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    Do you have questions about celiac disease or the gluten-free diet?

jaimi alderson

Kids Testing

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I was diagnosed 2 weeks ago so I am taking my kids today to get their blood drawn. I do not want to do this repeatedly over the next year so I am asking to have them tested for the genetic test (HLA/DQ2/DQ8), the celiac panel & a cmp to check for any nutrition problems. Does anyone have any advice on other tests that should be done with their blood while we are already poking them? The celiac panel will prob not be accurate on my son who is only 16 months but want to check anyway since we are drawing blood. Has anyone ever had all of these tests done for their kids? I want to make sure I am doing all the testing I can. Luckily they have no symptoms, except irritability in my 4yo (could be just her age!) and reflux in my son (this is not a black/white celiac symptom as he is HUGE weight wise-50%-which is very big for our fam!) Anyway, any advice on these tests and/or the blood draw would be much appreciated. Ped. is putting topical anesthetic patches on their little arms so hopefully that will help!

thank you!

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I was diagnosed 2 weeks ago so I am taking my kids today to get their blood drawn. I do not want to do this repeatedly over the next year so I am asking to have them tested for the genetic test (HLA/DQ2/DQ8), the celiac panel & a cmp to check for any nutrition problems. Does anyone have any advice on other tests that should be done with their blood while we are already poking them? The celiac panel will prob not be accurate on my son who is only 16 months but want to check anyway since we are drawing blood. Has anyone ever had all of these tests done for their kids? I want to make sure I am doing all the testing I can. Luckily they have no symptoms, except irritability in my 4yo (could be just her age!) and reflux in my son (this is not a black/white celiac symptom as he is HUGE weight wise-50%-which is very big for our fam!) Anyway, any advice on these tests and/or the blood draw would be much appreciated. Ped. is putting topical anesthetic patches on their little arms so hopefully that will help!

thank you!

Prbly should ask for a BMP (basic metabolic panel) and might as well check normal stuff like Anemai (Iron Levels) and basic vitaman/nutrient levels. If they have celica, they are likly to be deficient in somthing so might as well find out now. Assuming your INS will cover all that of course. :D

I am told that in some European countires its standard practice to screen all first degree blood relatives if any one of htem has Celiac.

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I am told that in some European countires its standard practice to screen all first degree blood relatives if any one of htem has Celiac.

I think I can safely say it's not England! :lol:

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I have read they do this in Italy, for sure.

I've heard and read that in Holland they have the bloodtest and after that a bioptie and that's the only way to get the cleiac disease answer from a doctor...

I have to check it here for aruba...

Our son ,almost 2 ,is having problems from 4 monthts old, we were thinking that it was something from the vacinations because tit started directly after his DTP . it started with the diarree,changed formula,did all the lab test ,bloodtest for infections etc ...only his iron was low and sometimes they saw infections...We started very late with 'normal'food because of his pain and diarree and checked everything for the response on it. He has fever attacks coming and going (only for one or two days)mood swings...a bigger than normal baby tummy and a lot of gas in it (thats what the PD also told us) A couple of weeks ago we dicided to skip all the heavy carbs and that was better for him but still there were nights with a lot of pain and screaming and moodswings in the morning. Now for 4 days we've started with the gluten-free diet and he is doing great! Yesterday he was eating patatoes and special apple sauce:he was so happy and of course we were so afraid for the night but:nothing and his diaper was pretty normal! Now we have to go to the PD next week and we are going to ask the question:could it be Celiac disease...we have allready decided that we do not want to have very heavy testing because we are to happy that he is happy and he is so small...and we want to wait with the haevy testing untill he is able to talk about his feelings and that we can explain something to him. But I am only struggling with one thing:is it not dangerous to put him on a gluten-free diet without diagnosed? He loves the food and he can eat with this diet more than with is other diet....Is there anybody with some answers?

We also want to put are other son on the gluten-free diet becasue of the positiv stories about gluten-free for autistic kids.

thanks for all the help in :) this forum!

i've forgot to tell that he is allready lactose intolerant..so he is drinking soya formula because the PD is still afraid to give him something else and we also!

:rolleyes:

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