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Does Anyone Just Have Celiac Only?


Moongirl

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MallysMama Explorer

Before discovering this website - I, too, would have never thought myself to be "lucky" to just have Celiac. Now, however, after reading many other's stories - I am lucky to have been diagnosed so early in life. I hope to avoid so many of the other life threatening troubles that can plague our unhealthy bodies.


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TCA Contributor

I think my son only had Celiac. He used have an intolerance for dairy, but that seems to have gone away now that he's been gluten-free for a while. Hopefully he won't develop any problems since we caught it.

My daughter is a whole different story. We've yet to figure out all of her problems. Hopefully her problems will improve and she won't develop any more.

I'm sooooo thankful to have found the Celiac. It's so hard to watch your kids suffer. I'm praising God for the diagnosis! :)

num1habsfan Rising Star

i only wish I have just Celiac itself!! But like a lot of us in this post said, we went too long before being diagnosed. I have over 80 different problems that I didnt have before I got celiac and went gluten-free. and the list always seems to be growing!

maybe they should just come up with a cure for everything else, so we can finally all say we have just celiac :lol:

~lisa~

ebrbetty Rising Star

I wish... I have Fibro, chronic Fatique, discord lupus, 3 herniated disks in my neck, hypothyroid, gerd, Dyspepsia etc :blink:

luvs2eat Collaborator

I seem to only have Celiac... altho a year or so after diagnosis, my ANA blood level came back just high enough that my doc had me tested for Lupus. No symptoms or anything... just a tiny raised blood level that I get checked every year. Other than that... nothing but Celiac for me! (knocking on wood over here!!)

LaurieAnn13 Newbie

So far, it's only celiac for me also.... Thank God!!!

I was diagnosed when I was 21, sounds like that is fairly young?!

Carolita Rookie

I was told I had Candidysis one year before my celiac disease test came back +. I suffer from allergies and Raynaud's as well. My iron levels came back very low a few days ago (when my celiac disease test came back +) and that is making me feel miserable. I hope I don't see anything else coming on though, I think my nerves have been affected some as well since I'm always very jumpy and stuff (very nervous about everything).

I have a question. Have some of you gotten worst after going Gluten free then? I thought the damage was reversable. Now I'm really scared. I don't want to feel even worst.

Carol :(


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Lauren M Explorer
So far, it's only celiac for me also.... Thank God!!!

I was diagnosed when I was 21, sounds like that is fairly young?!

I was diagnosed at 21 also! I'm thankful it was at a fairly young age, and I think it was triggered only a couple of years before. At 21 I was old enough to take the diagnosis seriously, but young enough to (hopefully!) not have permanent damage.

- Lauren

par18 Apprentice

Was Dx'd at 55 and as far as I can tell based on the positive diet results that is all I have.

Tom

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    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
    • Steve-n-Portland
      Correction: My previous post refers to hickory products when I actually meant bakery products.
    • Steve-n-Portland
      Trader Joe's "gluten-free" hickory products are definitely not celiac safe. Their own website used to have a sidebar acknowledging this. Trader Joe's contracts out for their products, or obtains products elsewhere and puts their brand on it. Is Trader Joe's acknowledges, the facilities in which their products are made may change without notice, and ingredients or sources for ingredients may change without notice. Every time I tried Trader Joe's "gluten-free" muffins, breads, tortillas, etc, I had a reaction. The worst reactions were from the muffins (which are about 440 cals apiece, btw). 
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