Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Giving up grains entirely


V.Beth

Recommended Posts

V.Beth Newbie

I was diagnosed after forty years of misdiagnosis about 15 years ago. 
In the last 10 years I’ve found I really can’t tolerate rice,corn, quinoa, millet or anything bordering on a grain without joint inflammation and brain fog (same symptoms as with celiac).

I nearly died from celiac, with iron infusions monthly, B12 shots, I had premature babies with badly formed placentas and lost a child, I had advanced osteoporosis at 42, a diagnosis of early onset Alzheimer’s at 48.

im not likely to try reintroducing any grains at this point, but I’d like to know how damaging these other grains are to intestines?

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

The vast majority of people with celiac disease can eat the grains you mentioned, unless those grains happen to be cross-contaminated with wheat, however, some celiacs report not getting better until they eliminate all grains, and/or other foods such as milk/dairy, oats, eggs, etc.

This article may be helpful:

 

 

trents Grand Master

Grains are high in plant defense chemicals known as lectins. Lectins are not well-tolerated by many in the celiac community.

Scott Adams Grand Master

Yes, and we've done some articles on this which could be helpful:

 

 

Wheatwacked Veteran

Hi @V.Beth

Are you taking any vitamins?

  • 2 weeks later...
V.Beth Newbie

Yes, I take several vitamins and supplements but I watch fillers there and in medications.

Wheatwacked Veteran

No problem not eating grains, but I would look for vitamin and mineral deficiencies given your history.  Gluten Free Diet with adequate vitamins and minerals, you should be healthier than your friends.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eldene Contributor

Millet, yellow maize, chick pea flour, brown rice etc, are naturally gluten free (bar contamination). Many of these are called pseudo-grains.

  • 2 weeks later...
jwoolman Newbie

I love millet and rice (together or separately), and millet whole grain but as easy to cook as white rice (same directions). But I always think of those as grains.

Rice is one grain that doesn't result in gas. I can eat it in any form with no problems. But I don't have celiac, just a pesky wheat intolerance. Not a gluten problem, something else in the wheat. 


 

mariliabertin Newbie
On 10/1/2024 at 7:00 PM, V.Beth said:

I was diagnosed after forty years of misdiagnosis about 15 years ago. 
In the last 10 years I’ve found I really can’t tolerate rice,corn, quinoa, millet or anything bordering on a grain without joint inflammation and brain fog (same symptoms as with celiac).

I nearly died from celiac, with iron infusions monthly, B12 shots, I had premature babies with badly formed placentas and lost a child, I had advanced osteoporosis at 42, a diagnosis of early onset Alzheimer’s at 48.

im not likely to try reintroducing any grains at this point, but I’d like to know how damaging these other grains are to intestines?

 

 

Hi! I can't eat oat and quinoa too. I am having reactions right now and searched about quinoa.

I only knew about oats. Three weeks later I have changed oats to painco and quinoa. Painco was a great option, but all 4 times i ate quinoa, it was painfull.

I feel hopeless everytime I undestand how deeper celiac disease is. 

trents Grand Master

Quinoa is high in lectins. Try rinsing it thoroughly before cooking and consuming it.

knitty kitty Grand Master

Lectins are broken down by cooking.  Using a pressure cooker is recommended for breaking down lectins in beans.  Cooking all alternative grains and rice thoroughly should help.

trents Grand Master
2 minutes ago, knitty kitty said:

Lectins are broken down by cooking.  Using a pressure cooker is recommended for breaking down lectins in beans.  Cooking all alternative grains and rice thoroughly should help.

Good point. But I have been made very ill by eating unwashed quinoa that was not cooked but used in a side salad.

knitty kitty Grand Master
(edited)

I didn't want anyone to think rinsing quinoa would get rid of lectins.  

Terribly sorry, read your post too fast.  

Rinsing rice isn't recommended because rinsing rice will dissolve the added vitamins (they look like grains of rice).  

Edited by knitty kitty
Typo correction
trents Grand Master

My bad. The reason it is important to rinse quinoa is because of saponins, not lectins. Some people, and I am one of them, get very ill from the saponins. Like lectins, saponins are part of the natural defense mechanism of some plants.

https://www.allrecipes.com/article/should-you-rinse-quinoa/

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,768
    • Most Online (within 30 mins)
      7,748

    JAEL53
    Newest Member
    JAEL53
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
×
×
  • Create New...