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HLA-DQ2 POSITIVE it's nothing

Jmartes71
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Jmartes71 Enthusiast
Jmartes71
Posted

Got results or rather heard results that my son is HLA-DQ2 positive per pcp yesterday and the Downplaying is just unbelievable.If I didn't get the knowledge from this site I would still THINK celiac was just a foid consumption "allergy " .Please i don't want to be ranking or be dinged. I just want knowledge for patient to know or rather DOCTORS to understand how serious celiac is.My son used to have seizures and was put on meds from 3 til he was 10.Then he was assaulted at school at 18 and had a plate in his head. Its an absolute scary feeling when you have medical issues and don't feel safe medically.I wasnt even able to get the copy of the results in the Dr's office, Dr stated i had to ask medical records. 

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Scott Adams Grand Master
Scott Adams
Posted

Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.

Jmartes71 Enthusiast
Jmartes71
Posted
  • Author

As far as asking I shouldn't have, My son should have per my husband considering the hippa violation at this point it's like violation?The medical bs anyways.......No one here in the valley gi understands celiac and it's a waste of time 26 years to be exact  that's how long I've lived in the valley and that's how I got to this point. Considering they want to play the celiac game. I will try to get strong, but it super hard when constantly being being medically knocked down medically. I saw i was with a group with four others on here i would love to connect with and see if they are close by or if they are dealing with the lovely big health care that's here that doesn't acknowledge celiac well.

Scott Adams Grand Master
Scott Adams
Posted

Connecting with others who might be in the same boat is what this forum is all about! That seems like a positive approach.

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      Hypoglycemia, ketones in urine and weight lost. I need advice.

      By Aretaeus Cappadocia · Posted

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    • knitty kitty
      Hypoglycemia, ketones in urine and weight lost. I need advice.

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