Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Journey

Juliaaub15
 Share

Recommended Posts

Juliaaub15 Newbie
Juliaaub15
Posted

Hi everyone! My name is Julia, and I was diagnosed with celiacs disease a little over a year ago. Let me say this, this year has been one hell of a ride. I feel like I keep making the same mistakes. My doctor said, "It'll get better, you just have to eat 100% gluten free". Now, I have discovered I am the symptomatic kind. Cross contamination is a bigggg no-no for me. I can't go out to eat, more like I am terrified to eat out because it seems like no one knows what gluten is. Or the severity of it. How long did it take for some to finally get the routine down? I just feel like I keep making the same mistakes over and over again. I want to feel good in my body like I once did. I don't want to feel bloated, and have a rollercoaster ride for bowel movements. It was halloween yesterday and I was working, so of course I had a couple of candies my coworkers brought it. I though reese's were gluten free, and they are, but I just learned that the holiday shaped ones are not (go figure). I guess they put flour in the molds so the candies can pop out? I don't know. Can we literally only put things in our body if it says it's gluten free on the package? Or homemade? I am a 22 year old, who likes to have a social life. And I feel like everyone my age likes to go out, eat, drink, have a good time. But I can't. It seems like such a struggle to find places I can actually trust won't make me sick. How long did this journey of finally being healthy again kick in for you guys? Do you only eat things that say are gluten free? I don't know what I'm doing wrong anymore. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! It took me 1-2 years to figure out the diet, but there is a lot more info now that is available so you should be able to do this faster. 

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,376
    • Most Online (within 30 mins)
      7,748
    Mayrim
    Newest Member
    Mayrim
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      In case your tests turn out negative you may still want to try a gluten-free diet. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Thank you for your answer. Well, I'm going to eat at least 5 slices a day, each of them is 35 grams. I think I'll do blood tests again after four weeks. If the results are negative or not clear, I'll continue the challenge and repeat blood tests again after another four weeks.
    • Scott Adams
      Antibodies went up

      By Scott Adams · Posted

      You are correct in looking closer at her diet, as there may still be trace amounts of gluten, even from a gluten-free bakery (are their ingredient suppliers certified gluten-free?). You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:    
    • Scott Adams
      How many grams is there in one slice of wheat bread?

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Ski trip with Celiac son - preparation advice please

      By Scott Adams · Posted

      You're doing an amazing job planning ahead for your son's first ski trip with celiac disease! It’s great that the hotel and organization are supportive, which makes a big difference. For dinners, consider simple gluten-free meals like pre-cooked rice or quinoa bowls with a protein (like grilled chicken or turkey slices) and steamed or roasted vegetables. These can be prepped at home, frozen, and reheated safely at the hotel. Gluten-free pasta with a simple tomato or cheese sauce is also a kid-friendly option that travels well. As for snacks, packing things like gluten-free crackers, cheese sticks, fruit, or granola bars will help ensure he has safe options throughout the day. It’s also wise to carry some single-serve condiments or seasonings he likes to make meals more appealing. Regarding accidental gluten intake, reactions vary from person to person. Some children experience immediate symptoms like stomach pain or diarrhea, while others might not react until hours later. It’s a good idea to carry supplies like wet wipes, an extra change of clothes, and medication if prescribed by your doctor. You might also want to brief the ski instructors about his condition and what to look for in case of exposure. With careful planning and preparation, you’ll set him up for a fun and safe experience. Enjoy your trip!
×
×
  • Create New...