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Rachel--24

Omg...i Might Be On To Something

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Donna-

so what form of gluten would you try? thats what gets me I don't even know what i would have.

Miamia, thanks for the MSM scientificness, that was a supplement I used to take often a long time ago but I never really knew what it was for exactly :lol:

I had heard a good thing to do a challenge with was whole wheat pasta, cause it's just 100% whole wheat, but that was years ago so maybe it's since changed.

I've had help air cleaners in my home before...it got so expensive that I stopped using them. The filter for one unit was $180, and I had two units. I just couldn't afford the upkeep anymore. I DO think they helped though. Maybe I'll look into getting smaller units where maybe the filter is either cleanable or just small enough that the expense wouldn't be so much.

Well it is at least something to think about, and it might really help with the mold.

The charcoal was working I think...in fact I took one last night in the middle of the night and I actually finally slept better again. Don't know if the charcoal had anything to do with it because I also took more melatonin (that's a long story, lol). I basically just forgot a couple of nights to take it, then just decided maybe I didn't need to any more. I'll probably take it again for a week or two now.

Good to know about the charcoal ;)

I told my doctor yesterday that it's what I would imagine drugs would be like...I'm fine if I don't taste it, but once I taste sugar, it's like I'm driven to have more. :P Never taken drugs, so I'm not sure that's all true, but if it's like what I've seen on TV, then it is, lol.

I was just reading about this in my hair analysis results, I got an entire booklet write up back from the lab :lol:

...anyway, it says in my case it's my low potassium/sodium ratio and adrenal burnout that causes this. When you have adrenal burnout, and a lot of other things going on, you can't assimilate your food or nutrients properly or draw adequately on glycogen reserves in the liver to supply you with the energy you need to cope with day to day living.

The result is suffering from constant cravings for high energy foods, this is most often simple sugars and carbs that enter the blood stream quickly, in order to assist you in combating perpetual fatigue.

I have to say I think my hair analysis was a very valuable test for me and money well spent :D

as if our local ice cream isn't good enough (they are famous for their chocolate chunks, which are still somewhat soft ... amazing ... can't even describe it!) .... well, they sell these homemade carmel covered marshmallows. :angry: I ate four of them last night and felt guilty. I can't wait till tonight so I can feel guilty for eating the last two! :lol:

Omgosh are you trying to torture us?!?!?!

Crate and Barrel and Williams Sonoma had those carmel covered marshmallows around Christmas (actually before Christmas, they were completely sold out by Christmas :lol: ) and I soooo wanted to try them :(

Maybe next year.

Note to self:

It is a bad idea to start a full candida diet and quit smoking on the same day.

:o

That can't be easy Nyxie :(

When meds are being tested with ART they are tested against the "bugs".

Personally I find ART to be very accurate.....I trust it to guide me through this whole process. If my practitioner tells me something isnt working I believe it and I switch it up to whatever is recommended. I think it can be very helpful in that it can give us that input as to whether or not something is effective...and it can prevent pifalls and time wasted on ineffective treatments.

I knew you would have much insight about ART to share Rachel.

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I think they all have some taste, kinda alcohol-y. They're all tolerable except Burbur...it's really gross! :pukeyface:

I never noticed burbur to have a taste...all of the NutraMedix herbs seem tasteless to me. They do taste like alcohol but I let the alcohol evaporate in the water before I drink it. All of my Dr.'s had recommended I do that anyway because I'm sensitive to alcohol.

If I dont let it sit long enough I can definately taste the alcohol but not the herbs.

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I had heard a good thing to do a challenge with was whole wheat pasta, cause it's just 100% whole wheat, but that was years ago so maybe it's since changed.

Yeah....I think to really figure out how gluten affects you you would have to find the cleanest source....with no additional ingredients.

I know....it makes it much less exciting....but something like pizza has sooooo many things in addition to gluten which could cause all sorts of symptoms for sensitive people like us.

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a few questions though...how exactly are problems in the detox pathways fixed? and i heard people say they had 100s of things desensitized, how exactly is that done that done? she said the first appointment is like 2 hours, i'm wondering what exactly i can expect...i assume they also run panels? some people find out lots of issues with bioset it seems...but i'm just curious to what's the process to doing those 2 things

My BioSET practitioner tests the pathways for dysfunction. For example if a person is reactive to cysteine this could cause that pathway to not function as it should. It may become "blocked" because of the immune systems response to things which are essential in keeping the pathway clear. In that case she would try to calm the immune system by desensitizing whatever it is that the immune system is reacting to...and hopefully clearing the pathway.

There are other things that can be "off" in the body which might lead to trouble detoxing but BioSET only addresses things that are caused by immune reactions (sensitivities).

Unfortunately there are only a few practitioners who are treating pathways....most are not trained for this.

If you are very toxic there is likely to be a gazillion things showing up with BioSET. The more toxic we are and the more unbalanced our body is....the more we will tend to have immune dysfunction and can be reactive to many things.

For me BioSET treatments could go on forever because I'm so reactive. You can help your immune system and take some of the stress away by having these treatments...however, if you remain toxic your body will not hold these treatments for long.

Even if you are desensitized to something...your body can very easily become resensitized if you are still toxic from metals, lyme, yeast, etc.

I dont look at the treatments as a "cure"...at least not for those of us who are really toxic and have an endless list of intolerances.

It probably wont help you as much as treating the root cause would....but if you do these treatments along with other treatments which address infections, metals or other issues you may have...you will probably benefit more from it. Otherwise you spend alot of $$ on trying to clear sensitivities which will more than likely keep coming back because the problem causing it all remains untreated.

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Kassandra, I put one fourth of a cup of water in my burbur detox and let it sit for 1 minute.

lisa

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Thanks for the input on ART and my decision about Levaquin. I wrote Dr. E about whether I could have become dependent on the Zithromax, and she wrote:

"if your body was done with it, it would have showed up as a stress state. If your body had adapted to it, it would not have caused a healing state (a yin state) AND it would not have shown to be effective against the infections. I totally understand what you are saying, but in your case, your body needs the antibiotic, and it is still effective!"

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So I might be the first one to do food testing with ART?

I realize these may change over time, however so far, with a month between the two ART sessions, there has been a pretty consistent response. The food avoids aren't too many so far, and I have really not been able to determine what foods to eat or avoid by either elimination diet or testing. This seems like a good option to at least try.

Okay, I am still vacillating on the Levaquin versus Zithromax. I have a refillable prescription for L, but none for Z as I was buying it over the counter in China. So I will try to get the prescription in hand at least, and make a decision about when to switch after I get the input from my LLMD.

Sherry

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yeah true rachel, i'll need to act quick and get her input, she said she knows well about detox problems so, i assume she knows...i basically feel like my immune went from amazing to terrible, that's all, so it all makes sense....i've only been sick for a year yet have billions of symptoms, mostly neuro/mental, and i see some people sick for years and years with not as much wrong...i feel like i'll literally die if some things aren't helped soon, the neuro/mental things just really scare me...nothing feels right at all, it's like nothings even going on...blah

i must have pathway problems, i feel like my body can't even handle drinking a lot...that day i drank quite a bit, my body felt paralyzed and i was crying 24/7....terrifying, i'm just so nervous because i'm trying to help some things with very little problems, i feel like i just NEED something lifted off me easily so my body can at least handle it...i literally can't take any more symptoms

but yeah she said they have some blue level laser there? pretty sure i said it wrong, but i remember somebody else asking about it not long ago...anybody know?

it REALLY sounds like i have mercury poisoning, but i don't get how i could have that seriously, i've never even had a filling...not like that's the only way but still, it'd be shocking to me

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RPM, does your mother have silver fillings? You can get it that way. Otherwise, it could be another metal .... I was toxic in lead. Also, Lyme has biotoxins of its own.

I got my Humaworm yesterday, started it last night. :) So far, it's not making me feel worse. I haven't flared because of this bug I've got either. My back was hurting yesterday, and when I talked to Adam he asked if I felt like someone beat me on the back with a stick, and I said yes, then he said that I've got the same thing he had then, LOL.

I knew it wasn't the Lyme flaring as it doesn't hurt nearly that bad .... I won't tell him that though, I'll let him think this is bad. :D

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I talked to my friend's mother last night...my friend has been in the hospital since Monday. They did surgery to put in a metal plate and a couple of screws. Her mom thought she'll have to have those in for at least a year. :( She has to be off her feet for at least 3 weeks, and then, I think, crutches or walker for another month. The pain meds aren't doing much either, so she's in a lot of pain. She may get to go home today. Her mom is going to be staying with her, which is a relief.

So I guess the new stuff I'm taking must really be working on something cuz I'm starting to see things again when I go to the bathroom, lol. Bowels have been very noisy for a couple of days, and have just finally started to calm down.

I started the probiotic last night...so I've started 4 of the 6 things. I'll start one of the gallbladder things tomorrow.

Sherry,

You can be our ART food testing pioneer! :lol: I agree with the importance of finding the underlying cause of it all. Knowing what is bothersome and avoiding it can greatly relieve sypmtoms and discomfort in the meantime.

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Carla,

Did you hear that Vic is in a drug induced coma? :( I feel so bad for her. Read the thread by her about the Lyme walk in the general section.

I'm glad you're not in too much pain.

Donna,

I'm sorry to hear about your friend. :( I hope she gets well soon!!

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Okay, pioneer it is. It goes very fast, so doesn't push the cost up too much.

Yes, I agree about the underlying things, but I am needing to remove stress from my system, and want to know if foods might be causing some of the ups and downs.

Hey, I think that the neurotransmitter support is helping with sleep, even on the Levaquin still! Perhaps all the new stuff is helping.

Either that or I am turning a corner on the Levaquin....

Donna I think your approach is best of one thing at a time. I'm doing all the recommended changes, and then bumping up the doses gradually because otherwise I won't have a chance to test the effectiveness before I leave for China.

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Hey, I think that the neurotransmitter support is helping with sleep, even on the Levaquin still! Perhaps all the new stuff is helping.

...

Donna I think your approach is best of one thing at a time. I'm doing all the recommended changes, and then bumping up the doses gradually because otherwise I won't have a chance to test the effectiveness before I leave for China.

Yeah, the neurotransmitter support really did help me with sleep too I think. My doctor (not the one who I saw for the neurotransmitter stuff) just made some adjustments to the quantities I was taking, and I think that helped too.

When do you leave for China?

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Guest Lore

That's interesting. I notice that every night, even when I eat gluten-free, I still have a horrible bloated stomach. I eat corn A LOT too, as a substitute for gluten! I decided yesterday that I am cutting corn out for a while to see what happens. I suggest you try it and monitor your results! Listen to your body... you know what's best for you more than anyone! :D

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it REALLY sounds like i have mercury poisoning, but i don't get how i could have that seriously, i've never even had a filling...not like that's the only way but still, it'd be shocking to me

Like Carla said...if your mom had fillings some of her mercury burden would be passed onto you. There is also vaccinations.

One of my Dr.'s explained to me that there really isnt anyone living on this planet who's totally free of mercury. We are all exposed to environmental mercury every day....its unavoidable. Depending on where you live you may have alot of exposure or a little exposure...but you would definately be exposed to it. Its in the air, land water...and even in our food supply (fungicides). There is also plenty in seafood.

It all depends on how well your body can detox it. If your detox pathways are impaired from something like Lyme....or anything else that might be putting a burden on your organs...or if you are genetically susceptible to mercury (less capable of detoxing it)...you can become mercury toxic even if you've never had fillings.

Toxins and heavy metals all begin to accumulate when we cannot detox well. Alot of us here are intolerant to alcohol....if we cant handle the toxicity from a drink...I'm sure we are not doing well with exposure to mercury and other toxins. The thing about mercury is that it only stays in the blood for a short period of time..then it gets stored in body tissue, cells, etc. Once that happens it doesnt usually come out on its own.

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Sherry, was it you who mentioned you have problems taking your supplements, something with your throat?

I was curious what you were instructed to do to help this, something with your pallette??

Donna, your friend must have had a really bad break :( That sounds painful.

I am also taking all my new supplements one at a time, and slowly. I start one for a couple days before I add in another and then I increase the dosage every few days until I am up to the max dose.

Carla, hope you are feeling better today.

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Carla,

Did you hear that Vic is in a drug induced coma? :( I feel so bad for her. Read the thread by her about the Lyme walk in the general section.

No, I heard on Lyme Chat that she was in the hospital, but no one knew details. I check that out later, my LN connection isn't working to well right now.

Carla! Can I call you? We need to talk! :):P

Sure! I'm on my way to Whole Foods right now, and Kroger to pick up meds .... so, wait an hour or so after I've made this post, then after that will be okay.

Carla, hope you are feeling better today.

Thanks. I'm kind of declining into a fog .... then I remembered, this happened last time I took Humaworm, so it must be stirring up toxins. I'll need to get home and take some parsley, burbur, and chlorella. :) I guess I did need to do a second round of this stuff!

I'm going to make a pot of chili (very easy to make), then spend the rest of the evening relaxing! :D

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I went to whole foods to see about the mangosteen. which one do you get? Is it the genisis one?

lisa

p.s. I smell pot!! :wacko:

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Well, it's been a GI tract kinda week. Got back the results of the stool testing on Monday.

I've got "many yeast". No kidding, that's what the report says and is exactly how the dr told me. Also have a rather large amount of Pseudomonas aeruginosa. Other than that, everything was fine. Dr's got me on caprylic acid, more probiotics, a candida diet, and chia seeds.

Yup. Ch-ch-ch-chia like on the ads. I think this is going to be my new vice. I've been "Racheling" them since yesterday. :P Oddly enough, when I was running errands today, I was craving the darned chia seeds instead of ciggies. Now THAT's something!

Saw the GI today too. Gave him a piece of my mind and it felt really good. He wants me to get a Hida scan done (finally) and wants to see me again once that's done. Also scheduled another abdominal u/s in a couple of months. He wrote an rx for something that's supposed to help with the pain, but don't think I'm going to take it. He said its a smooth muscle relaxant. Just what I need... relaxed intestines.

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Donna,

I'm sorry about your friend. That sounds like a bad break. :(

Everyone,

Rinne sends a Rachelvillian hi and that she's thinking of everyone.

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I heard from Dr. H tonight. He's starting me back on 1 Malarone per day because of the air hunger. I've also had night sweats .... started out as just thinking I was hot, but last night it was drenching. No other symptoms though, I generally feel normal, or what is "normal" to me, LOL.

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