends at lunchtime?

 

Dan Maggs Newbie

Hi Scott.

 

Thank you for responding.

Emily has been strictly gluten-free since diagnoses 4 years ago. We have had the odd slip up at the beginning but for the last 2 years she has been totally gluten-free.

We removed oats about 5/6 months under the instructions of the DR.

Now if Emily has gluten-free she immediately projectile vomits, however little and has bad tummy pains - she knows immediately when she has eaten Gluten. So I don't suspect school or friends (plus most of the time she takes a pack lunch.

 

We have started a food diary and are eliminating Mill at the moment to see if that makes a difference. 

Scott Adams Grand Master

This article may be helpful:

 

 

  • 1 month later...
Paula McVicker Rookie

Hi DanMaggs

Congratulations on taking extreme care with your daughter's health. I bet no one has ever said that to you?!

I have a question, which you may or may not have thought about.

Has your daughter become a victim of some "bullies" that think it's funny to contaminate her food without her knowledge just to see her reactions?

It's an awful thing to think about but I myself experienced a lot of this type of thing growing up & it's extremely hard to detect.

After all an ounce of gluten is all it takes.

Good luck on your discovery journey I wish you well

RMJ Mentor

Has your daughter had repeat antibody tests?  If so, are they in the normal range or still elevated?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
14 minutes ago, RMJ said:

Has your daughter had repeat antibody tests?  If so, are they in the normal range or still elevated?

Good question and should be pursued to rule out cross contamination or other overlooked gluten exposure.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,952
    • Most Online (within 30 mins)
      7,748

    Mcavoyaz
    Newest Member
    Mcavoyaz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Nicbent35
      Wow she was just playing with play dough yesterday and I actually thought i wonder if I have to worry about play dough! But no meltdowns yesterday. Is your daughter celiac or just gluten sensitive/intolerant? Your son still had to go on Ritalin after going gluten free?
    • growlinhard1
      I had the endoscopy with biopsy done. I have gastritis and duodenitis at this point. The biopsy should provide the cause of the inflammation findings. How common are these findings when Celiac is the ultimate culprit?
    • Wheatwacked
      Welcome to the forum @cookiesyum, I lasted on staton for about a month before getting so weak I had to stop.   Switched to Nicotinic Acid and I posted the results in a previous post.  Instead of getting sicker and weaker on the statin I feel I am improving day by day.  Nicotinic Acid was first used for cholesterol in 1955.  
    • Wheatwacked
      According to research, consuming gluten can potentially trigger sudden mood swings and increased irritability in children, particularly those with gluten sensitivity or celiac disease, making them more likely to have tantrums or display behavioral issues; this is because gluten can trigger an immune response in the body, potentially impacting brain function and neurotransmitter levels.  When my son was diagnosed in 1976 when he was weaned his doctor told us that at 5 years old his kindergarden teacher would beg us to put him on Ritalin.  And so it did happen.  My son was on Ritalin though high school.  In the morning he was a devil who could not put on his socks. Half an hour after the morning dose he was an angel wanting to help mom get ready.  Talk about Jekyll and Hyde! Dr Danel Amen could be a good resource for you.   
    • MommaBear82
      Yes, it certainly can! My daughter has a reaction from just playing with Playdough. She doesn't get GI symptoms at first, just psychological mostly. It can get really bad. It's like night/day behavior. My daughter is eight, but started showing signs around 6.
×
×
  • Create New...