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Rachel--24

Omg...i Might Be On To Something

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Sherry,

That's a really tough decision. My mom and I were talking about looking into forms of testing such as muscle testing, ART, etc. for Lyme meds. If I'm taking these crazy strong drugs, I'd rather know if they're going to work or not...but at the same time, I almost don't want to know! :lol:

It's hard to be able to trust something so much especially when it's not a conventional form of testing. ;)

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hey just on a random note i am uping my MSM and had done some research and found a ton of good info but here is some that i thought was particularly interesting and might be helpful to some of you.

How does MSM help with parasites?

MSM has proven to be a very effective treatment for parasites. Research shows that MSM works by laying a coating

over the intestinal areas where some types of parasites normally attach themselves. This coating makes it impossible for parasites to attach themselves to your body. Since they are not attached to your body, the parasites are simply flushed out of your system through the process of elimination. MSM can be used against worms, giardia, trichomonas, and other types of parasites. Making sure that you have an adequate daily intake of MSM can help to ensure that the parasites do not have a chance to make themselves at home inside your body. MSM has the ability to return the parasite susceptible tissue to normalcy with no impairment or injury to host. MSM has an alleviating or curing effect on a variety of parasitic systemic microbial infections.

How does MSM help with constipation?

MSM has been shown to bring prompt relief for chronic constipation.

How does MSM help with heartburn and ulcers?

Stomach acid is used by the body to breakdown food during digestion. The stomach lining releases a form of acid known as hydrochloric acid, which is necessary for the digestion of proteins. Standard treatment for heartburn involves the use of antacids and other products that neutralize hydrochloric acid. These may give temporary relief by counteracting the effects of hydrochloric acid, but a reduction in hydrochloric acid can in turn lead to indigestion and poor absorption of nutrients. Overuse of antacids can destroy the body's natural acid/alkaline balance, while neutralizing the excess stomach acid. MSM will allow patients with peptic ulcers and chronic heartburn to experience fewer symptoms.

How does MSM help with Candida?

We have a yeast that lives in our colon called Candida that keeps bad bacteria out, which lives on the food created by acidophilus. When you take antibiotics it kills the bad and the good bacteria. Your pH then gets out of balance and the Candida gets hungry and starts spreading. When it gets in the vagina, women have yeast infections. When the tongue gets a white coating, that is Candida yeast. When it gets in the ears and the eyes, they change the name and call it thrush. When it gets in the blood stream, they call it chronic fatigue - "an incurable disease". There is no such thing or we would have all died 6,000 years ago. When you digest the food and it goes into the bloodstream, the Candida steals it. So you do not assimilate your nutrition, the glands do not get their vitamins and minerals, so you develop allergies to foods, pollens and fragrances. You also do not have any energy because the Candida is a living organism and digests food like you do and puts out toxins that are floating in your blood stream. When those toxins are added to your toxins, it can stimulate 80 different diseases that you do not have. When it stimulates strep throat, the doctor gives you an antibiotic and kills the acidophilus, keeping the pH out of balance. It then stimulates pneumonia

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Has anyone did the R.I.F.E. machine here?

Lisa

Rinne was doing rife.

We talked about getting one. I brought it up with my LLMD and he said he has had better success with other treatments (like Cowden). He sounded like he had experience with it.

Too tired for more posting...I need to get out another update on my appointments this week. The big thing is a decision whether to stay on levaquin.

Sherry

That'll be a big decision. How long have you been on it? What change in symptoms have you seen?

When I took it, I felt worse for six weeks, then progressively got better. I have to agree with Andrea, if you've seen nothing, then it's not worth the risk ... but if you've seen something, either better or worse, I'd stay on it.

I think bartonella seems to be one coinfection they just don't know a lot about. They don't even seem to know if all bartonella is bartonella even! So, different things seem to work for different people on this particular coinfection.

I am so with everyone on the sugar thing, I have not been good lately.

Me either .... but I'm still not eating that much of it, LOL. ANY sugar seems like a lot to me. I'm having a couple treats per week, and I'm certainly not racheling them!

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Aw Andrea, sorry the little ones are not well! Hope that clears up soon!

You're on sister! :P

Oh great, thanks...that makes things MUCH easier, lol! I took it before bed last night...about 45 minutes away from my other evening meds. Hum, I don't have trace minerals...I have the Cumanda and parsley. Do you refrigerate your open bottles? I haven't been but started thinking I should (who knows why, lol).

Donna-

so what form of gluten would you try? thats what gets me I don't even know what i would have. although i ahve had a really big craving for annies shells and cheese- but then i add in the dairy thing and thats a whole other issue..........but dang it sounds YUMMY!!

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Well, I still haven't heard from my friend. I tried calling last night but she didn't pick up. That's not unusual, lol...she doesn't normally answer the phone even in the best circumstances. :P I just really wanted to leave a message. I expect she might need some help because her house is pretty big and lots of steps involved, but her mom will probably come stay with her if that's the case. She lives about 2 hours away from me, so I can't really do a lot from here. :(

Actually coming to that conclusion and acting on it are two different things, however.... :rolleyes:

Ha, tell me about it! :lol:

Donna, I wonder if you could ask your Dr his opinions on these machines for the mold in your condo??

...

Was the charcoal not working for you, causing you any adverse symptoms??

...

Sounds like you had a really good appt, and I like his approach with you. ;)

You and I are pretty much in the same boat with the baby steps :lol:, but I think in the long run it will really pay off.

I've had help air cleaners in my home before...it got so expensive that I stopped using them. The filter for one unit was $180, and I had two units. I just couldn't afford the upkeep anymore. I DO think they helped though. Maybe I'll look into getting smaller units where maybe the filter is either cleanable or just small enough that the expense wouldn't be so much.

The charcoal was working I think...in fact I took one last night in the middle of the night and I actually finally slept better again. Don't know if the charcoal had anything to do with it because I also took more melatonin (that's a long story, lol). I basically just forgot a couple of nights to take it, then just decided maybe I didn't need to any more. I'll probably take it again for a week or two now.

Yeah, I like my doctor's approach. I have been a little anxious to move forward because I was feeling so good, but I also don't want to undo all of that. He said if he does do a challenge or chelation, he'll do what he did with Rachel and start me on a very tiny amount.

Sounds like a good appointment for you today......baby steps are good.

Yeah, I'm finally realizing that they are good, lol.

I swear, I am not sure if this is in my head or not, but I totally feel way more symptomatic since the mold discovery. I am fine away from home. Probably because all that cleaning I did in my bedroom really stirred it up.

This is the first thing my doctors ask me when we talk about mold...whether I feel better away from the house. It may also be that you've always been symptomatic, but now that you KNOW there is mold there, you're associating them more with the mold. (did that make sense?! :lol: )

I totally understand the sugar thing! LOL! :lol: :lol: I too, can't seem to stay away from the sugar. It's SO addictive!

I told my doctor yesterday that it's what I would imagine drugs would be like...I'm fine if I don't taste it, but once I taste sugar, it's like I'm driven to have more. :P Never taken drugs, so I'm not sure that's all true, but if it's like what I've seen on TV, then it is, lol.

For all of you who do ART, have you found the food testing accurate in terms of what makes you sick and what is okay? Dr. E said a little milk is okay, and butter is fine. My avoids so far are pork, sugar, cornstarch, the "organic" coffee sample I brought from China. Also not so good is banana.

We didn't test foods in my two sessions...all my food testing was done with BioSET. But so far everything that has been tested in both ART and BioSET has been right on. I think I'd even trust ART more than BioSET in that regard though. ART really identifies what is stressing your body at the moment, so I think I'd trust that to be very accurate.

It's hard to be able to trust something so much especially when it's not a conventional form of testing. ;)

Yep, no one was more skeptical than me, but they've been so accurate for me that I can't deny it any more, lol.

hey just on a random note i am uping my MSM and had done some research and found a ton of good info but here is some that i thought was particularly interesting and might be helpful to some of you.

Thanks for the info Mia!

Me either .... but I'm still not eating that much of it, LOL. ANY sugar seems like a lot to me. I'm having a couple treats per week, and I'm certainly not racheling them!

I need to get to this point, lol.

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so what form of gluten would you try? thats what gets me I don't even know what i would have. although i ahve had a really big craving for annies shells and cheese- but then i add in the dairy thing and thats a whole other issue..........but dang it sounds YUMMY!!

Yeah, I think I'd eat 100% Whole Wheat english muffins, lol. Or maybe 100% Whole Wheat toast with cashew butter and a tiny bit of fruit spread. I miss that for breakfast. Or maybe cream of wheat cereal...all breakfast foods I guess. Maybe a sandwich...kind of miss my sandwiches sometimes too. :P Oh, maybe pizza. :lol:

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Donna, as if our local ice cream isn't good enough (they are famous for their chocolate chunks, which are still somewhat soft ... amazing ... can't even describe it!) .... well, they sell these homemade carmel covered marshmallows. :angry: I ate four of them last night and felt guilty. I can't wait till tonight so I can feel guilty for eating the last two! :lol:

Oh, I didn't tell you, I mentioned it on Lyme chat, but not here .... I had a margarita last weekend! A REAL margarita made with Cuervo 1800 and Grand Marnier, on the rocks with salt. It was SO good. I'm a cheap date now, one drink is PLENTY! LOL

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Sherry,

Are you the one that ordered the follow up malabsorption test from enterolab, if so have you done it yet or gotten your results. I ordered mine yesterday and am already getting nervous that my malabsorption will go up and not down lol.

paula

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Paula, I have done the enterolab malabsorption and am still waiting for the results. They received it on 1/31...so I am hoping to get the results soon and am frustrated that it takes so long.

Sherry

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That'll be a big decision. How long have you been on it? What change in symptoms have you seen?

When I took it, I felt worse for six weeks, then progressively got better. I have to agree with Andrea, if you've seen nothing, then it's not worth the risk ... but if you've seen something, either better or worse, I'd stay on it.

I think bartonella seems to be one coinfection they just don't know a lot about. They don't even seem to know if all bartonella is bartonella even! So, different things seem to work for different people on this particular coinfection.

I'll have been on it 1 month later this week. I'd say that I am worse this month. Some of it seems to be side effects perhaps. Nausea (better now with increased pancreatic enzymes), insomnia. maybe edema and little itching. I can live with this okay so far.

Symptoms that are worse are brain fog, fatigue, pain off and on, intestinal issues that are strange (pencil thin stool which was suddenly better today, can't make it through the day without ecoffee. Elimination amount is small and afterward can still have an urge that lasts all day without going any more, but will improve after ecoffee, stool is green-black). I think I might have more petechiae (little red dots), but not sure.

Complicating factors are starting all the other things Dr E has given me and stopping other things. Like I just jumped to the final level on the andrographis Sunday, and started my period this morning, and woke up with a lot of pain. I suspect the stool color is a combo of the charcoal and andrographis because the andro tincture is green black and I am taking 30 drops three times a day.

This morning I am thinking of staying on ithe Levaquin two more weeks until my actual appointment with Dr G, as this week he'll only be taking a brief look at my short email. I feel I need to discuss it more thoroughly with him. I remember Dr. G telling me that even when an abx is effective, it is good to periodically switch to something else for awhile then go back to the first one and often returning to it you then see a jump in effectiveness. So perhaps I won't really lose ground by waiting a little longer.

Still thinking and appreciate everyone's thoughts.

Sherry

Me either .... but I'm still not eating that much of it, LOL. ANY sugar seems like a lot to me. I'm having a couple treats per week, and I'm certainly not racheling them!

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Note to self:

It is a bad idea to start a full candida diet and quit smoking on the same day.

Nyxie, I thought of a vice for you .... Pellegrino .... It's $1.99 a bottle, so you can spend some of your smoking savings on it. Get a one liter bottle, three limes, and a wine glass, then party! It's a great accompaniment to lyme chat.

Sherry, I would stay on it a couple more weeks like you are thinking. It sounds like it could be causing your bart symptoms to flare some .... mine got worse like that for six weeks, then better. I don't know much about ART, but doesn't it reflect what's happening NOW? If you're getting worse, then maybe that's what's being reflected? Could it show something different in a couple weeks? Either way, 2 weeks isn't going to make or break your treatment.

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Note to self:

It is a bad idea to start a full candida diet and quit smoking on the same day.

I am sorry u are having a hard time doing both on the same day. I did that in the same day and i am glad that i did. Within 2 days u will be feeling so great. I dont even miss yeast and sugar or my cigs. It has been since jan 5th and no regrets at all. You can do it, what helped me was id gram almonds when i wanted to smoke lol

paula

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Nyxie, I thought of a vice for you .... Pellegrino .... It's $1.99 a bottle, so you can spend some of your smoking savings on it. Get a one liter bottle, three limes, and a wine glass, then party! It's a great accompaniment to lyme chat.

Wouldnt that have sugar in it lol. If not count me in i want an case of it, even tho im not even sure what it is lol

paula

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Note to self:

It is a bad idea to start a full candida diet and quit smoking on the same day.

Yikes!!!! Don't even know what to say about that...just KNOW it's hard!

I don't know much about ART, but doesn't it reflect what's happening NOW? If you're getting worse, then maybe that's what's being reflected? Could it show something different in a couple weeks? Either way, 2 weeks isn't going to make or break your treatment.

Yes to all that. It COULD show something different in two weeks.

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Paula, I have done the enterolab malabsorption and am still waiting for the results. They received it on 1/31...so I am hoping to get the results soon and am frustrated that it takes so long.

Sherry

ughhhh u would think it would be done by now, i was hoping since its just one test that it would be faster, but i guess not. Look im impatient and they havent even mailed my kit it lmao

paula

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Wouldnt that have sugar in it lol. If not count me in i want an case of it, even tho im not even sure what it is lol

paula

Nope, it's just sparkling water. :D It just sounds like it's a vice! Well, and in my case, it seems to be turning into one, LOL.

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Sherry, I would stay on it a couple more weeks like you are thinking. It sounds like it could be causing your bart symptoms to flare some .... mine got worse like that for six weeks, then better. I don't know much about ART, but doesn't it reflect what's happening NOW? If you're getting worse, then maybe that's what's being reflected? Could it show something different in a couple weeks? Either way, 2 weeks isn't going to make or break your treatment.

When meds are being tested with ART they are tested against the "bugs".

For example if someone has candida and is currently taking Nystatin they might feel bad and not know whether its because of dieoff or not. The candida is stressing this persons autonomic nervous system and the practitioner is looking for the treatment that will work best....meaning the one that gets to the candida and takes that stress away.

If the practitioner tests the nystatin against the candida and the situation does not improve...then its not a good treatment at that time. This doesnt mean that it never was effective or that it will never be effective....but at the time of testing it is not working against the candida.

It could also be stressing the body even more if its something that you are reactive to.

To answer your question Carla...if she were herxing from the meds...that would indicate that they are effective....and if thats the case the Levaquin would test well against the bugs.

If she were on the levaquin at the time of testing and it was working very well it could prevent the infections shes being treated for from showing up as stressors....because the meds are handling them. This is why I stop taking my treatments prior to testing...to get a clearer picture.

However, if her infections DO show up in ART and the Levaquin tests poorly....it does not mean that it tests poorly because its killing bugs and making her feel bad...it means that its not working against the infections its intended to treat.

It is not likely going to change in 2 weeks if she continues on the medication.

What CAN change is that if she stopped taking it and switched to what is showing to be more effective....at a later time she might test well for the Levaquin...or she might never test well for it.

Personally I find ART to be very accurate.....I trust it to guide me through this whole process. If my practitioner tells me something isnt working I believe it and I switch it up to whatever is recommended. I think it can be very helpful in that it can give us that input as to whether or not something is effective...and it can prevent pifalls and time wasted on ineffective treatments.

I think you can probably guess what my opinion would be re: the Levaquin. :P

Sherry, as far as the food intolerances go I have never used ART for that. I only see my practitioner once every three months and we just focus on the main stressors...the metals and the infections. My food intoerances are secondary...they are not the cause of my illness...but more a result of my ilness....so we dont focus on that during ART.

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OMG! Nobody told me Burbur tastes horrible! I am so nauseated now from that stuff. Yuck! :unsure:

Does anyone know what would happen if I didn't put the herbs in 4 oz. of water? Could I do it in less? It really bothers my stomach with that much water (I know...it's barely any, but it makes me sick.)

I can't stand this...yucky! :lol: I feel like such a baby. I'd love to take all this stuff through a PICC line, lol! :lol:

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Yeah, I don't take burbur yet, and the ones I do have, have no taste.

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Kassandra, I can hardly taste it! I probably don't use 4 oz. of water ... I don't know ... I don't measure.

Lucky for you! Lol! :lol:;)

I think they all have some taste, kinda alcohol-y. They're all tolerable except Burbur...it's really gross! :pukeyface:

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it's been a while, but hopefully i'll see that bioset woman shortly, she's been on vacation

a few questions though...how exactly are problems in the detox pathways fixed? and i heard people say they had 100s of things desensitized, how exactly is that done that done? she said the first appointment is like 2 hours, i'm wondering what exactly i can expect...i assume they also run panels? some people find out lots of issues with bioset it seems...but i'm just curious to what's the process to doing those 2 things

also, what's the best kind of person to get that big urine test for metals and have all your levels tested? besides an LLMD...some doctors are just ignorant, and i really need some crucial things to be tested, but some naturopaths i've called say they only treat issues, i'm looking for somebody that's knowledgeable to get the blood work/testing i need

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it's been a while, but hopefully i'll see that bioset woman shortly, she's been on vacation

a few questions though...how exactly are problems in the detox pathways fixed? and i heard people say they had 100s of things desensitized, how exactly is that done that done? she said the first appointment is like 2 hours, i'm wondering what exactly i can expect...i assume they also run panels? some people find out lots of issues with bioset it seems...but i'm just curious to what's the process to doing those 2 things

also, what's the best kind of person to get that big urine test for metals and have all your levels tested? besides an LLMD...some doctors are just ignorant, and i really need some crucial things to be tested, but some naturopaths i've called say they only treat issues, i'm looking for somebody that's knowledgeable to get the blood work/testing i need

Rpm,

I can't comment specifically on Bioset, but if it's anything like Bioscan (or other energy modalities) it is done by balancing the different points and meridians.

The Bioset gals can probably tell you more.

I did all my metal testing and chelation with a Naturopath, a Naturopath that specialized in chelation. There are medical Drs that do chelation, so I would suggest a Dr that has a reputable chelation clinic who will have the knowledge and experience with dealing with metals.

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Wouldnt that have sugar in it lol. If not count me in i want an case of it, even tho im not even sure what it is lol

paula

NO sugar in pelligrino. I make the pelligrino, lime and stevia. Its a nice treat. The kids call it homemade sprite. Good stuff!

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