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Not celiac

Nicole boling
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Nicole boling Apprentice
Nicole boling
Posted

I was being treated for wheat/gluten intolerance had blood work and skin test positive for corn on skin test 5/6 blood work was negative for corn/maize and skin and blood work negative for wheat and gluten. I’ve been eating wheat and gluten again for three days and been fine. I was diagnosed wrong has this happen to anyone else?!

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Scott Adams Grand Master
Scott Adams
Posted

Can you tell us more about the blood screening they did for wheat and gluten? Were these allergy tests, or was this a celiac disease blood screening? I ask this because if it was an allergy test then it would not detect celiac disease.

Nicole boling Apprentice
Nicole boling
Posted
  • Author

They did blood work for wheat and gluten and skin pricking on my back. They also did blood work for celiac and the  genetic testing. Which was all negative. But on the skin  pricking it showed a 5/6 to corn and blood work showed no on maize. Corn starch really will set my heart off racing if I eat anything with it but seem fine if I have some things in the corn family. 

Scott Adams Grand Master
Scott Adams
Posted

In your initial post here you said: "I’ve been eating wheat and gluten again for three days and been fine. I was diagnosed wrong has this happen to anyone else?!", and the subject of your post is "Not Celiac."

Were you diagnosed with celiac disease? It sounds like you were, but it's not very clear. 

Nicole boling Apprentice
Nicole boling
Posted
  • Author

I was not now just everything that had gluten in it that I ate my heart would raise but everything that I ate had cornstarch in it and I was still having symptoms even going gluten-free, but I did test positive for corn allergy, which was five of six and the doctor said it wasn’t very high, but I was still showing symptoms of being  to Gluten-free my symptoms went  full-blown to corn but I can eat corn derivatives with out much trouble. Mainly corn starch and high furtose corn syrup is a huge NO

Scott Adams Grand Master
Scott Adams
Posted

So to be clear, you were never diagnosed with celiac disease, and your blood test for celiac disease was negative.

Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

Also, feel free to share your celiac disease blood test results here if you would like to. Sometimes the actual numbers reveal more than how the doctors interpret the results to you. For example, if your results showed 19 and the cut off for celiac disease was 20, then perhaps you do have an autoimmune response to gluten. Were you eating lots of gluten daily for at least 6 weeks before the blood test for celiac disease? If not, this could lead to a false negative result.

Nicole boling Apprentice
Nicole boling
Posted
  • Author

I was not eating gluten. But was still having issues and really seems to be corn that bothers me and everything that is gluten free almost has corn. I did test positive for corn and negative for wheat. 

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Scott Adams Grand Master
Scott Adams
Posted

I understand, but I just want you to understand that if they also did a test for celiac disease while you were not eating gluten, you could still have it even though your test was negative--your result could be a false-negative.

Nicole boling Apprentice
Nicole boling
Posted
  • Author

Ohhh yes they did 

GardeningForHealth Enthusiast
GardeningForHealth
Posted

I'd be interested to see your Celiac blood test results posted here.

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