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I'm A Celiac For Attention


IntensePort

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num1habsfan Rising Star

A lot of my family still wont believe how sensative I am to gluten, and still dont even believe I have Celiac, even tho both have been true for over 3 years already. They tend to rub it in my face, and offer me food they know I cant touch, or give me a huge lecture about something.

Wish we could all convince the whole world it exists and is real and we arent lying when we have it!

~lisa~


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schuyler Apprentice

I'm lucky that my family believes me (it took a few weeks for my dad to believe-at first he thought that I just didn't want to eat). Initially, only my mom understood how serious it was, but after a severe reaction to gluten in toothpaste at my dentist's office, they all understood!

My friends are a whole different story. They are convinced that I have an eating disorder(s). Right after I was diagnosed, my friends invited me to a small get together that they were having. I went, but since it was a last minute thing, I didn't have time to grab some of my gluten-free food. When I declined all of the food at my friend's house, they all started telling me that I just use vegetarianism and celiac as an excuse to not eat. Yea right! I was like, don't you guys remember how sick I was before and how I was eating all the time and loosing weight? They had no answer. A few friends were even with me after my first glutening after going gluten-free, and they actually had the nerve to tell me that I was faking the pains and nausea, so that so that I could vomit all of the food that I had just eaten, and no one would suspect that I had an eating disorder. So, according to my friends, I am both anorexic and bulimic! Some people are just crazy! I'd hate to see this ruin relationships, but they are just driving me crazy (everytime I have seen my friends recently, they have brought it up). I'm not giving up on it yet; I think that they just need time to come around. It's so frusterating when people don't believe you!

Danielle

whitball Explorer

I have friends, family and co-workers who think that I am a whimp. I have had "mysterious" symptoms for years. Lots of pain, lots of sick days. My friends laugh and say "oh, do you have another ailment?". Makes me mad as H---. My boss has muscular dystrophy and uses a wheelchair and is tough as nails. She does struggle every day, but it doesn't mean that I don't struggle too. So, now, I do not say a word to them about how crappy I feel. It's not worth the frustration. Tara

IntensePort Newbie

Well, I'm happy to know that I'm not the only one. It doesn't get to me as much as it used to, as I'm getting more and more used to eating gluten-free.

2Boys4Me Enthusiast
My BIL is a pharmaceutical buyer for a large HMO, so he KNOWS that drugs are the best way to treat anything. He has argued with me and says that it's ridiculous to have to be that careful with any food. Last time we ate at his house (he does most of the cooking) he swore up and down that the meat patties he was making just had "ground turkey, onions, garlic, salt and pepper". I ate one and before I got up from the table had a horrible stomach ache and ended up with D for 3 days. My SIL later told me that you can't make that recipe without bread crumbs and she knows he put them in. This is the same BIL that argued with me about changing my diet to treat my horrible psoriatic arthritis. He insisted that without the medication I'd still be doing damage to my joints, that feeling better was just in my head. Ten years, 13 triathlons and 4 years of coaching basketball later he just treats me like I'm a hypochondriac, so I avoid him most of the time. And I will NEVER eat a bite of food at their house again.

Why the heck didn't your SIL tell you about the bread crumbs!? She's just as bad.

lonewolf Collaborator
Why the heck didn't your SIL tell you about the bread crumbs!? She's just as bad.

She's the "other" sister-in-law, not married to that BIL, and she was at work and missed the party. The SIL who's married to that BIL (this is all hubby's family) is dingy enough that she believed him when he told me he didn't put in the crumbs.

2Boys4Me Enthusiast
She's the "other" sister-in-law, not married to that BIL, and she was at work and missed the party. The SIL who's married to that BIL (this is all hubby's family) is dingy enough that she believed him when he told me he didn't put in the crumbs.

Okay then, I'll forgive her. THIS time. :ph34r:


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  • 5 months later...
Fayt Newbie

I think it's really rediculous how people think you made it up or something. Like you want to have to go through all of that pain if you get glutened. I mean you wouldn't give a person with diabetes a big pound of sugar and tell them "It won't kill you." It's rediculous with some people. Gah I'm sry but ignorant people just make me really mad.

Guest Norah022

I have a mixed reaction..Luckily for me my dad has celiac's (was diagnosed 7 years ago) so when i tested positive in may my parents and my siblings already knew what to expect.

My boyfriend who I started dating at the end of July has stomach problems as well so he can understand some of what I go through. In fact, I am home for break from school this week and got to see my boyfriend for the first time in 2 months so he planned a romantic day. He researched restaurants that had enough gluten free stuff on their menu (we went to outback) then bought mouthwash to rinse out his mouth so i wouldnt get sick from what he ate. So he is INCREDIBLY understanding.

Some of my friends at school support it, others think i have an eating disorder, and some think I exaggerate my disease and make it too big of a deal...

tiffjake Enthusiast

Its so funny that this thread was pinned today, b/c I recently found out that a (now ex-) friend has been talking about me behind my back and saying that I "diagnosed myself" and "googeled" everything and "made it all up with no proof" and I just can't believe it!

Yes, after my Lame Advertisement, EnteroLab, Celiac Panel, googeling, and arguing with my doc, I was diagnosed. Yes, I looked things up online. If I had not, I WOULD HAVE NEVER KNOWN WHAT TO TALK TO MY DOC ABOUT! Obviously they don't know everything (docs) or I would have been diagnosed many, many years ago.

Anyway, I no longer talk to her. Anyone who thinks I would volunteer to eat gluten-free just for kicks is down right nuts, and can bite me. No one needs friends like that.

  • 3 months later...
Liz92 Rookie

Is there ANYONE besides myself and maby three other people that are under than 20? When I was like 12(this was like 2-3 years ago), I found out I was Celiac, not officially diagnosed, but I knew I was anyway, my brother, who IS a celiac, was telling all of his friends that I was only pretending to be Celiac for attention, When in my opinion was the worst part of being Celiac, and some of his friends had younger siblings who were my friends, so eventually one of my friends came up to me and asked me if it was true, I was really ticked off then but now I'm Happy that she asked me becuz I wuld much rather have that then her always wondering if i was an attention freak. I was diagnosed Just a little bit later. But, ya, life's just fine and DANDY!!! :rolleyes:

stef-the-kicking-cuty Enthusiast
She's the "other" sister-in-law, not married to that BIL, and she was at work and missed the party. The SIL who's married to that BIL (this is all hubby's family) is dingy enough that she believed him when he told me he didn't put in the crumbs.

I would have faked such big cramps, that I would have thrown over the table with the food and then puke all over it. I'm sorry, but I hate people like that :blink: .

I had one good friend being suspicious. She never told me to my face, that she thought I was lying, but her strange reaction gave me the feeling, that she thought, I was lying. I killed her with friendliness and invited her to a dinner at Outback Steakhouse. When we entered I emphasized the importance that I needed a glutenfree menu. Later on I asked the server, if she knew what I was talking about. She said 'yes, I would need the glutenfree menu, because I can't have gluten, because of several reasons. I'm either allergic to wheat or I'm a celiac.' When my friend heard that, she turned from pale to yellow to green to blue. No comment or stupid looks from her anymore, ever. Problem solved! :P

tarnalberry Community Regular
When my friend heard that, she turned from pale to yellow to green to blue. No comment or stupid looks from her anymore, ever. Problem solved! :P

How sad is it that your friend had to hear this from some random wait-person at a restaurant that she had no knowledge of before she believed it?!?!?! :angry:

Liz92 Rookie

ctually,now that I think about it,I seriously have no clue of what ur all talking about... The real reason II don'teat gluten is well... Iguess just for kicks..... :P

Ps, my other comment was by ma friend.... :rolleyes:

  • 2 weeks later...
starvedartist Newbie

well, my mom and I both have are celiacs, and some of my "friends" dont believe me b/c they dont understand...but a lot of my family members are hicks, and dont really understand it either...and I am having a really hard time w/ peer pressure...just the other day I went to a friends house, and she made a cake...and it was so tempting...I had two pieces and was sick for a week......but yeah...a lot of my family members think that it is all made up...

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  • Posts

    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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